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Crohn's Disease Forum » Tests for IBD » Pill Cam / Capsule Endoscopy is stuck!


 
03-25-2013, 03:14 PM   #31
Canuck1991
 
Join Date: Mar 2013
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Sending you a virutal hug as I completely understand. Nag the doctor, call him/her....I can't believe they have not operated on you. That is insane!!
03-25-2013, 03:37 PM   #32
Jmoon
 
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the HIDA scan injections "encouraged" the muscle movement that dislodged it and moved it along.
I didn't know about this option...how does it work?
03-25-2013, 03:44 PM   #33
Jmoon
 
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I guess I am also in the "Stuck Pill Cam" club. Surgery next Thurs on 4/4/13 to remove the dang pill cam--has been stuck for 4 months. The surgery is also to remove strictures/diseased small bowel--hopefully that's all they'll remove and I won't wake up surprised with a bag.

This is the second time the pill cam has been stuck. Last time (almost 3 years ago) it was stuck for 5 months and I also had it surgically removed. I will NOT be getting another pill cam--THIRD times is NOT the charm...
03-25-2013, 10:05 PM   #34
Alison Butcher
 
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Hi they did show me the xray to establish that it was the camera inside as the radiographer thought it looked like jewellery. But I said no not jewellery thats definately the pill cam. On my right side near hip. They wouldnt tell me anymore than that. I waiting for doctor to call me at home, after phoning up this morning to see if my report had been received which it has. My doctor said he was sure that i wouldnt have any problems with the pill cam not passing this time!
Doctors arent always right! what longterm damage can pill cams course as knowing my luck it will happen to me!
03-28-2013, 12:33 PM   #35
Jmoon
 
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Hi they did show me the xray to establish that it was the camera inside as the radiographer thought it looked like jewellery. But I said no not jewellery thats definately the pill cam. On my right side near hip. They wouldnt tell me anymore than that. I waiting for doctor to call me at home, after phoning up this morning to see if my report had been received which it has. My doctor said he was sure that i wouldnt have any problems with the pill cam not passing this time!
Doctors arent always right! what longterm damage can pill cams course as knowing my luck it will happen to me!
Yeap, looks like jewelry. I ask to see the pic every time and with hesitation, they always end up showing me/telling me. Welcome to the club, at least there are folks out there who can relate!
05-14-2013, 04:46 AM   #36
kdrvn
 
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this is going to sound like a really gross question, but in most cases is it obvious when it passes? like can you feel it? Had pill cam yesterday and reading all these threads is making me nervous!!
05-15-2013, 08:10 AM   #37
Sparkle2012
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Hi - my pillcam was stuck in my strictures for 6 weeks and when it passes I was aware of something but didin't connect it to the pillcam. If you don't see it pass.....get the xray for sure. If you have strictures, they can get stuck and cause issues if left in there and sometimes have to be removed with surgery. Make sure you ask for a follow up xray!!
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Chronic Stomach pain, Gerd, Anemia. Rosacea, Migraines, Skin Issues
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GI #1: Pillcam, DX Crohns Humira ordered
GI#2: NOT Crohns; cancel Humira. pillcam stuck X6 wks! RX Entacort!
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05-15-2013, 08:14 AM   #38
misterik9
 
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I am also worried about passing. I had the procedure about 3 weeks ago and have tried to be dilligent waiting for it to appear. I have suffered from bloating and constipation for a couple of years but it might be a bit worse lately. do you always see/notice it passing?
05-15-2013, 08:55 AM   #39
Sparkle2012
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Everyone needs to get a follow up xray unless you actually see it eject. It is important.
I did not do that --- I figured it was out of my system. 3 weeks later I had a terrible "attack" when I was out of town.....lasted about 12 hours and some kind doctor prescribed me some pain meds....I went back to the doctor and told him about the attack. He said "hmmmm" and I said "do we know the pill cam is gone?" and he said "we don't generally have those problems around here." ?? Strictures...pillcam? Hello? The new GI asked me about it on my first visit and ordered an xray. There it was 6 weeks later. Just before talking about surgery, it ejected. He said they can "eat through your bowel" over time. A simple quick xray will show if it has ejected.
05-15-2013, 01:13 PM   #40
misterik9
 
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Thankyou for the advice sparkle. Im usually a hope for the best type but now I shall push for an x-ray. much better than continuing to worry.
05-15-2013, 01:28 PM   #41
Sparkle2012
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For sure! It's quick and fast and will save you some potential heartache down the road.
05-15-2013, 01:31 PM   #42
Sparkle2012
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I am also worried about passing. I had the procedure about 3 weeks ago and have tried to be dilligent waiting for it to appear. I have suffered from bloating and constipation for a couple of years but it might be a bit worse lately. do you always see/notice it passing?
Get the follow up xray!!! Better be safe than sorry.
09-04-2013, 12:32 AM   #43
Norsk Mor
 
Join Date: Sep 2013
My friend, Michele, does not have CD. However, she has a stuck pill cam so am looking for advice. In May 2013 she had a medical procedure in Washington, D.C. that involved a pill cam....a device about which she had no knowledge. Upon asking, the doctor told her there was no need to retrieve the cam as it would just naturally pass out of her system. She never gave it another thought.

