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Crohn's Disease Forum » Tests for IBD » Pill Cam / Capsule Endoscopy is stuck!


 
03-19-2014, 09:56 PM   #61
Sparkle2012
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Thanks Sparkle.
I will check it out. I plan on going to work mainly to babysit
As my job will be restricted by the apparatus, but being present
Will take a load off my co-workers. I am building engineer in a hospital.
Well that's not good - you won't remember to check it! haha But duty calls, eh?
Hope you do well. Mine was stuck for 6 weeks because my doctor wasn't astute enough to figure it out when I was having "attacks" afterwards. The xray is important. I'm a big supporter of the "after xray."
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Chronic Stomach pain, Gerd, Anemia. Rosacea, Migraines, Skin Issues
Longterm Prilosec/Antibiotics
Chronic C&D, blockages
Doc:"chubby=not Crohns"
GI #1: Pillcam, DX Crohns Humira ordered
GI#2: NOT Crohns; cancel Humira. pillcam stuck X6 wks! RX Entacort!
11/2012 ER SM bowel stricture resection/GB
GI#3: End Entacort. RX Pentasa! Flu symptoms. joint pain follow-neg RA
4/2013 Prometheus Positive/Crohns
Markers flat post surgery
Chronic Arthritis
No Crohns symptoms
On Pentasa
03-28-2014, 05:30 PM   #62
LQ916
 
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All good, moderate, active Crohn's in terminal ileum. Pill passed . Yay.
No monitor on my recorder :-(
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Crohns -Diagnosed 1998

Past Meds :
Pentasa, mercaptopurine, Flagyl, Prednisone, entocort,
Methatrexate injection & oral, Folic acid, Vitamin D3

Current Meds :
Cimzia, folic acid, Vitamin D3

No surgery or major complications thus far!
03-28-2014, 05:32 PM   #63
LQ916
 
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Increasing cimzia to 2 shots bi-weekly
05-08-2014, 05:53 PM   #64
Tig125
 
Join Date: May 2014
Location: South Carolina
Scrolling through the postings I didn't see anyone who has had my situation. I was first diagnosed in 1995 and had a small bowel resection at the terminal ileum then. Did meds off and on for a few years after that. I had been in basic remission for the last 11 years with no meds. Only occasional bad day and diarrhea controlled with Imodium. I started with more joint pain and abdominal pain the beginning of the year. Had a colonscopy on 2/4 which was negative. Had a pill cam done on 2/19 but was told the pill cam didn't get very far down the bowel and he said he couldn't see much. So on 4/13 I was NPO for 48 hours and had an EGD with pill cam placement in the small bowel. Cam showed active ulcers and some bleeding. I went today for a MRI Enterography and after getting the prep down, and IV started, they started the MRI scan and immediately stopped saying I had metal in my bowel. The Rad tech was asking if I had mesh placed during the first surgery which I did not. After I few minutes I thought to ask, "Could it be the pill cam? I never saw it pass in my stool?" Off to xray I go and sure enough, it appears BOTH pill cams are right above my previous surgery site. Guess I'll be in touch with my GI in the morning as they were closed by the time I left the hospital this afternoon. Guess I'll be seeing surgery in my future..
05-29-2014, 10:00 PM   #65
Juju99
 
Join Date: Oct 2013
Location: Australia
Had a routine capsule endoscopy in January 2013. Unfortunately the camera became stuck. Before it was decided how and when it would be removed I ended up having emergency surgery for a necrotic bowl. The surgery went well but within hours my organs shut down and I was on life support not expected to live. After eight months in hospitals and rehab wards (two months in ICU) I'm finally home but minus my hands and feet. I would greatly appreciate any input from from people who have had issues with stuck pill cameras.
06-26-2014, 12:13 AM   #66
Coma
 
