Share Facebook


05-12-2012, 06:45 PM   #1
Switalski
Senior Member
 
Switalski's Avatar
 
Join Date: Oct 2011
Location: Tallahassee, Florida

My Support Groups:
Unbelievable news story

Check out this news story. I can't believe this happened. It shows you the value of being able to obtain accurate information about Crohn's.

http://usnews.msnbc.msn.com/_news/20...sons-butt?lite
__________________
Diagnosed with Crohn's September, 2010
Right hemicolectomy April 4, 2012
Gall bladder removed February 16, 2015
Current meds: Humira
Adverse reaction to Remicade, but it worked
05-12-2012, 06:49 PM   #2
rygon
Moderator
 
rygon's Avatar
 
Join Date: Jan 2010
Location: Grimsby, United Kingdom

My Support Groups:
What the.. who in the right mind would do such a thing? As if having a fistula wasn't bad enough
__________________
Current Meds:
2x 1200mg Mezavant, 3x50mg Azathioprine, Infliximab (6 weekly)
05-12-2012, 07:28 PM   #3
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Good lord! I'm speechless! How could a parent possibly do that to their child, it is so sad and tragic for that poor boy.

Dusty. xxx
__________________
Mum of 2 kids with Crohn's.
05-13-2012, 03:32 AM   #4
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
This is horrible! I fail to understand the logic! When I didn't know what my fistula's were I practically ran to the doctors, I never thought: 'Why don't I just sew it up myself!?!'
__________________
~Holly~
Diagnosed with CD March 08 at 17
Currently on:
Infliximab

Past:
Pentasa
Prednisolone
Azathioprine

My blog: http://hollysbloggyness.blogspot.com/
05-13-2012, 01:31 PM   #5
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
What are the odds he didnt have health insurance and couldnt afford a Dr?
__________________
Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
05-13-2012, 04:01 PM   #6
DougUte
Senior Member
 
DougUte's Avatar
 
Join Date: Jul 2010
Location: Kaysville, Utah

My Support Groups:
What are the odds he didnt have health insurance and couldnt afford a Dr?
Even here that is no excuse. There is always the local free clinic. To me that is child abuse.
__________________
Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
05-13-2012, 04:09 PM   #7
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I havent lived in the USA for a long time. Where I lived, there was no free clinic. I dont disagree that it's child abuse. I just wonder what was behind the decision. I was pre diagnosis when I lived in the US. But I was self employed, if I got sick (which I did) I just couldnt go to the Dr. In fact, this is why I was undiagnosed for so long. And untreated. And why I have the stoma now more than likely.
05-13-2012, 04:38 PM   #8
ThanksP
Senior Member
 
Join Date: Mar 2010
Location: Costa Rica
Even with no insurance, a hospital cannot turn you away. There is NO excuse for this.
__________________
** Remicade since Sept. 2011
05-13-2012, 04:46 PM   #9
changeiscertain
 
Join Date: Mar 2011
Location: US
I don't think this guy made the right decision but I do feel comfortable giving him the benefit of the doubt and guessing that he was trying to help his son because they didn't have access to healthcare. Free clinics are a myth. There's no such thing as walking into a free clinic and getting anything other than patchwork healthcare, which is essentially no better than *no* healthcare when you're dealing with a chronic illness, such as Crohn's. Maybe, if you are homeless and jobless and you have a sinus infection, you might be able to get some antibiotics and dodge the bill after. But if you have a chronic illness that needs constant care and supervision and treatments etc. and you don't have insurance, I can tell you from first hand experience that you can and will be left to die and sometimes, in a moment of frustration and desperation, a home remedy that would otherwise seem insane, all of a sudden seems like the right thing to do. It's a sad state of affairs to live in the U.S. with a chronic illness and no insurance. But you would barely know it because of the insistence that there is some sort of safety net. Maybe, technically, there is, but the holes in it are big enough to get people killed.
05-13-2012, 04:56 PM   #10
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
I must admit I was thinking along the lines of Misty...did he do it because he felt he had no choice. I didn't say anything because I did not want to appear to be criticising the US health system when I am not American and living it. I would like to think that there is compassion and treatment available for those that can't afford it.

