youngmom
hello everyone i am a mom of a crohn's child. she really isn't a child, but will always be to me! she was diagnosed at 18 and is now 28. she was in the hospital about twice a year for flare ups, but did make it through and got a college degree, that she hads never been able to use, but she got it!! she has really had it rough the past couple of years. she has treid many medications, but none seemed to be working. she has also been through many doctors who don't have a clue! (we are from a small town) as i am sure many of you have, too! she ended up with a bowel perferation last year in feb. was in icu in our hometown for a week. when they wanted to do another surgery we (her dad and i) put a stop to it. she was sent to the cleveland clinic and had another surgery to repair what they had done and had to have a illostomy.
because of the perferation she had infections everywhere. we thought we were going to loose her many times. she was in icu in cleveland several times and ended up being there for about 4 months! everytime she would seem to get better another infection would come out. her stomach was actually open for all this time with a wound vac. the nurses and doctors at cleveland were amazing and i know she would not be with us today if it were not for them.we also had her (and her 1yr old son) move back in with us and she had home health care all summer long. finally in october they reversed the illostomy and sent her home. (4hrs away from cleveland) her gi here refused to treat her when she was in the ER! Since she had finally gotten disability (after a 2 yr fight) and was put on medicare instead of (ohio) medicade she was able to see her previous doctor in indiana.
he is a god sent, but she has had recent problems again. he put her back on humira again. (a previous no clue doc took her off right before she ended up with the perferation...hum?) anyway she is in the hospital now and they are going to up the humira to weekly shots instead of every 2 week. they are also trying methotrexate which is new for her. we are hoping for remission soon!
hello everyone i am a mom of a crohn's child. she really isn't a child, but will always be to me! she was diagnosed at 18 and is now 28. she was in the hospital about twice a year for flare ups, but did make it through and got a college degree, that she hads never been able to use, but she got it!! she has really had it rough the past couple of years. she has treid many medications, but none seemed to be working. she has also been through many doctors who don't have a clue! (we are from a small town) as i am sure many of you have, too! she ended up with a bowel perferation last year in feb. was in icu in our hometown for a week. when they wanted to do another surgery we (her dad and i) put a stop to it. she was sent to the cleveland clinic and had another surgery to repair what they had done and had to have a illostomy.
because of the perferation she had infections everywhere. we thought we were going to loose her many times. she was in icu in cleveland several times and ended up being there for about 4 months! everytime she would seem to get better another infection would come out. her stomach was actually open for all this time with a wound vac. the nurses and doctors at cleveland were amazing and i know she would not be with us today if it were not for them.we also had her (and her 1yr old son) move back in with us and she had home health care all summer long. finally in october they reversed the illostomy and sent her home. (4hrs away from cleveland) her gi here refused to treat her when she was in the ER! Since she had finally gotten disability (after a 2 yr fight) and was put on medicare instead of (ohio) medicade she was able to see her previous doctor in indiana.
he is a god sent, but she has had recent problems again. he put her back on humira again. (a previous no clue doc took her off right before she ended up with the perferation...hum?) anyway she is in the hospital now and they are going to up the humira to weekly shots instead of every 2 week. they are also trying methotrexate which is new for her. we are hoping for remission soon!