Join Date: Jun 2014
After several days of building agonizing pain and other effects I went to the emergency room where I was told I needed immediate surgery to deal with my newly perforated intestine due to the camera capsule. I was kept in an induced coma for 3 months while my abdomen was kept open and I had 14 surgeries losing most of my intestine, my gall bladder and developing osteoporosis. It took 2 years to restore enough strength and endurance to get around. My kidneys were damaged and may be removed. I have intravenous infusions every 2 weeks. I eat too many pills each day.
Never swallow that camera. Be very careful. Good luck to all.
07-03-2014, 07:22 AM   #67
Juju99
 
Join Date: Oct 2013
Location: Australia
..
08-04-2014, 05:06 PM   #68
Sharon c
 
Join Date: Aug 2014
Location: Llanelli, United Kingdom
Hi, I had the pill camera a week ago now and I haven't see it pass. I've had 20 + bm a day since the test with watery stools so I would have thought I would have seen it. I've felt very poorly today with dreadful headache and I did have a high temperature earlier but that has returned to normal. I feel slightly nauseous but not been sick so that's probably the headache. Did anyone who had the pill camera retained inside have a headache, diarrheah, or fever?
I don't know whether to call nhs direct. I've left message with hospital but they've not called me back.
Thanks so much
Sharon

Suspected crohns with 20+ bm per day! mouth ulcers! painful eye! night sweats and respond to pred and etocort, positive fractal calprotectin test! negative colonoscopy .
08-05-2014, 03:07 AM   #69
Juju99
 
Join Date: Oct 2013
Location: Australia
Hi COMA - sound likes you have had a shocking time of it. Did the doctors tell you the perforated bowel was due to the stuck pill camera? I'm sure mine was. Can I ask where (what country) you are from? I live in Australia. Cases like ours are not uncommon and we need to make others aware of the dangers of swallowing pill cameras. I wish you all the best.
08-05-2014, 03:13 AM   #70
Juju99
 
Join Date: Oct 2013
Location: Australia
Hi Sharon C - if you believe the pill camera is still inside of you please contact your gastroenterologist or specialist or the hospital as soon as possible and inform them the camera may still be inside you. Particularly if you are experiencing fever. Diarrhoea can be a sign of a bowel blockage. Wishing you all the best and let us know how you fare.
08-05-2014, 03:17 AM   #71
Sharon c
 
Join Date: Aug 2014
Location: Llanelli, United Kingdom
Hi Juju
Thanks for your reply. I didn't realise that diahreah is a sign of bowel blockage. I assumed that bowel blockage would mean you can't go to the toilet. I don't have a fever any more, just watery diahreah which is unusual once I'm on the steroids as I am normally under control within a couple of days. I've tried to contact hospital but no luck. I will try again now, thanks again
Sharon
08-05-2014, 03:22 AM   #72
Juju99
 
Join Date: Oct 2013
Location: Australia
Better to be safe than sorry but great you are feeling better. Are you on steroids to help the pill camera move through your bowel?
08-05-2014, 03:37 AM   #73
Sharon c
 
Join Date: Aug 2014
Location: Llanelli, United Kingdom
No, I'm just on steroids to help with the crohns. Usually within a day or two of steroids my mouth ulcers go and the eye pain goes along with the numerous trips but that's not working. Can't get to see go until next Tuesday as he is on holiday.
08-05-2014, 03:38 AM   #74
Sharon c
 
Join Date: Aug 2014
Location: Llanelli, United Kingdom
Sorry, pressed reply too soon.
The phone rang.!
Thanks so much for your reply and I hope you too are well
08-28-2014, 10:07 PM   #75
SupportiveMom
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I was excited for my kid to get the pill cam. After this I am not feeling so great about it. Please tell me there have been lots of positive stories!
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Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
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08-28-2014, 10:10 PM   #76
Sparkle2012
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Just make sure you get the xray after...if you don't see it actually eject.
08-28-2014, 10:45 PM   #77
Juju99
 
