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04-26-2012, 07:47 PM   #1
Leebie3
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It's confirmed

CTE came back that I have IBD. *cries*
04-26-2012, 08:08 PM   #2
Catherine
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Congralutions are in order.

When are you starting treatment?
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
04-26-2012, 08:19 PM   #3
Leebie3
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Doc wants me to have an urgent colonoscopy first. why? i don't know. I'm about to go pick up the report but he said there's inflammation and reactive lymph nodes in the terminal ileum and somewhere else and that the comments say suggestive of ibd and consistent with symptoms.
04-26-2012, 08:26 PM   #4
DustyKat
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He will want to do a colonoscopy to confirm the diagnosis. A colonoscopy still remains the gold standard for diagnosis because not are you only able to directly visualise the area but more importantly you can obtain physical evidence...biopsies. He will also have a better grasp on the severity of the disease.

The CTE still remains useful because it is able to visualise areas a scope can't reach.

Good luck hun!

Dusty. xxx
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04-26-2012, 08:31 PM   #5
Catherine
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He may consider the colonoscopy urgently so that he can have confirm dx for starting treatment.
04-26-2012, 08:40 PM   #6
Leebie3
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yeah, he said he wants that before treatment.. the colonoscopy waiting list is about 9 months :-s He's hoping that with the CTE results it'll get me in sooner
04-26-2012, 08:49 PM   #7
Catherine
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Does the NT have one awaiting list or do different hospitals have their own.

It may worth finding out.
04-26-2012, 09:57 PM   #8
System-X
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Ask your doctor about MoviPrep! And if you have to pay the extra money.

http://moviprep.salix.com/
04-26-2012, 10:32 PM   #9
tots
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My Crohns was Dx by my small bowel series. I can't believe it will take 9 months to get your test done. Although you already have your Dx. So I guess thats the important part. You can start your treatment and get on the road to remission.

What medications does he want to start you on?

Good luck!
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Diagnosed= 1992 and again Feb 2012 Confirmed with
CT enterography May 2015 !!


Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


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04-26-2012, 11:19 PM   #10
Leebie3
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none tots until a confirmed diagnosis via biopsy :-s
04-26-2012, 11:58 PM   #11
Leebie3
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Can anyone decipher?? report says...

CT Enteroclysis

CLINICAL INFORMATION: Severe lower abdominal pain. no obvious cause found. continues to have pain. possible small intestinal bleed. weight loss. worse with eating. laparoscopy normal. Apthous ulcers ?crohn's disease affecting small bowel.

TECHNIQUE: Post IV contrast axial scans were obtained through the abdomen and pelvis during the arterial phase of IV contrast and following ingestion of enteric fluid.

FINDINGS: There is some fluid distention of the small bowel. There is no evidence of obstruction/stenosis. There is however some prominent enhancement of small bowel wall in the pelvis as well as the terminal ileum. The bowel wall in this region does not appear particularly thickened and there is no stranding of the adjacent fat. There are some prominent lymph nodes in the region of the iliac chain, the largest is measuring 0.8cm in the short axis. These nodes are best demonstrated on the coronal plane. The enhancing wall is also best demonstrated on the recontructed coronal planes.

Allowing for the contrast phase, no gross focal abnormality identified in the liver, spleen or pancreas. Kidneys are contrasting normally. No paraaortic lymphadenopathy. No free fluid in the abdomen or pelvis. Prominent pelvic varicose vessels noted.

COMMENT:
There does appear to be some enhancement of the distal small bowel wall extending to the terminal ileum consistent with some inflammation. However, no definite bowel wall thickening is demonstrated. Prominent lymph nodes in the region of the terminal ileum are probably reactive.

Thank you for referring this patient.
04-27-2012, 04:46 PM   #12
System-X
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Should be careful about having too many abdominal CT's. Each pass through the CT is equivalent of being outside for 2.7 years. (Most CT's do with and without contrast). Therefore, one session could provide you with ~5.4 years worth of background radiation.

I went through 4 CT sessions before I found this information; ask your doctor if MRI's will work instead.

http://www.fda.gov/radiation-emittin.../ucm115329.htm
04-27-2012, 04:58 PM   #13
Grumbletum
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Aww, Leebie :-( Lots of us, including me, have cried when we got our diagnosis, even when we'd waited months or longer to find out what was wrong. It's a lot to get your head around but we're here to help you with that. I hope you don't have to wait 9 months for the colonoscopy cos you probably just want to start in on the treatment. X
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Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
04-27-2012, 05:46 PM   #14
Adam1971
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I am so glad to hear your'e getting some confirmation and can hopefully soon get treatment and relief!!!

WAHOO!
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dx Crohn's in TI March 2012

Surgery on Dec. 11th, 2012-Ileocolic resection

Remission since surgery- a true blessing
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