In June 2013 she moved to Oregon and some time after that met with a gastro doc for a routine follow-up colonoscopy. Major problems were found and on August 28, 2013 she had surgery to remove 2 feet of her colon. The surgeon said the surgery was uneventful and he expected the recovery to be equally uneventful. Indeed her recovery was remarkably smooth and quick so that she was discharged early on September 1, 2013 and her pain was minimal. However, about 5:00 PM her pain suddenly became unbearable so she returned to the ER. Morphine calmed the pain and a CT scan revealed that the pill cam is lodged in her colon near the surgical site.

She's been told that she can't leave the hospital until the cam passes. She is on a no food/no liquid diet....only wet sponges to the mouth. Needless to say she's thirsty and hungry.

It appears the surgeon is reluctant to perform more surgery...and perhaps other options....because her recent surgery is still to "fragile". Does anyone know of any other options that haven't been mentioned in the above thread?
09-04-2013, 07:19 AM   #44
Sparkle2012
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What was the cause of the colon removal? If the pill is in her colon. why can't they do a scope and retrieve it using x-ray as the guide? My GI told me those pill cams can "eat through your bowel" if left in there. Mine was stuck for 6 weeks because my GI did not x-ray me afterwards. My new GI ordered an x-ray to see if it ejected - it did not - when I had a HIDA scan to check on gallbladder issues, the contrast material generated some activity and it was ejected just before they had to surgically remove it.

I would like to point out that her 2 doctors did not take the time to x-ray to see if the pill cam had ejected and that should be standard procedure. I hope that people on this forum will spread the word the importance of getting a follow up xray after a pilcam. It is so very important. I tell everyone I know.
09-04-2013, 11:14 PM   #45
Norsk Mor
 
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The 2 feet of colon were removed because of a "very dense forest of polyps"...many of which were 'flat' and could not be removed by the traditional method.

The procedure using the camera was by a doctor in Washington, D.C. Nothing came of the procedure.

The colon resection was done by a doctor in Oregon after Michele moved here. He was not aware that a pill cam had ever been used.

Because the colon resection was such major surgery, the surgeon is reluctant to do any procedure that might stress the resection before it is sufficiently healed. His current approach is to wait to see if it 'ejects' on its own....but that doesn't seem to be happening. If it doesn't 'eject' and she is sufficiently healed, he will likely do another surgery to remove the cam. It appears the colon may have ruptured given the appearance of blood.

I will have Michele ask her surgeon about the 'scope & retrieve' approach as well as a HIDA scan.

Thanks so much for your input.
09-05-2013, 07:06 AM   #46
Sparkle2012
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I hope it ejects on its own. Mine was stuck in the small bowel and gave me one violent weekend wreaking havoc in there. My doctor still didnt recognize there may have been a pillcam issue. Sounds like the scope retrieval might not be an option for her since that was the surgery site. He may not want a scope in there bumping around in the colon. The HIDA scan was to measure my gallbladder activity (which was not performing). There was something in the contrast that generated bowel activity but in her case, if they won't even let her eat, they are trying to control bowel activity. Sounds like she is going to have to heal before anything can be done for sure. The bowel heals fast so tell her to hang in there. Maybe they can scope the bowel afterwards and retrieve that thing. Pill cams are the devil!
09-18-2013, 07:21 AM   #47
RonnieKN
 
Join Date: Dec 2012
Well, isnt this just terrific. I had a capsule endoscopy done 2 weeks ago, I didnt see it pass and got it confirmed that it was still in there today. Wonder why they keep giving patients with severe Crohns a capsule endoscopy. Surely our per centage for failure is above 1%. I think the 1% must be from healthy patients.

Not sure what they are going to do yet, I think they are going to try the balloon thing, going through my ileostomy. Thats gotta hurt? or?
12-16-2013, 07:50 PM   #48
joshw2011
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Sorry for bumping a semi-old thread but I have some info and a question.

Question: For those of you who did this, did you not do the agile (http://www.givenimaging.com/en-us/In...s/default.aspx) beforehand? Basically it's a pill, larger (significantly) than the pill cam. You take it beforehand. If it passes fine, then the pillcam should pass fine. If it doesn't, then you don't do the pillcam. If it does get stuck, it starts dissolving after ~27 hours, so no surgery is required. Maybe it's a new thing, that's why I don't see it in this thread at all?