Join Date: Oct 2013
Location: Australia
It's a safe procedure. Statistically it only gets stuck in about 1 in 300. They will take X-rays if you don't notice that it has moved through. If you are concerned ask that your child swollow a dissolvable test pill first. If it doesnt pop out the other end it will eventually dissolve but then the doctor will know not to proceed with the actual pill camera. It just didn't work for me. All the best.
08-29-2014, 12:52 PM   #78
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Do you sit in the office/hospital all day or do you go home with it while it is scanning?
10-18-2014, 10:35 PM   #79
jernivl
 
Join Date: Oct 2014
Location: Auburn, Alabama
I had the pill cam 22 days ago and at day 20 determined it was stuck. Since the cam did not exit during the recording the doctors do not know the exact location of the pill, but think it might be above my jpouch and I may have a possible stricture. It was determined that the pill was stuck in a pocket in my upper intestine during the recording and I have diverticulitis in my upper intestine (a rare condition, usually only found in the colon). Next week a team of doctors will determine if I should have a scope to locate the pill and the pocket or pockets of diverticulitis. (sorry, terminology may be incorrect) or if they will go ahead with surgery. My symptoms for the last 4 months have been pressure under my left rib, pain in the area, tenderness, and black stools, along with anemia of course. The test I had prior to the cam were upper and lower scopes, and MRI. I was in the ER 5 months before this last series of pain for a possible intussusception. After contrast for 2 CT scans, the situation cleared up on it's on and no results were found.
10-20-2014, 07:53 AM   #80
SupportiveMom
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We are on our way to get my daughters done now. Hope it passes easily!
11-18-2014, 12:01 PM   #81
akwatson7
 
Join Date: Nov 2014
Location: Farmville, VA
In January of this year, while looking to find out what was going on with my Crohns, after an endoscopy that only found gastritis, I swallowed the patency capsule (chalk pill) so I could make sure it went through and then move on the do PillCam. The next day I went in for my X-ray and the capsule was still in there, so I couldn't do PillCam. But they found obstruction after months of looking. 6 months later, when I had a resection, scar tissue removal and a hernia removed (which no one knew was there till they opened me up), the patency capsule, that is supposed to dissolve, was still in there.

2 weeks ago, and 5 months after surgery, I am still in lots of pain, I swallowed the pillcam. I have not passed it yet that I know of, I have not seen it/felt it and I have been looking. Has anyone passed it without knowing or seeing it? I have been gradually feeling worse, low-grade fevers, intense upper abdominal pain and lower back pain. My GI said he saw minimal inflammation in my small intestine with the pillcam, and though it could just be from my resection. I am getting paranoid that its stuck in there!! Has anyone had anything similar to this or even what symptoms you had or didn't have before finding out pillcam was stuck??

Thanks!
11-18-2014, 04:51 PM   #82
jernivl
 
Join Date: Oct 2014
Location: Auburn, Alabama
Hi akwatson7,

On Nov. 4th, I had a double balloon scope to remove the pill cam AND to hopefully determine my issues. Luckily, both were successfully! I had a major narrowing and diverticulitis around the narrowing of my small intestine, EXACTLY the spot that I kept feeling pressure and pain. Pain mostly after eating a 'normal' size meal and/or more than 1 or 2 meals a day for MONTHS! The pill got stuck ABOVE the narrowing and they almost didn't get it out! I was in the procedure for 2 hours. They have to use a child's size scope on me because I have a j-pouch (had ulcerative colitis for 12 years, j-pouch surgery 23 years ago). BTW, they (a team of doctors) thought I had scar tissue, but the GI doc who did the scope on me was thinking otherwise because I had been having black stools due to bleeding and was anemic for weeks! So, the double balloon scope is definitely an option to retrieve the pill. It was actually a blessing that it got stuck, I think. They can do an x-ray to determine if the pill is stuck. I have read of people who passed the pill without knowing. I kept looking but had a feeling it was stuck! Best of luck to you! Keep us posted on your outcome!
11-18-2014, 04:53 PM   #83
jernivl
 
