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Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Carroll Family/Crohns Disease


06-08-2012, 12:08 PM   #1
Sparkle2012
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Carroll Family/Crohns Disease

I am curious. I have read that the incidence of Crohns passed down thru your genes 55%. I know of no one with this in my family although there have been areas of concern in the bowel on both sides. I thought I would attempt to see if there are any Carrolls in this forum who also have the gene. My Carroll line hails from Ireland (as I'm told all Carrolls actually originate from this area), specifically southwest Ireland. Any other Carrolls out there with Crohns?
06-09-2012, 05:54 PM   #2
Jennifer
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Sorry, my last name isn't Carroll.

I know that Crohn's is in my family though. Not only does one of my sisters have it but there are distant relatives on both sides of the family in other states who I don't know or talk to who also have it. Although genes are not the only way to become affected with Crohn's disease. All possible causes have not yet been found or fully proven.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
06-10-2012, 08:03 AM   #3
Sparkle2012
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Yes, I believe the incidence rate with twins is 55%. This is a baffling disease. I would frankly just like to know when I got the actual Crohns after having issues since I was 21. Diagnosed with IBS always - and they said "IBS will never get worse" that's the good thing about IBS.

so.....

I have been following my family heretage these last 2 years and speaking to a lot of cousins I have never known. One of them who is fairly old...mentioned to me that his mother died of "total breakdown of the bowel" and later in the same conversation mentioned she died of "cancer of the bowel." After my diagnoses I was looking at that line of the family as the reason for my crohns, we spoke again, and he said "no, you must be thinking of someone else. My mother died peacefully in her sleep." ?? That was my only genetic lead although several people in my family have IBS......(or do they?)

Can't help but wonder if it is not genetic in my case, was there something I could have done to prevent it if I had not assumed all my symptoms were IBS. Oh well, water under the bridge and I'm sure many of you have struggled with similar questions. I go to Mayo Clinic soon and trust they will provide some good treatment for me.
06-10-2012, 08:09 AM   #4
Sparkle2012
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Do you follow any special diet, Crabby? I see you are in remission for 13 years. That's wonderful!!
06-10-2012, 08:12 AM   #5
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My family comes from southern Ireland.

My great grandma had bowel problems although what they were we are not sure. My gran has some form of colitis & my mum & I have Crohns.
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06-10-2012, 09:58 AM   #6
Sparkle2012
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would be interesting to know if there is anything regional about it. I have read that there is a high rate in the Jewish population. Part of my family is from the Germany Poland area so there could be that element. Just curious. They are doing some interesting things with DNA these days. One day we will not only understand the genetics of it all but there will be a genetic cure for disease. I don't think that is too far down the road either.
06-10-2012, 09:59 AM   #7
Sparkle2012
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Added thought: they have identified the Crohns gene. I'm curious enough to submit my DNA for testing but it's $500 ....so.....I will continue to speculate about it all. ha
06-10-2012, 01:00 PM   #8
Jennifer
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Do you follow any special diet, Crabby? I see you are in remission for 13 years. That's wonderful!!
Thank you! No I don't follow any particular diet. I eat whatever I want. My bowel resection forced my remission. I've just been taking maintenance medication over the years after the resection like 6MP, Asacol and on occasion Entocort to help with joint pain as I have arthritis now (more than likely caused by the Crohn's). I'm currently only on 6MP and Entocort.
06-10-2012, 01:33 PM   #9
Sparkle2012
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do you think it is caused by Crohns or the Crohns medicines? I'm so distrusting of medication. I had migraines for years - took Excedrin - got bleeding ulcers - placed on Prilosec for ulcers and reflux - took it for 7 years - constant diarrhea 7 years - then my nutrition levels plummeted iron, calcium, B12 - everything. And...I'm now osteoporotic. I did some research and discovered Prilosec can cause absorption issues especially iron and calcium --- it was intended as a short-term medicine -- so I weaned myself off it (that was a little walk through hell) and I just medicated the occasional reflux with Tums. Started taking Fioricet for the migraines (extremely constipating) .....for years.....ended up with a hemorrhoidectomy (sp?) from all the constipation. Another little walk thru hell - hey that surgery was all you could ever dream it would be. hahah Fighting constipation for years with extra fluids and stool softeners but sometimes had "blocks." Doctors looked at my chubbiness and said "can't be Crohns, she's not skinny - off you go!" and home I went to wait for the next episode. I had my first block/ER visit in 1987 ....a few more in the 90's and a few more in the 2000's. Finally the cramps were becoming too regular to ignore and now can't be managed by fluid intake. So off to the doctor once again - camera pill - Crohns. That was about a month ago. Somewhere in this process, I was given hormones for menopause and noticed that the veins in my hands were as though someone pushed a straw into them. Hard and you could move them around. The doctor sent me to the DERMATOLogist who scratched his head and said, oh sometimes older people get clots here and there not big deal. I finally connected with the Nurse on the OB unit and she said 'GET OFF THOSE HORMONES NOW!"

