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Crohn's Disease Forum » Support Forum » The discomfort is so trying


04-12-2012, 12:41 PM   #1
Adam1971
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the discomfort is so trying

Hi all. I just need a moment to share how hard today has been. I am still dealing with a bottle neck in my TI, and I can't really eat without pain, discomfort, gas, and very painful diarrhea. Its a little heightened because I am at a 2 day staff retreat for the agency I work at- lots of sitting, abaundant meals I can't eat, too many trips to the bathroom than I can count, and my backside is flaming . I am waiting for humira to kick in and entecort isn't really helping anymore.

I just needed to vent a bit and ask for support. I almost started crying in the lunch line.

Thanks and lets hope for better digestion!
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dx Crohn's in TI March 2012

Surgery on Dec. 11th, 2012-Ileocolic resection

Remission since surgery- a true blessing
04-12-2012, 12:49 PM   #2
CLynn
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Oh, Adam, so sorry to hear how you've been feeling. I will have you in my prayers, sending good thoughts and hugs your way.
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Cheryl
Diagnosed:1988
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
04-12-2012, 01:04 PM   #3
shazz
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Oh hun.
So sorry you are up suffering like that.
Hope the humira kicks in soon and you can get some much needed and deserved relief.

Xxxxxxxxxx
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DX: September 2011 UC now possible Crohns Feb 2012
Have tried: Pentasa(all forms),Prednisolone,Aza, 6MP, Infliximab,colifoam,metronizadole
Allergic/sensitive to: Penicillin, medical adhesives, tramadol
Am on: Citalopram,warfarin, paracetamol
Ozzie was born on 2/2/12
23/2/12 p.e in both lungs.
Now the gallbladder decides to say hello!!
04-12-2012, 01:14 PM   #4
Astra
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Adam, hopefully the Humira will kick in soon, xxx
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Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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04-12-2012, 02:39 PM   #5
LindaS
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Adam, I'm so sorry you are in so much pain. I hope the Humira kicks in soon for you.
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04-12-2012, 02:40 PM   #6
Rebecca85
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Could you try a liquid diet (enteral nutrition) until the meds kick in? Maybe a liquid diet would pass through the bottleneck without giving you pain.
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125mg azathioprine
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04-13-2012, 08:02 PM   #7
Adam1971
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Thanks for all the well wishes and advice. It definitely helped to come to the forum with what I was feeling. I am doing much better today.

Adam
04-13-2012, 09:01 PM   #8
changeiscertain
 
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Glad you're doing better, Adam!
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