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Crohn's Disease Forum » General IBD Discussion » I just don't get it.. WHY so sore??


05-14-2012, 12:05 AM   #1
Leebie3
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I just don't get it.. WHY so sore??

Despite CT enteroclysis saying there is inflammation in the ileum and enlarged reactive lymph nodes in the iliac chain, and lots of pain, crp and esr up (albeit only a little) and anaemia the scopes today were clear. completely normal. even the hiatal hernia I had 4 years ago is gone. So where is the pain coming from?? :-( so confused and upset.
05-14-2012, 12:24 AM   #2
Catherine
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So sorry you didnot get the answers you were looking for.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
05-14-2012, 12:58 AM   #3
Rebecca85
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Did they take lots of biopsies? To rule out any microscopic inflammation?
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Crohn's in the terminal ileum, dxed Jun '10

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05-14-2012, 12:59 AM   #4
Leebie3
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yeah, they've taken quite a few.. even some in the oesophagus, stomach and duodenum as well as bowel
05-14-2012, 01:01 AM   #5
Rebecca85
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Fingers crossed that the biopsies show something then!
05-14-2012, 01:04 AM   #6
Leebie3
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what do you reckon the chances are if everything 'looked' normal?
05-14-2012, 05:41 AM   #7
Txarmywife
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my Last scope (2008) didn't show any noticeable inflammation but every biopsy they took showed otherwise. So although the scope may have looked normal there's is a chance pathology will show different. Not sure what to wish for though huh? I kno it can be troubling ESP when in pain
05-14-2012, 09:32 AM   #8
Kip1
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Hi leebie

Sorry you are now none the wiser. Do you have endometriosis? Just asking as you could have this very painful condition on the outside of your bowel when all the scopes etc are looking inside.

Your only option may be surgery to find out. Sad but you may at least get answers.
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06-13-2012, 03:15 PM   #9
ThatsWhatSheSaid
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Leebie, did you ever figure anything out with all of this? How are you proceeding with your medical care?
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06-13-2012, 07:02 PM   #10
Leebie3
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hi, no, no wiser. Had pillcam last week but results won't be back for another week at least..
05-11-2017, 10:27 AM   #11
kenvh
 
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hi, no, no wiser. Had pillcam last week but results won't be back for another week at least..
What were the results? Did they see small intestine inflammation?
I got a simular case as u
05-31-2017, 03:49 PM   #12
Papantoine
 
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Hi Leebie
Did they tell you how they would share the results with you? CD with all the pictures or chosen images or just a written report?
I, too, am doing the pillcam, but in 2 weeks
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