Share Facebook
Crohn's Disease Forum » Surgery » Stoma Subforum » Saved by Tegaderm!


03-27-2012, 03:13 PM   #1
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Saved by Tegaderm!

Had a nasty one yesterday. Blowout to the left center of the appliance. At work! Saved by tegaderm! Couldnt change, too public! Patched it with tegaderm and it lasted for the hour I needed.

I only have the little patches of Tegaderm that I got off of Amazon, so not the proper rolls of tape. But it was enough to save the day!!!!

Whoever invented Tegaderm, may I thank you!!!!!!!
__________________
Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
03-27-2012, 03:15 PM   #2
robbo87
Senior Member
 
robbo87's Avatar
 
Join Date: Dec 2008
Location: Wigan, United Kingdom

My Support Groups:
I've been meaning to buy some of that stuff to try it out! Someone on here pointed me to somewhere I could buy the rolls cheap but can't find the link now, glad it worked for you! I currently use something called mefix which comes in a roll and is quite handy but its not waterproof
__________________
My Story
Diagnosed 2008
Currently taking
omeprozol 40mg
codeine x4
laparimide
ferrous sulphate
folic acid

ileostomy, colostomic mucus fistula stoma. gastostromy after recent surgery

tried, prednisolone, pentasa, azathioprine and infliximab
03-27-2012, 03:19 PM   #3
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
Yey!!!! TOUCH WOOD, I've only had small minor leaks at home recently.

Oh by the way, did you see Embarrassing bodies last night? There was a girl on there who had UC and had similar stomach problems to you but lots worse. Her stomach looks amazing now!
__________________
Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
03-27-2012, 03:19 PM   #4
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I would LOVE to find the rolls of Tegaderm but havent found them in the UK. The little patches I got off of Amazon.co.uk did the trick for me. I patch on the top of the appliance regardless with Tegaderm, as that is where I have the most problems.

Bear in mind I have a parastomal hernia from hell..Ollie (again) and I need all the help I can get. Tegaderm is WONDERFUL!!!

I am beginning to patch all over the appliance now with my issues with Ollie. I think they will have to either have to reverse or move Stan.
03-27-2012, 03:23 PM   #5
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
No Michelle, I didnt??? What happened???
03-27-2012, 03:28 PM   #6
KWalker
Moderator
 
KWalker's Avatar
Tegaderm works amazing! I had more rolls then I knew what to do with it when I first had my abscess and I threw it away because I didn't know what to do with it.
__________________
Diagnosed:
Age 2 (1992)

Previous Meds:
Prednisone
Remicade
Humira
Methotrexate (oral)
Methotrexate (injections)
Cipro
Flagyl

Current Treatment:
200mg Simponi, Psyllium
03-27-2012, 03:32 PM   #7
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Buggers! Then again postage from Canada....
03-27-2012, 04:07 PM   #8
KWalker
Moderator
 
KWalker's Avatar
yeah I thought about that. I would have gladly sent them to somebody but I figure with the location of the majority of people on here it would probably be cheaper just to buy them
03-28-2012, 06:48 AM   #9
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
No Michelle, I didnt??? What happened???
You need to watch it on 4od!!! She got an op on her stomach to make it all nicer again! Was amazing.
03-28-2012, 04:21 PM   #10
KazT17
Senior Member
 
KazT17's Avatar
 
Join Date: Feb 2011
Location: United Kingdom
Hiya the link was to amazon Martin, not tried it myself though:

http://www.amazon.co.uk/Opsite-Flexi.../dp/B005UREPVS

Kaz xxx
__________________


Crohn's diagnosed 2010
Ileostomy 2011.
Completion Proctectomy 2012
03-28-2012, 04:24 PM   #11
KazT17
Senior Member
 
KazT17's Avatar
 
Join Date: Feb 2011
Location: United Kingdom
Sorry to butt (hee hee) in on your conversation guys, but I saw embarrassing bodies, they did a great job on her stomach. Not sure if I could have put myself through that op though.
Am I unusual because my scar has completely gone - not a sign of it.
Btw - if I can just have a moan - my op has been cancelled for the 3rd time. Arrgh .....

Kaz xxx
03-28-2012, 04:27 PM   #12
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Which episode is this? I tried searching abdominal (ewww) and I tried UC.

I'm so sorry your OP has been cancelled again Kaz!!!!
03-28-2012, 11:58 PM   #13
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
I love Tegaderm! It's one of my favourite dressing products, sooooooo versatile! Just sayin'

Dusty. xxx
__________________
Mum of 2 kids with Crohn's.
03-29-2012, 11:14 AM   #14
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
[QUOTE=Terriernut;426770]Which episode is this? I tried searching abdominal (ewww) and I tried UC./QUOTE]

Series 5, episode 4. The most recent one!!

http://www.channel4.com/programmes/e...ing-bodies/4od
03-29-2012, 12:37 PM   #15
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Thanks Michelle! I wonder why the search didnt work?

By the way, I have an appt with a surgeon on the 12th of April. To look at my tummy. I dont know if they can do anything for me. But maybe liposuction will help? And then I want referred back to Miss Obichere for further hernia repair, or reversal, or whatever they can do. (I'm thinking the plastic surgeon will have to consult with Miss Obichere with a huge hernia there.)

Ollie the parastomal hernia is now even much bigger than he was before. I truly do look like I'm having twins, and can no longer wear anything but maternity wear. Which looks a bit odd on a 50 year old!
03-29-2012, 05:43 PM   #16
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
Oh no I hope you get it sorted! You should see how they fixed that women's surgery too. She had a hernia but I couldn't see it personally. Where you having the op?

Kaz- how annoying!! Hope you get to have it soon!
03-29-2012, 08:29 PM   #17
Miss Underestimated
Senior Member
 
Miss Underestimated's Avatar
 
Join Date: Mar 2011
Location: Norfolk, Virginia
Invacare makes fairly large sheets of the same material. I got it when I was taking care of my Mom - she was bedridden for a long time. It's Invacare transparent film dressing. If I recall correctly, it was less expensive than Tegaderm.
__________________
*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.
03-29-2012, 10:34 PM   #18
Manzyb
Forum Monitor
 
Manzyb's Avatar
 
Join Date: Nov 2009
Location: San Diego, California

My Support Groups:
I hope that you can get that straightened out soon!! I was thinking april 12 seems so far away... but duh... April is here next week!! Crazy. I really hope they can figure it out for you and fix it. I can only imagine how annoying that must be
__________________
Diagnosed with CD in 1999 at 15.
http://www.facebook.com/profile.php?...14&ref=tn_tnmn


Sadie turns 2, 4/5/13!
Reply

Crohn's Disease Forum » Surgery » Stoma Subforum » Saved by Tegaderm!
Thread Tools


All times are GMT -5. The time now is 08:04 PM.
Copyright 2006-2017 Crohnsforum.com