Just had to vent to get this off my chest...
It seems to me that everytime good things happen to everyone around me, I get something shitty happen to me. For example, 2 of my best friends get engaged and I get a fistula. The horrible girl at work that stole my promotion gets a massive payrise for the work I do, I instead grow myself 2 painful absesses due to the stress it caused me. I tell work I need time off for surgery, they don't believe I'm sick and give me the 3rd degree about all the sick day's I've taken over the last year even though I had a sick certificate for every damn day off. I request a transfer to another less stressful department due to health reasons, they move me to another store over twice the distance away for the same position in a much busier store. Not only am I now using more petrol I can barely afford because of my excessive medication costs, i am now forced to sit in a car on my super sore arse for 45mins twice a day 5 days a week to go to a job that's making me sick. They wouldn't even take my pleas of having an easily accessible toilet seriously. It is a massive flight of stairs on the other side of the store. A good 2 min walk which is fine if you're not on the border of shitting your pants and don't have super sore joints. I have given them letters from my specialist, tried to explain it to them in a simple way (have you ever had food poisoning...) and even been caught throwing up in a bucket on the store floor. Still I am branded a liar. Is there ANY way to get it through people's heads that we ARE sick even if we don't look it? Is not seeing me take 12 pills a day enough? Just so frustrating...
On another note, I am currently waiting on surgery on the public waiting list since I didn't have a spare $2500 sitting around. I am growing multiple abcesses and can barely wipe my ass without tears. My friends are getting shitty at me for always cancelling at the last minute thinking I just cbf'd. The emergency wards here are so over crowded the wait time is ridiculous so I can't even "fast track" the whole thing due to lack of staff understanding my condition. I just want to curl up and die. It's not ever going to get better, it will go into temporary remission then get worse again. I can't plan to do anything, I can't change jobs because no employer knowingly wants to employ someone with a terminal illness (I only got my last job because I lied about my health) I can't even get income protection for when I get ill because everyone has a "will not cover existing illnesses" clause. If they can trace anything back to my crohn's they will. Centerlink will give me a whopping $90 a week (because even though I make minimum wage, I apparently make too much) but to do that, I need to be unemployed for 12 months first then I'll get it. Meanwhile I would lose my house, car, all my possessions because I couldn't afford them anymore then I would get assistance. Seriously, f*$@ this disease.
End rant, thanks for listening. Feeling slightly better already.
It seems to me that everytime good things happen to everyone around me, I get something shitty happen to me. For example, 2 of my best friends get engaged and I get a fistula. The horrible girl at work that stole my promotion gets a massive payrise for the work I do, I instead grow myself 2 painful absesses due to the stress it caused me. I tell work I need time off for surgery, they don't believe I'm sick and give me the 3rd degree about all the sick day's I've taken over the last year even though I had a sick certificate for every damn day off. I request a transfer to another less stressful department due to health reasons, they move me to another store over twice the distance away for the same position in a much busier store. Not only am I now using more petrol I can barely afford because of my excessive medication costs, i am now forced to sit in a car on my super sore arse for 45mins twice a day 5 days a week to go to a job that's making me sick. They wouldn't even take my pleas of having an easily accessible toilet seriously. It is a massive flight of stairs on the other side of the store. A good 2 min walk which is fine if you're not on the border of shitting your pants and don't have super sore joints. I have given them letters from my specialist, tried to explain it to them in a simple way (have you ever had food poisoning...) and even been caught throwing up in a bucket on the store floor. Still I am branded a liar. Is there ANY way to get it through people's heads that we ARE sick even if we don't look it? Is not seeing me take 12 pills a day enough? Just so frustrating...
On another note, I am currently waiting on surgery on the public waiting list since I didn't have a spare $2500 sitting around. I am growing multiple abcesses and can barely wipe my ass without tears. My friends are getting shitty at me for always cancelling at the last minute thinking I just cbf'd. The emergency wards here are so over crowded the wait time is ridiculous so I can't even "fast track" the whole thing due to lack of staff understanding my condition. I just want to curl up and die. It's not ever going to get better, it will go into temporary remission then get worse again. I can't plan to do anything, I can't change jobs because no employer knowingly wants to employ someone with a terminal illness (I only got my last job because I lied about my health) I can't even get income protection for when I get ill because everyone has a "will not cover existing illnesses" clause. If they can trace anything back to my crohn's they will. Centerlink will give me a whopping $90 a week (because even though I make minimum wage, I apparently make too much) but to do that, I need to be unemployed for 12 months first then I'll get it. Meanwhile I would lose my house, car, all my possessions because I couldn't afford them anymore then I would get assistance. Seriously, f*$@ this disease.
End rant, thanks for listening. Feeling slightly better already.