Join Date: Oct 2014
Location: Auburn, Alabama
SupportiveMom...what's the status with your child? How did the pill cam go??? Anxious to hear! Just hate it when young ones are affected by intestinal deceases!!! Just not right!
03-23-2015, 05:10 PM   #84
Juju99
 
Join Date: Oct 2013
Location: Australia
Had a capsule endoscopy in December 2012 and it became stuck. I was advised to wait and see if it would eventually move but it didn't. Long story short, my bowel perforated and I'm now a quadruple amputee!!
06-24-2015, 11:09 AM   #85
barn12344
 
Join Date: Jun 2015
Hi everyone had capsule endoscopy yesterday how do you no if it has got stuck they couldn't work out were mine was yesterday as in bile all the time but suffering alot 2day with d sonic worried thanks.
07-09-2015, 06:22 AM   #86
Nayar
 
Join Date: Jul 2015
Location: Dinajpur, Bangladesh
Hi,

You can do the XRAY to make sure. My one was also stuck already two years. Doctor ask me to do surgery. Not sure what to do. Let me know if you remove your one.
08-14-2016, 04:54 AM   #87
Medact
 
Join Date: Aug 2016
I had capsule endoscopy in Feb. 2016. The camera capsule had been stuck in my small intestine for 6 month, and just had it surgically removed 4 days ago. About a month ago, they tried to remove it by colonoscopy, but it was unsuccessful.
It turned out to be the capsule had been stuck in a little pouch unintentionally created during the surgery (because they use staples instead of good old manual sewing) I had 10 years ago due to a bowel obstruction.
Fortunately, I did not have any discomfort or problems while the capsule was being stuck inside me.

I have read that any foreign object can cause irritation and even perforation of bowel if it stays in your intestine for a long period of time. If yours stays stuck longer than a couple of months, I think it might be a good idea to get it out. Before considering surgical removal, look into upper/lower endoscopy or double balloon enteroscopy. Double balloon enteroscopy can reach far into small intestine.

Through this ordeal, I have learned that I need to take time to research thoroughly before making any medical decisions, especially the ones with serious risks because I am the one who has to live with the consequences. If I had read this forum 6 months ago, I probably would not have swallowed the capsule, and if I had researched all possible options to study the problem in my intestine, I would have asked for double balloon enteroscopy instead. Also, I would have talked to my surgeon who performed surgery on me 10 years ago about his opinion about swallowing camera capsule.

I really hope yours comes out on its own soon!

Last edited by Medact; 08-14-2016 at 04:59 PM.
09-11-2016, 08:29 PM   #88
Emy1975
 
Join Date: Sep 2016
Hi everyone, I'm glad to find this forum and read about your experiences with the pill cam. Mines been stock for two months already, they told me it is in my colon or close to. I am very scared about this whole situation because I do not know what to expect. Doctors said they going to keep tracking the pill with more X-rays or a CT, they told me no surgery is need it. Thank God I can eat and use the bathroom with no problems but once in a while I get in a lot of pain. Hopefully they don't have to do surgery on me and the pill come out without causing any damage. Anyone with any suggestion or support is well appreciated. Thanks!!!!
09-11-2016, 08:35 PM   #89
ronroush7
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Hi everyone, I'm glad to find this forum and read about your experiences with the pill cam. Mines been stock for two months already, they told me it is in my colon or close to. I am very scared about this whole situation because I do not know what to expect. Doctors said they going to keep tracking the pill with more X-rays or a CT, they told me no surgery is need it. Thank God I can eat and use the bathroom with no problems but once in a while I get in a lot of pain. Hopefully they don't have to do surgery on me and the pill come out without causing any damage. Anyone with any suggestion or support is well appreciated. Thanks!!!!
Hope the best for you.
09-12-2016, 07:21 AM   #90
Emy1975
 
Join Date: Sep 2016
Thank you so much... 🙏
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