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View Poll Results: Do you have any other autoimmune disorders
yes, I do 91 59.87%
no, I don't 32 21.05%
not sure 29 19.08%
Voters: 152. You may not vote on this poll

 
11-28-2012, 09:12 AM   #61
723crossroads
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Wow we're walking medical cases!! Lol
I have Crohn's, psoriasis, raynauds (my feet look like dead peoples when im cold lol), GERD,dry eye,& just waiting ontest results to see if i have Fibromyalgia or ME.

The list just keeps getting longer! Funny how they all blur into symptoms of everything!
We really all deserve a break from this auto immune crud
I too have psoriasis, exzema, gerd,and fibromyalgia and myosis and arthritis really bad in my hands and spine. It is so painful sometimes, like today!!! God bless us all!!!
03-23-2013, 04:12 AM   #62
juljul
 
Join Date: Apr 2012
Location: United Kingdom

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Not diagnosed with my bowels yet, but just diagnosed:
* UCTD (is looking like Lupus because I have the Lupus marker (ant-dsDNA) and signs of Lupus panniculitis in my lower legs but I only saw the Rheumy once so need a full diagnosis...might need to find a Lupus specialist I think!!)
* suspected Raynaud's
* suspected Sjorgren's
* borderline hypothyroid (auto-immune?)
*arthritis? not sure which yet, but flares with the rest.
* lots of GI issues mouth to anus basically... not sure if Crohn's, Celiac, Lupus...or combo but has to be auto-immune logic would dictate (from UCTD/Lupus) going on. The last clueless Dr thinks there is nothing wrong with my gut period, yeh right, because it is normal to struggle to eat for starters !!!
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Anything I say on here is not a substitute for medical advice. I speak only from my life experience. I am not a medic. Please don't take anything I say as medical advice. Thanks...
03-23-2013, 08:15 AM   #63
CLynn
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Juljul, I had a doctor who suspected lupus in me a few years ago, had many signs of it, and since I have Crohn's she thought, well, one autoimmune disease brings on others. By the time I got to the specialist for testing, I offhandedly mentioned my toddler son had just had Fifth disease....the rhuemy's told me that in adults, Fifth disease presents itself with lupus symptoms. He tested my blood and sure enough, it was Fifth's, not lupus. I was so grateful.
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Cheryl
Diagnosed:1988
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
03-23-2013, 08:45 AM   #64
723crossroads
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juljul, I sure hope they find out what you have and get you started on some treatment and some vitamins etc.... Hang in there, we've all been on the roller coaster ride with these Dr.'s and still are! But just do the best you can to take care of yourself. Hopefully it won't be as bad as you think!
03-24-2013, 05:05 AM   #65
juljul
 
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Thank you so much CLynn and 723Crossroads for your support. Many and God bless..... I have never hear of Fifths disease CLynn .....will now have to go and research that. Thank you both ...
03-25-2013, 04:29 AM   #66
Zach
 
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I also have GERD and when I'm in a bad flare a tiny bit of eczema
03-25-2013, 07:39 AM   #67
JoFowler
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Join Date: Nov 2012
Location: Dartmouth, Nova Scotia

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Eczema, allergies, thyroid disorder, MGD eye disease(I am assuming this is related-it's an inflammation problem)
03-25-2013, 09:53 AM   #68
CLynn
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My eye doctor was watching my eyes because of macular degeneration, Jo, wonder if these eye conditions are related at all to our Crohn's. The first time he tested it, he was concerned, but the next year he felt better about it. Think it helped that I made sure to take my multivitamin again, but just to be on the safe side, going to check out the vitamins made for eyes.
03-25-2013, 11:00 AM   #69
723crossroads
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My eye doctor was watching my eyes because of macular degeneration, Jo, wonder if these eye conditions are related at all to our Crohn's. The first time he tested it, he was concerned, but the next year he felt better about it. Think it helped that I made sure to take my multivitamin again, but just to be on the safe side, going to check out the vitamins made for eyes.
It is related, there are threads about side affects of crohn's and eye problems are one.When I was flaring my eyes kept getting red and burning and pain behind the eye.
03-25-2013, 11:14 AM   #70
CLynn
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Hmmm, that makes me realize that my "dry" eyes might be related too. I use eye drops every morning, just for moisture. I have for years. Nothing prescription, just over the counter, lubricating eye drops.
03-25-2013, 11:27 AM   #71
JoFowler
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It is related, there are threads about side affects of crohn's and eye problems are one.When I was flaring my eyes kept getting red and burning and pain behind the eye.
It's funny you should say that, over the last two weeks before my last infusion, my eyes were burning out of my head. My allergies were really bad too.