Dusty. xxx
05-13-2012, 05:16 PM   #11
ThanksP
Senior Member
 
Join Date: Mar 2010
Location: Costa Rica
The child was hospitalized for a month after his dad did this to him. By the way some people talk, you'd think the hospital would have left him out on the street.
05-13-2012, 05:27 PM   #12
changeiscertain
 
Join Date: Mar 2011
Location: US
Once you're on death's door, they can't turn you away. Finding that fine line is the issue. A fistula won't get you any attention, but it being already sewn up at home and infected will.
05-13-2012, 06:25 PM   #13
DougUte
Senior Member
 
DougUte's Avatar
 
Join Date: Jul 2010
Location: Kaysville, Utah

My Support Groups:
Changeiscertain, I know of two free clinics in my area. They exist. Hospitals cannot turn away people who need care, even without the ability to pay. There are doctors, including specialists, who provide services to those who are in need.when my brother was in need of treatmental of his thyroid condition, had no insurance and no money to pay, still got the services he needed at the time. The system is far from perfect, but there is no reason for anybody to resort to seeing up a fistula by themselves and causing this to happen.
05-13-2012, 08:00 PM   #14
changeiscertain
 
Join Date: Mar 2011
Location: US
Doug, I don't agree that hospitals cannot/do not turn away people who need care and I base that on my own personal experience of being turned away when I needed care. However, as I previously stated, I also do agree that this guy didn't make the right decision. It's very sad. I can agree to disagree regarding insurance and access to healthcare in the U.S. and I will refrain from further comment regarding it in this thread because it's probably not the place for it. I was just putting my thoughts out there and trying to give the benefit of the doubt for why he would've done something so clearly not advisable to his son. I would just like to assume that he was trying to help him, however misguided he is. It helps me through life to assume the best of other people. But again, it's just very sad.

I am extremely happy to know that your brother was able to get the care he needed when he needed it.
05-13-2012, 09:58 PM   #15
DougUte
Senior Member
 
DougUte's Avatar
 
Join Date: Jul 2010
Location: Kaysville, Utah

My Support Groups:
Incredibly sad.
05-19-2012, 12:24 PM   #16
GutlessWonder86
Forum Monitor
 
Join Date: Jul 2010
That is what Uncompensated Care is for. Those who have no insurance. There is help available in all states. So this father had NO excuse if he didn't have medical coverage. He could have gone to the business office at the local hospital and asked to fill out the forms. Then based upon his income he would've been responsible for a portion or none of the bills. It's good for an entire year.

Most people who have no insurance either don't know about Uncompensated Care or do know about but want someone to hand them the forms and fill it out for them. I use to do medical billing so I have seen this first hand the laziness of some, not all people.

For those that have no insurance, they need to ASK and get the forms and fill it out. Otherwise, they will wind up with huge debt and sometimes in collections and then it's too late. It's not that hard really if they just ask. And if they don't understand any questions on the paperwork, there are patient reps available to answer any questions they may have.
05-19-2012, 05:30 PM   #17
changeiscertain
 
Join Date: Mar 2011
Location: US
GutlessWonder, This is good info to have. Thank you for sharing. Do I have to wait until an emergency situation or can I fill out the paper work preemptively? Is it called specifically "Uncompensated Care" forms in all states, at all hospitals or does the language vary and/or only available at certain hospitals? I've asked for financial aid/charity forms at some doctors and have been told that they don't offer anything for people without insurance. Am I asking incorrectly? Or is this only for hospitals and not follow up/continuing care with doctors/labs/pharmacies etc? Good to know there's help out there.
05-19-2012, 06:27 PM   #18
Miss Underestimated
Senior Member
 
Miss Underestimated's Avatar
 
Join Date: Mar 2011
Location: Norfolk, Virginia
there are a lot of resources listed here, including free clinics: www.needymeds.org
__________________
*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.
Reply

Thread Tools


All times are GMT -5. The time now is 04:16 AM.
Copyright 2006-2017 Crohnsforum.com