hi there!
Hi! My name is Katie and I was diagnosed with Crohn's in 1997 when I was five. When Remicade was approved for kids, I was put on it. From then till like 2007, the worst of my Crohn's was stomach aches and constipation.
In the spring of 2007, my Crohn's started to flare up really bad. During that summer, I ended up getting Crohn's from my mouth to anus. Unfortunately, there were some issues getting in to see my gastro and the two times I got hospitalized that summer (for dehydration, because I couldn't eat or drink anything due to the sores), they misdiagnosed the sores in my mouth (not realizing they were going all the way through my system), but finally in September, my gastro did a colonoscopy/endoscopy and confirmed that it was all Crohn's.
After that, I was put on Humira instead of Remicade and then because of a blockage my gastro recommended I get part of my intestines removed. So in the summer of 2008 once school was done, I had 6 inches of my small intestine and 6 inches of my large intestine around the illeum removed. After that, my health was really, really good till March 2011, with the only medication I was on was Humira.
Last March, my Crohn's started flaring up again. I think most of my flare up was because of stress from it being my first year of college and having to deal with a terrible roommate. Because it was so close to the end of the school year, I just dealt with it and once summer started in May, I saw my doctor, a CT scan, a flex sigmoidoscopy, and prescriptions of Flagyl and Prednisone, that flare-up was under control for the summer. That was also the end of me going to a pediatric gastro, because the children's hospital he did his procedures at didn't want me going there anymore because I was 19.
Starting in October, I had another flare up and that's where I still am now, finally getting it under control after switching to a new gastro for the second time in the last year. Right now, my biggest issues are peri-anal Crohn's and a fissure/skin tag that I have.
Sorry this was so long.
I like to type.
Hi! My name is Katie and I was diagnosed with Crohn's in 1997 when I was five. When Remicade was approved for kids, I was put on it. From then till like 2007, the worst of my Crohn's was stomach aches and constipation.
In the spring of 2007, my Crohn's started to flare up really bad. During that summer, I ended up getting Crohn's from my mouth to anus. Unfortunately, there were some issues getting in to see my gastro and the two times I got hospitalized that summer (for dehydration, because I couldn't eat or drink anything due to the sores), they misdiagnosed the sores in my mouth (not realizing they were going all the way through my system), but finally in September, my gastro did a colonoscopy/endoscopy and confirmed that it was all Crohn's.
After that, I was put on Humira instead of Remicade and then because of a blockage my gastro recommended I get part of my intestines removed. So in the summer of 2008 once school was done, I had 6 inches of my small intestine and 6 inches of my large intestine around the illeum removed. After that, my health was really, really good till March 2011, with the only medication I was on was Humira.
Last March, my Crohn's started flaring up again. I think most of my flare up was because of stress from it being my first year of college and having to deal with a terrible roommate. Because it was so close to the end of the school year, I just dealt with it and once summer started in May, I saw my doctor, a CT scan, a flex sigmoidoscopy, and prescriptions of Flagyl and Prednisone, that flare-up was under control for the summer. That was also the end of me going to a pediatric gastro, because the children's hospital he did his procedures at didn't want me going there anymore because I was 19.
Starting in October, I had another flare up and that's where I still am now, finally getting it under control after switching to a new gastro for the second time in the last year. Right now, my biggest issues are peri-anal Crohn's and a fissure/skin tag that I have.
Sorry this was so long.
I like to type.
