Share Facebook
Crohn's Disease Forum » Treatment » Enteral Nutrition & TPN » Cost of elemental feeds


04-16-2012, 01:15 PM   #1
SarahD
Senior Member
 
SarahD's Avatar
 
Join Date: Feb 2012
Location: Cambridge, United Kingdom
Cost of elemental feeds

I went to the pharmacy this afternoon to get a prescription processed for 100 cartons of elemental extra 028. This quantity currently lasts me for 12.5 days.

Anyway, whilst at the pharmacy the pharmacist told that it costs them over 300 to order the 100 cartons, so just over 3 per carton. I knew they were expensive but I didn't realise just how expensive. I'm not really sure why the pharmacist told me this information - I can only think it was to either make me feel guilty that I'm on such an expensive med (in which case it didn't work) or maybe she thought I'd be less wasteful if I knew how expensive these things are. It's times like this that I am incredibly grateful to have the NHS who pick up most of the cost. I must have cost the NHS thousands of pounds over the last few months...

Just thought I'd share the story in case others were interested to know just how expensive the elemental drinks are.
04-17-2012, 04:31 PM   #2
happy
Senior Member
 
Join Date: Nov 2010
Location: Alberta

My Support Groups:
Hi SarahD,
Yup, they are expensive. Your cost is similar to ours. I spent about $40.00/day for VivonexPlus. When I used the currency converter from British Pounds to Canadian Dollars, your price was the same. But I had to pay for it myself!

Enjoy your your liquid food. May you soon be well enough to enjoy solid food again.
__________________
Diagnosed with IBD Sept. 2010
Enteral Nutrition induced remission in August 2011
Maintaining remission on Full Elimination Diet
04-19-2012, 10:00 AM   #3
littlemissh
Senior Member
 
littlemissh's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I was amazed when I looked up the cost of elemental cartons. I have had 10 a day for the last 10 weeks so am very glad I have the NHS.
Hope they are ok for you Sarah.
__________________
Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
04-23-2012, 03:21 PM   #4
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
SarahD, how much do you have to pay for them on the NHS? I have been doing some research out of interest (I may be thinking about bringing it up with my GI next week).
__________________
~Holly~
Diagnosed with CD March 08 at 17
Currently on:
Infliximab

Past:
Pentasa
Prednisolone
Azathioprine

My blog: http://hollysbloggyness.blogspot.com/
04-23-2012, 03:31 PM   #5
SarahD
Senior Member
 
SarahD's Avatar
 
Join Date: Feb 2012
Location: Cambridge, United Kingdom
Hi Holly,

I just pay a standard prescription charge, so 7.65.

You can get cartons in 3 flavours and powder sachets in 4 flavours. You pay 1 prescription charge for the cartons and 1 charge for the sachets, regardless of the number of flavours you have of each.

Initially I was only prescribed two-weeks worth at a time and I was on a mix of cartons and sachets, so it was working out at about 30 a month. If you do go down the elemental diet route, I would highly recommend getting a prescription pre-payment card, which costs about 30 and lasts for 3 months. Mine saved me a fortune!

Sarah
04-23-2012, 03:36 PM   #6
littlemissh
Senior Member
 
littlemissh's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I also have a prepayment card and has saved me a fortune as well, though I shelled out for a year one.
04-24-2012, 08:51 AM   #7
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
Thanks,
I think I am entitled to free prescriptions, as I had a a valid HC2 form untill march and just haven't got around to filling out a new form.
I don't really know how to bring up the subject with my GI as they have never mentioned this to me before. But I do have an interest in this sort of thing as I am doing a degree in nutrition.
I'm assuming you are not allowed to drink coffee? lol I would miss this!
04-24-2012, 11:47 AM   #8
SarahD
Senior Member
 
SarahD's Avatar
 
Join Date: Feb 2012
Location: Cambridge, United Kingdom
Hi Holly,

I saw in your signature that you're doing a degree in human nutrition, that's really cool. Do you get to study things like enteral nutrition?

My GI brought the subject up with my because I was having a bad flare and I imagine if you're in remission the diet would be difficult as you wouldn't be able to tell whether the diet was helping. But if you are having problems I can't see any harm in discussing the diet option with your doctor. I get the impression that some GI's just don't even consider that diet is an option and would rather go the easy route and prescribe drugs.

I think the advice varies from one dietitian to the next, but I'm only allowed water, no coffee and no tea I'm afraid.

Sarah
04-24-2012, 04:02 PM   #9
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
We don't really study enteral nutrition because this is the sort of thing dietitians cover and that is a different course. Human Nutrition is more like, how the body uses the nutrients and what happens in malnutrition, how you get dietary diseases and how to prevent them, the effects of exercise and health. We also have modules on food safety which covers food poisoning and other modules on all sorts of issues in the food system and that sort of thing. Very interesting but not anything clinical like enteral nutrition. Our course is accredited though so I can register as an associate nutritionist once I have graduated.
I am not really really ill at the moment but I can feel myself getting worse and have fistulas which I'm concerned are getting worse. I'm kind of feeling like I will do what I can to stop them getting worse.
Thanks for the info
08-24-2012, 10:44 AM   #10
crunch
 
crunch's Avatar
 
Join Date: Aug 2011
Location: Oxon, United Kingdom
my GP said the power Elemental 028 was about 60 a box, and that her PCT would complain about it...

since thought well given that I am resisting local docs wishes to put me on infliximab/remicide for a year which would cost the NHS about 20k in my estimate, its a much better route for the PCT!!

Everythings Relative!
Reply

Crohn's Disease Forum » Treatment » Enteral Nutrition & TPN » Cost of elemental feeds
Thread Tools


All times are GMT -5. The time now is 11:36 PM.
Copyright 2006-2017 Crohnsforum.com