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04-25-2012, 05:48 PM   #1
TeresaPro
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So what happens now

last dr's apt i was told ,"Well you are kinda in limbo now, we've tried all we can and i do n't really know what else we can do for you at this time." " Stay on the Humira and I will see you in 3 months."
Wonderful, so what do i do? I don't think the Humira is doing what it is suppose to be doing ( been on it for 4 months this weekend) The remi worked so much better crohn's wise, but i had to many side effects from it.. Humira no major side effects but not working like it should. She did mention a colostimy but i said no way in hell, unless i am on my death bed i is not happening. Yes i know lots of ppl have had it done and have a much better life now, but i mentaly could not deal with that option right now.
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04-25-2012, 08:11 PM   #2
Jennifer
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What were your side effects from the Remicade? Do you think you might be able to live with those more than a colostomy?
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
04-28-2012, 07:43 PM   #3
TeresaPro
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Nope not unless i want to loose my liver. Not only did it hurt my liver, got bad skin rashes , hair falling out, bad headaches..but it worked great on my bowels..go figure.
04-28-2012, 07:55 PM   #4
David
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Sorry to hear you're not doing great

If you want to talk about it, what symptoms are you experiencing on the Humira right now? If you just want to vent, then I feel you for sure.
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04-28-2012, 09:14 PM   #5
Jennifer
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Can the dose be increased for the Humira or can another medication be added on like a steroid such as Prednisone or Entocort? Do you fully trust this doctor or is it possible that you could see another GI for their opinion?
04-29-2012, 07:08 PM   #6
DougUte
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I'm on Humira and have had Prednisone as well, to get over my last flare.I would see if you could have something else added or Humira weekly, etc. there are other options.you might want to get another opinion.
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Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
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