Anyway, you get the drift. I'm distrusting of meds--- as my experience is one med fixes one problem and creates another.

Have you been told that Crohns can cause arthritis? My mom has RA so...
06-10-2012, 01:40 PM   #10
Sparkle2012
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Did I mention that gallstones can arise from Tums? I do have those....not sure if it was from the Tums or the Crohns. Probably the latter.
06-10-2012, 02:05 PM   #11
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my family are from southern ireland too, but not with that surname. And i'm the only one in my family that has crohns..
06-10-2012, 03:08 PM   #12
Sparkle2012
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Doesn't that make you wonder....why me? hahha I need to accept that there is no connection in my family and move on! Thanks, Blue. Hope you are doing OK.
06-10-2012, 03:50 PM   #13
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hope you are doing OK too.
06-10-2012, 08:16 PM   #14
Jennifer
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Have you been told that Crohns can cause arthritis? My mom has RA so...
I'm sure its from both Crohn's and hereditary. Yes arthritis is linked to Crohn's and if you have Crohn's and arthritis its best to see a RA specialist because they have a lot of knowledge concerning auto immune disorders. My mom and my grandpa also have RA so I'll be lucky if I don't get that as well.
06-11-2012, 08:44 AM   #15
Sparkle2012
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oh joy...something ELSE to look forward to. :-)
06-11-2012, 02:19 PM   #16
Jennifer
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Yep. Sorry its not the only thing either. Check out the Extra Intestinal Manifestations section and its subforums: http://www.crohnsforum.com/forumdisplay.php?f=81
08-15-2012, 02:15 AM   #17
Matilda
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I'm a Carroll and I have Crohns, only newly diagnosed. I'm from Galway in the Republic of Ireland. Hmm maybe we're related?
08-15-2012, 07:07 AM   #18
Sparkle2012
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I'm a Carroll and I have Crohns, only newly diagnosed. I'm from Galway in the Republic of Ireland. Hmm maybe we're related?
yes, perhaps we are... and that would be great! (not the Crohns part). There is some question as to what my diagnosis actually is. I have ulcers in my bowel and strictures but tests are negative for Crohns per my NEW GI. Do I trust that information? No. But for now, I'm not going to have to take Humira. )))))

As for the lineage....
My GGrandfather migrated to the US during the famine. His name was Michael Carroll. Married Elizabeth Brock here in the states. He may have had a brother or cousin named James Carroll who married Catherine ? in Ireland - the two men resided in the Braxton, WV area. James lists his parents as John and Fanora (who we think is actually Honora as that is a more likely name and could have been a misspelling in the states) so this could be Michael's parents also if they were actually brothers. I would absolutely love to connect with a relation from Ireland but I can't find any other family info. We are part of the DNA group for Carroll on family tree and are connecting with several Irish surnames such as Gillespie etc. I have some very elderly Carrolls in my family who would be excited to know that I connected with any Irish family. Our family has longevity - with 2 cousins who are 99 and 93. My mother and her siblings are in their mid-80's. Is that a characteristic of your line? Would love to see a photo of you or members of your family to see if there is any resemblance to our family. If you would be willing to share any family photos, my email is [email protected]. I will send some of ours as well. We plan to visit southern Ireland and Scotland next fall. For sure we will visit Galway, Offaly, Tipperary, etc. I'm more interested in seeing the ancestral areas if I can ever pinpoint Michael's former parish and the countryside over touristy things. I am afraid that is unlikely due to the sparse records situation there. So I just want to lose myself in the beautiful country. We are planning to self drive. Would love to correspond with you about those areas or any information you can share regarding those areas as well as possible connection to our mutual lineage.

Last edited by Sparkle2012; 08-15-2012 at 07:09 AM. Reason: Mis-spelling
08-15-2012, 07:15 AM   #19
Sparkle2012
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Matilda, also my research on the lineage points to Galway as the origin.
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