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View Poll Results: Do you have uc or cd
CD 105 88.24%
UC 11 9.24%
Other from of IBD 1 0.84%
My partner has UC 0 0%
My partner has CD 2 1.68%
Voters: 119. You may not vote on this poll

 
04-17-2008, 09:11 PM   #31
w4sted
 
Kev said:
Hi w4sted. welcome to the forum. Having this happen to one's children can be a very hard issue for parents to deal with. You'll find other parents on here, even some folks who contracted/diagnosed at similar ages.. we even have a regular on here who is only 14 (but an amazing 14 year old). The 'good' news (if I can use that phrase) is that this is typically a 'life' altering disease, not a life ending one. I hope you can draw some comfort from that, and hope N stength from the other members on here, their stories. Be sure to let us know how you make out.. There's an introductory segment on here called My Story.. Drop in there and tell us a little more about yourself.. your child.. Once again, welcome!

and, to reiterate my earlier point about... well, my issue with pigeonholing our colective 'disease'... anyone who hasn't should take a look at our newest IBD member. Originally pigeonholed with Colitis, dr's later discovered (big shock) it was wrong dx.. It was crohns.. and the J-pouch surgery wasn't the big 'cure'.

I personally think 'WE' have to watch out for pigeonholing.. so we don't fall into the 'trap' of telling someone who has been mis-labeled (mis-diagnosed) as it being CC, UC or whatever.. that they can be 'cured' if they just do this/that.

I HAD that happen when I was originally mis-diagnosed with Diverticular Assoc. colitis. told that my resection would be the end of this nitemare. It wasn't. And I wouldn't want anyone else, even my worst enemy, to suffer the incredible dissappointment that I went thru when my disease CAME back, worse N ever!!

end of sermon.. (I promise)
hi kev

thanks for the welcome and the information!

wow, its been a very busy month and a half!

my daughters dx is crohns, she is now on predisone/pentasa/purinethol (6-MP)
shes showing some side effects already, and having kidney issues now too...

i guess ill look around more, learn some and post a little.



eta doses: (per day)
predisone 40mg/pentasa 2000mg/purinethol 50mg(6-MP)

Last edited by w4sted; 04-17-2008 at 09:35 PM.
04-18-2008, 04:04 PM   #32
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crohns here too.
05-30-2008, 04:38 PM   #33
xapplex
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is uc stand for Ulcerative colitaitis. if that then i had that. sry just joined this forum
05-30-2008, 05:47 PM   #34
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hi Xapplex, & welcome

yes - uc is ulcerative colitis.
05-30-2008, 07:16 PM   #35
xapplex
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i think uc when hole large bowel is infected but crohns is when might be just some part of bowel is infected. not sure
04-22-2009, 05:27 AM   #36
Mazen
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Crohn's in the terminal ileum
04-22-2009, 07:27 AM   #37
My Butt Hurts
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Mazen said:
Crohn's in the terminal ileum
I thought Crohn's could be from your lips to your anus and anywhere inbetween.
04-22-2009, 02:08 PM   #38
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Ah - thanks Pen. Mike had written that it is hard to distinguish between the two, and I thought that Mazen wrote it IS in the T.I. I added the word is - whole different meaning.
04-26-2009, 04:10 PM   #39
Serafina
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Crohn's colitis.
04-26-2009, 07:22 PM   #40
teeny5
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The docs go back and forth, but the general consensus is Crohn's Colitis.
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Currently on: Colazal, Prilosec, multi-vitamin, probiotics, total EFA's, glucosamine.

Previous meds: Sulfasalazine, Asacol, Rowasa, Pentasa, Entocort.


"Adopt the pace of nature: her secret is patience. -Ralph Waldo Emerson"
04-27-2009, 10:24 AM   #41
SpoonNinja
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I have crohns in my ilium which im not even sure wherethat is lol
04-28-2009, 12:20 AM   #42
pb4
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The ileum is in the small intestine, there are 5 subtypes of crohn's and yes, crohn's can affect any part of the GI tract from mouth to anus but there are 5 common places that it generally affects...

Types Of Crohn's Disease

There are five subtypes of Crohn's disease, distinguished by the gastrointestinal area in which the disease occurs. While Crohn's disease lesions can appear anywhere in the digestive tract, lesions rarely occur in the mouth, esophagus, and stomach unless there are also lesions in the lower parts of the tract (intestines).

Gastroduodenal CD - Gastroduodenal Crohn's disease, which affects the stomach and the duodenum (the highest, or beginning, portion of the small intestine), is often misdiagnosed as ulcer disease. The correct diagnosis frequently is not made until various ulcer treatments have failed, or until Crohn's disease is identified farther down the gastrointestinal tract. Symptoms of gastroduodenal CD include loss of appetite, weight loss, nausea, pain in the upper middle of the abdomen, and vomiting.

Jejunoileitis - Jejunoileitis is Crohn's disease of the jejunum (the longest portion of the small intestine), which is located between the duodenum and the ileum. Symptoms include mild to intense abdominal pain and cramps after meals, diarrhea, and malnutrition caused by malabsorption of nutrients. (The majority of nutrients are absorbed in the jejunum.) Fistulas (abnormal openings in the intestinal tract) may form. These can link a diseased area of the small intestine to another area of the intestine or another organ, such as the bladder. Fistulas may increase the risk of developing infections outside of the GI tract.

Ileitis - Ileitis affects the ileum (the lowest, or last, part of the small intestine). Symptoms include diarrhea and cramping or pain in the right lower quadrant and periumbilical (around the bellybutton) area, especially after meals. Malabsorption of vitamin B12 can lead to tingling in the fingers or toes (peripheral neuropathy). Folate deficiency can hinder the development of red blood cells, putting the patient at higher risk of developing anemia. Fistulas can develop, as can inflammatory masses.

Ileocolitis - Ileocolitis is the most common type of Crohn's disease. It affects the ileum (the lowest part of the small intestine) and the colon (the large intestine). Often, the diseased area of the colon is continuous with the diseased ileum, and therefore involves the ileocecal valve between the ileum and the colon. In some cases, however, areas of the colon not contiguous with the ileum are involved. Symptoms of ileocolitis are essentially the same as those present in ileitis. Weight loss is also common.

Crohn's Colitis (Granulomatous Colitis ) - Crohn's colitis affects the colon. It is distinguished from ulcerative colitis in two ways. First, there are often areas of healthy tissue between areas of diseased tissue; ulcerative colitis is always continuous. Second, while ulcerative colitis always affects the rectum and areas of the colon beyond the rectum, Crohn's colitis can spare the rectum, appearing only in the colon.

Crohn's colitis is not the same as having crohn's and/or ulcerative colitis...ulcerative colitis affects the colon/rectom only.

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