• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

I need you opinion - NOW! Please help!

Hello,

I NEED HELP IN THE FORM OF YOUR EXPERIENCE!

I know this is unusual. I do not have Crohn's.
My partner does. He's 39 & has had it since he was 14.
I've been with him 7 amazing years. He is the only man i've ever been in love with, my best friend, my confidant.

He has had 9 surgeries for the disease. Well - 5, and another 4 to clear up complications. These were all before i knew him.

He was fitted w/ an illeostomy in 2001 and has had no problems since... and no meds!!

Yesterday he ate something that made him uncomfortable. He soon realized there was a blockage.

They 1st did an X ray....then another X ray....then did a CT scan & it told the doctor there was a food blockage behind the stoma but no 'Crohn's' (GOOD news). Then the nurse said they were keeping him for 1 more day & doing ANOTHER Xray tomorrow & then maybe surgery (BAD news). I have no idea why another Xray would help after a CT scan, or why surgery would be needed when it's a food blockage.

Do they open you up when you're constipated? No.

Usually, from what we both know - the done thing is that they irrigate the area, clear it, & send you on your way.

The man has had NINE surgeries & we'd rather not have another. All this was especially annoying as the doctor wasn't actually there today...this was all being copied to us by a nurse who was not comfortable answering questions asked by someone who was knowledgeable about his own condition.
Eventually they gave in & gave my partner an enema to use on his stoma to irrigate the area. Things started moving, then stopped. He started to sweat & then vomited a bout 30ccs after not eating for more than 24hours.

Basically - I'm scared. here's a list explaining why!

- That hospital is a dump.
- This doctor seems very keen to operate.
- The place has ants. Lots of ants. SERIOUS.
- I've overheard at least 2 nurses say they were pulled off of breaks for emergency situations....this is after they've been working 9 hours.
- After hearing that the Dr wanted to operate, I asked what would happen if we asked for another doctor .....or discharged him & went to another hospital?
Answer: There's some 'doctor code' about refusing to treat a patient another doctor has already seen.... and chances are the 2nd hospital would send you back to the 1st & bill you for the ambulance ride.
- He admitted himself yesterday at 5.30pm. Today at 5.30pm he finally got a bed to lie in within the emerg ward (meaning he gets a curtain!) . He's lucky - there are people in beds all over the hallways, including the waiting room.

This is our wonderful Canadian socialist health care system right now!
 
I am a doctor by training (not GI and not surgery) in the U.S, and the mother of a teen who was recently diagnosed with Crohns.

I have never heard about a "'doctor code' about refusing to treat a patient another doctor has already seen.... and chances are the 2nd hospital would send you back to the 1st & bill you for the ambulance ride." It's hard to believe this is a real policy in Canada.

I do not know about treatment for blockages (medical vs surgical) but I do know that patients and family should speak up and do whatever they can to prevent doctors and hospitals from doing inappropriate or clearly incorrect tests or treatment. When someone has a chronic disease, s/he oftens know more about his/her body and disease than some doctors. In U.S. hospitals, there is often a patient representative or an ombudsman who can help a patient when there is a conflict or problem. Do Canadian hospitals have such a person?

Sending best wishes!
 

David

Co-Founder
Location
Naples, Florida
Greetings and welcome!

I'm so sorry to hear of what you and your partner are going through :( My heart goes out to you.

I agree with the above but otherwise have no answers. I did however copy your thread to our stoma subforum and named it "stoma blockage" there so maybe someone who has been through the same might be able to comment.

*hugs*
 
Top