Update from test

Ok it's been a while now and a lot of test these are what they found after seeing the gi specliast again he told me the small bowel serries came back fine and yet he still didn't know why I allways get Aphthous ulcers and the blood in the stool the constant runs so he done some scopes a gastroscopy and colonoscopy he told me that he found a Aphthous ulcer in the small bowel and that I have group 1 gerd he has taken biopsies off the ulcer and stuff I asked my local gp if there is one dose that mean there could be more gp couldn't answer that I asked why small bowel serries didn't pick it up couldn't answer has anyone got any ideas on what this could be

Hi soconfused,

Thanks for the update.

I am sorry that I do not have a good idea of what you could have. Hopefully the biopsy will provide more details and give your specialist a better idea of what is going on.

Good luck and keep us updated!

Hi soconfused,
Sorry you are having a difficult time at the moment.
The diagnosis may become a lot clearer once the biopsy results are available.
Is there any news on them yet? It usually takes about 7-10 days for the labwork to be completed.
Keep in touch and let us know how you get on.
Feel better soon
Hugs and best wishes
Trysha

Hey soconfused,

I don't think you could rule out there being more than one ulcer and as Trysha has said, perhaps you will have more answers when the biopsy are available.

As to the small bowel series, I'm not overly familiar with that particular test but since articles I have read suggest that enterograms are superior to them, and my son has had one of those, I think you will find that they are very good at picking up inflammation, scar tissue, abnormalities like tumours and so on but as far as I am aware they do not pick up things like individual ulcers. So if your disease is in the early stages and inflammation is not extensive I guess it could be missed by these particular tests.

If the biopsy results are inconclusive and your symptoms persist perhaps they should look to doing a pill cam.

Good luck with the biopsy results. I hope you they provide you with solid answers.

Dusty. xxx

Hi like dusty said the small bowel series is great for assessing degrees of strictures, obstructions, tumours and structural problems with the small bowel etc but not detailed enough to pick up on ulcers or causes for damage to the bowel eg crohns it's usually the colonoscopy that investigates ulcers and severity of them. good luck

I agree with that everyone said here,
A colonoscopy is performed by a Gastroenterologist. (GI DR)

If there is anything in the colon or the intestines, they will find it during the colonoscopy.

I am surprised they didn't do the colonoscopy first with your symptoms.

Let us know how things go!

Ok here goes the gi doctor hasn't realy said much about the results his first words to me was we might have to get a third opinion ( thought to my self great here we go again ) so we sat down and goes this is we're we found it this is we're I think it is BUT we can't get to it my reply was well do u still want to. Biopsy the mouth ulcers the ones we can't get rid off at all his reply was I want them done so I can have as much information as possible he got me to do a 24hr urine test 5hiaa & vma &urine redueing substance and drug test apparently this will give him the results he needs ( well maybe I should start useing drugs and drinking I'm allways Getin asked ) ok done the urine test when I spoke to the local gp he just goes those test have nothing to do with Ibd so next thing ulcer in mouth got tested for the result no specific cause for ulcers (if they suggest it tell them to go jump) the gi dr started me on Questran light (colestyramine)
To help with the runs but dosen want to start on other drugs yet cause of the complications well it works some days but other days it don't it hasnt stoped the blood I have taken pictures just to say to the idiots here is this ibs or in my head well that's about all I can give u for now expect the pains are still the still loseng weight still with the ulcers and after i eat I'm in so much pain I just want to die some days so now I have worked out don't eat not more pains I'm still have good days and bad I have to. Go back and see the gi doctor in a weeks time if anyone has any ideas or think we should go. And get a 3rd opinion please help I honestly can't take this anymore Im at the stage were i wish the gut would just die and I'll wear a bag for the rest off my life