Another thing, my mom was visiting this weekend and asked about my eczema...I haven't had any this winter! First time since I was 9 years old! So am I right to assume that Remicade has helped with that as well?
03-25-2013, 11:29 AM   #72
CLynn
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Yes, I would think it would, Jo. I know when I was on Imuran and Azathioprine, my psoriasis would go away during the treatment.
03-25-2013, 11:50 AM   #73
723crossroads
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I put baby oil on my legs and arms everyday after my shower. It works so much better than lotions and you smell baby fresh! It also helps those dry patches I get. Anyone else have dry patches in your scalp? I do!
03-25-2013, 11:55 AM   #74
JoFowler
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I put baby oil on my legs and arms everyday after my shower. It works so much better than lotions and you smell baby fresh! It also helps those dry patches I get. Anyone else have dry patches in your scalp? I do!
I use body butter all over every day after shower during the heating season, and a lighter lotion in warmer, humid months. I love it!

I use anti-dandruff shampoo during fall/winter and that seems to work. My step-brother had insane dandruff when he was on Remicade and used apple cidar vinegar before washing hair. The brand name is Bragg, he said it was the only one that worked for him.
03-25-2013, 11:57 AM   #75
723crossroads
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I use body butter all over every day after shower during the heating season, and a lighter lotion in warmer, humid months. I love it!

I use anti-dandruff shampoo during fall/winter and that seems to work. My step-brother had insane dandruff when he was on Remicade and used apple cidar vinegar before washing hair. The brand name is Bragg, he said it was the only one that worked for him.
He is right! Plz don't use dandruff shampoo all the time. It even tells you on the bottle only once or twice a week. It can be toxic. It goes into your body, those chemiclas. Plz read the label and do as your brother does instead.
03-25-2013, 12:07 PM   #76
CLynn
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I use Vaseline Intensive Care's Cocoa Butter lotion...in the big, brown bottle. Cocoa butter does best on my skin, better than baby oil for my skin for some reason. Plus....it smells so yummy, lol!
Teresa, my daughter never had dandruff or needed that shampoo until we treated her scalp with RID for lice in her 4th grade year. Now, if she stops using it for a length of time, her dandruff returns.
03-25-2013, 12:25 PM   #77
723crossroads
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I use Vaseline Intensive Care's Cocoa Butter lotion...in the big, brown bottle. Cocoa butter does best on my skin, better than baby oil for my skin for some reason. Plus....it smells so yummy, lol!
Teresa, my daughter never had dandruff or needed that shampoo until we treated her scalp with RID for lice in her 4th grade year. Now, if she stops using it for a length of time, her dandruff returns.
Try the braggs vinegar for five minutes before you wash her hair. I know it stinks, dilute it half water and half vinegar I think it said. look it up online. Also taking zinc a few times a week and borage oil really helped my son. He always had scalp and skin problems. I read about that and it cured him completely. You just can't give them alot of zinc. Small amounts a few times a week. That is what I did. Borage oil is similar to evening primrose oil. Look up the vinegar for dandruff.
03-28-2013, 09:44 PM   #78
missylock42
 
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I lost my vision before I was told I had Crohn's and now I am blind
04-05-2013, 08:12 PM   #79
mermenbananas
 
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Crohn's - July 2010
Type 1 Diabetes - September 2010

Age 23 wasn't very kind to me!

Fingers crossed that I don't get anything else.
04-05-2013, 09:55 PM   #80
utmelody
 
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Yes, I also have Hashimoto's
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