I'm going to explain my symptoms to see if anyone has any experience with this and knows if maybe there is something else going on.
I was diagnosed with crohn's disease last year but have had digestion problems for almost 6 years now. I remember at the beginning it started as I would get diarrhea pains after eating foods but there wasn't a pattern to which ones. I went to the doctor a bunch and after a few years I finally got to see a GI who took a barium test to see what was going on. It showed my colon full of stool and she put me on a few different laxatives and said I may have to take them for the rest of my life and left it at that. So I kept getting bloated and then taking laxatives on the weekends so that I wouldn't have diarrhea during the week. After a while the laxatives didn't give me diarrhea anymore which kept me bloated and even if I had a bowel movement I felt full still. Also, if I did get diarrhea my insides felt sore. Then last year I started getting really bad pains above my belly button before I needed to diarrhea and after eating. I was treated for an ulcer which I didn't have and had another barium test showing that there was narrowing in my small intestine. I was referred to another GI and she did a colonoscopy showing that I crohns in my ileum. Also a CT scan was done showing a fistula and an abscess. After lots of antibiotics and prednisone I was still having symptoms. While inflammed I have more diarrhea but not as bad as a lot of crohns people I have read about. Also when the inflammation is gone I have this bloated and then diarrhea cycle I go through. Right now I'm having a flare and I'm on 100mg imuran and my humira dosage is going up from one shot every two weeks to one every week. Another weird thing that happens and was occurring before I was diagnosed was that I would get these horrible gnawing pains above my navel that were worse than any pain I had and they would keep me up at night and ease with this gurgling sound. I have had that happen around 5 times and it happened recently and sometimes I vomit. Last week I went to the hospital with stabbing pains below my navel and had a ct scan which showed active inflammation again and also showed my colon was full of stool again.
Summary:
-before diagnosis feeling of fullness that ends with diarrhea that doesn't make me feel "finished"
-used to have gnawing in upper abdomen after eating and before diarrhea
-have more diarrhea during active inflammation
-still get bloated and full feeling that ends with diarrhea. even if I have a regular BM I never feel finished
-right now I'm having a "flare" but I'm mostly bloated and full with bouts of diarrhea
I'm wondering if I have something separate to the crohn's disease, like a lazy bowel or something because that's what my other GI thought. If anyone has any advice or information that'd be awesome.
I was diagnosed with crohn's disease last year but have had digestion problems for almost 6 years now. I remember at the beginning it started as I would get diarrhea pains after eating foods but there wasn't a pattern to which ones. I went to the doctor a bunch and after a few years I finally got to see a GI who took a barium test to see what was going on. It showed my colon full of stool and she put me on a few different laxatives and said I may have to take them for the rest of my life and left it at that. So I kept getting bloated and then taking laxatives on the weekends so that I wouldn't have diarrhea during the week. After a while the laxatives didn't give me diarrhea anymore which kept me bloated and even if I had a bowel movement I felt full still. Also, if I did get diarrhea my insides felt sore. Then last year I started getting really bad pains above my belly button before I needed to diarrhea and after eating. I was treated for an ulcer which I didn't have and had another barium test showing that there was narrowing in my small intestine. I was referred to another GI and she did a colonoscopy showing that I crohns in my ileum. Also a CT scan was done showing a fistula and an abscess. After lots of antibiotics and prednisone I was still having symptoms. While inflammed I have more diarrhea but not as bad as a lot of crohns people I have read about. Also when the inflammation is gone I have this bloated and then diarrhea cycle I go through. Right now I'm having a flare and I'm on 100mg imuran and my humira dosage is going up from one shot every two weeks to one every week. Another weird thing that happens and was occurring before I was diagnosed was that I would get these horrible gnawing pains above my navel that were worse than any pain I had and they would keep me up at night and ease with this gurgling sound. I have had that happen around 5 times and it happened recently and sometimes I vomit. Last week I went to the hospital with stabbing pains below my navel and had a ct scan which showed active inflammation again and also showed my colon was full of stool again.
Summary:
-before diagnosis feeling of fullness that ends with diarrhea that doesn't make me feel "finished"
-used to have gnawing in upper abdomen after eating and before diarrhea
-have more diarrhea during active inflammation
-still get bloated and full feeling that ends with diarrhea. even if I have a regular BM I never feel finished
-right now I'm having a "flare" but I'm mostly bloated and full with bouts of diarrhea
I'm wondering if I have something separate to the crohn's disease, like a lazy bowel or something because that's what my other GI thought. If anyone has any advice or information that'd be awesome.