Also, on an info sheet I have for the pillcam (I took the agile today, do the actual pillcam, if all goes well, on Thursday) it says capsule retention is <2% overall, 1.5% if you have obscure bleeding lesions, 2.1% if neoplasms, 1.4% if suspected Crohn's, and 5% if known Crohn's.
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12-16-2013, 08:35 PM   #49
crispy
 
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I'm due to take the test pill tomorrow. MRI scan shows I have 30 cm narrowing of small bowel but docs want to 'see' what they are dealing with. They are not keen on starting me back on immunsuppresants or more surgery before they see what's going on.
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12-17-2013, 01:37 AM   #50
RonnieKN
 
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Josh, the capsule I swallowed had to be removed surgically, here in my country I havent heard about the new pill.

But sitting right here, I'm glad it had to be removed that way. Because I had some severe adhesions, where intestines after my last surgery, simply had grown together. I had around 40 cm of completely useless intestine, that had almost ingraved itself onto my abdominal cavity. It took round about 8 hours to fix it, to slice the intestine free of everything. So in my case there was a reason for the video capsule got stuck. I would'nt worry too much about it, my last post should be disregarded.
12-18-2013, 09:50 AM   #51
crispy
 
Join Date: Oct 2013
Thankfully the test pill flew through with no problems, 4 hours 15 mins then found it in my ostomy bag. The real thing is next week
12-18-2013, 10:49 AM   #52
joshw2011
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Thankfully the test pill flew through with no problems, 4 hours 15 mins then found it in my ostomy bag. The real thing is next week
Much quicker than me! Mine came out sometime overnight so I'm not sure of the exact time, but it was something like 16-20 hours, which REALLY surprised me, since stuff goes through me so quickly.
12-18-2013, 12:12 PM   #53
RonnieKN
 
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Much quicker than me! Mine came out sometime overnight so I'm not sure of the exact time, but it was something like 16-20 hours, which REALLY surprised me, since stuff goes through me so quickly.
I believe they told me, that it usually takes around 10 hours + - a few hours. I had to have the recording device on from 10:00 - 19:00.
12-18-2013, 12:47 PM   #54
Sparkle2012
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Sorry for bumping a semi-old thread but I have some info and a question.

Question: For those of you who did this, did you not do the agile (http://www.givenimaging.com/en-us/In...s/default.aspx) beforehand? Basically it's a pill, larger (significantly) than the pill cam. You take it beforehand. If it passes fine, then the pillcam should pass fine. If it doesn't, then you don't do the pillcam. If it does get stuck, it starts dissolving after ~27 hours, so no surgery is required. Maybe it's a new thing, that's why I don't see it in this thread at all?

Also, on an info sheet I have for the pillcam (I took the agile today, do the actual pillcam, if all goes well, on Thursday) it says capsule retention is <2% overall, 1.5% if you have obscure bleeding lesions, 2.1% if neoplasms, 1.4% if suspected Crohn's, and 5% if known Crohn's.
That's awesome, I know they do it in the UK. Mine got stuck and I had a very painful few days with it -- luckily discharged. Either way, be sure to get the xray to make sure it ejected unless you saw it. It's important because it can harm your bowel.
12-18-2013, 12:49 PM   #55
Sparkle2012
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Why aren't the doctors using this dissolving pill especially when they know you are experiencing strictures? I swear it makes me so mad.
12-28-2013, 12:54 PM   #56
crispy
 
Join Date: Oct 2013
The pill passed thru ok, took a while to leave my stomach. Clever stuff watching the pictures live on the belt I was wearing!
Just waiting for the results now
12-29-2013, 04:33 PM   #57
Sparkle2012
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You could see it???? Oh man!! I didn't know that.
03-19-2014, 07:44 PM   #58
LQ916
 
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Hi all,
Scheduled for pill cam next week. Have had "D" for 3 months now.
Lost another 7 lbs last mo. Hoping for the best, w/ results. I eat double portions
And cant retain or gain weight. Pray for me. Thank you!
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No surgery or major complications thus far!
03-19-2014, 08:46 PM   #59
Sparkle2012
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Be sure to get your follow up xray if you don't see it "leave" the body. It's important. Post above says you can see the pictures on the belt....I didn't know that or I would have enjoyed it! Check it out on yours! Good luck to you - hope they get it resolved!
03-19-2014, 09:33 PM   #60
LQ916
 
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Thanks Sparkle.
I will check it out. I plan on going to work mainly to babysit
As my job will be restricted by the apparatus, but being present
Will take a load off my co-workers. I am building engineer in a hospital.
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