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06-07-2012, 10:56 PM   #1
kimmidwife
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LDN and Joint pain

Hi All,
My daughter has been doing really well with her stomach pain and stomach issues on the LDN. MY one question is she still gets joint pain on and off. Is that normal? Should the LDN be helping the joint pain more?
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
06-08-2012, 05:59 PM   #2
Kev
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Good question... wish I had an answer. I've never noticed any improvement in my joint pain while taking LDN. However, I have no inkling if the joint pain I suffer from is related (directly/indirectly) to Crohns. I have some pretty nasty osteo arthritis, but that is due to various factors... my height, bone structure, injuries, age. I'm not up on what 'related' ailments cause joint pain in people with Crohns, but it may very well be that some/any of them might be autonomous. You get Crohns, that causes a related ailment, the Crohns goes into remission, but the related ailment stays with you. Total hypothesis on my part....
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Dx'd July, 2006
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06-08-2012, 07:26 PM   #3
kimmidwife
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Thanks Kev,
I know my GI told us that joint pain is an EIM of crohns (EIM = Extraintestinal Manifestation). Caitlyn has suffered with her joint pain pretty much from the time her crohns started. It is frustrating because now that her stomach is better she wants to exercise but has trouble with exercising due to her joint pain.
06-08-2012, 08:33 PM   #4
LittleChloe
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Chloe had joint pain as a young child long before she was diagnosed. Of course we had no idea what was developing. Anyway, I don't know if it would help but Chloe takes a supplement called zyflamend. It's good for inflammation and joint pain. Ldn works great for Chloe too but this disease doesn't let us forget it's there. I'm glad Caitlin is doing well otherwise. : )
06-12-2012, 01:10 PM   #5
mnsun
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I still get sacroileac or sacral ALA pain about once a month despite taking LDN, a cornucopia of supplements and exercising 3+ times a week. Super aggravating.

However, since I started weightlifting/jogging--as long as I don't overdo it and get worn out--my infrequent joint pain is much less severe than before. It is less persistent too, lasting a day or two at the most. A big problem for me is forcing myself to get enough sleep to recover from exercise etc. My joint pain tends to happen later in the work week, after 3-4 nights of less than 7 hours of sleep taking its toll.
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06-12-2012, 05:25 PM   #6
Kev
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Well, regardless of how counter-intuitive (hmmm, not sure that is the correct phrase for this situation) it may sound, I've been told that regardless of whether my arthritis was osteo or rheumatoid, the best non medicinal treatment is a regimen of exercise. The issue becomes over-coming the initial 'hurdle' of working through the pain, but apparently when one does, further exercise will result in less pain, and more benefits, in an upward curve. I have had arthritis (osteo) long before becoming ill with Crohns, and before I became ill I had started a 'walking' regimen. When I 1st started, 2 miles was an enormouse challenge. By the time I got ill, I was doing 10k (6 miles) every nite, and 2X on weekends. I felt fantastic. Wouldn't you know it, that's when I went and got sick!!!
06-12-2012, 07:22 PM   #7
kimmidwife
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Kev,
THat is my problem with Caitlyn the minute she feels any pain she gives up. I am trying to encourage her. I hope being in camp over the summer will help.
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