Here is my story...
Sunday morning on Father's Day June 17th, 2012 which was also my 9 year old son's birthday and my dad's 67th birthday this year, I woke as always, felt fine, made a smashing breakfast for the family, cut fresh fruit kabobs and watermelon for the snack after my son's All Star baseball game and went to the Baseball park hoping to watch my son hit a homer on his birthday.
Then about halfway through the game it hit me. I got the chills, my stomach kinda hurt, I was feeling shaky and just plain sick. Frankly I just thought it was a hangover that was hitting me later on with the heat of the day. Had a pretty good family birthday celebration the day before!!
After the game, I still felt like crap but was to go to my mom and dads with the kids for dinner to celebrate fathers day and birthdays. Took our presents, and wend. I went straight to the couch and didnt move not even for birthday cake and singing with my son I felt so horrible. I thought maybe its the flu. I had a pretty high fever, took some advil and tried to rest. After dinner (I didnt eat) we went home and I tried to sleep but my fever was 102 and I was shaking like a leaf. I took a bath and finally got a little sleep. Then next morning I awoke with severe pain in my lower right abdomen and thought this isnt the flu this is bad. I went to urgent care and was told I probably had appendicitis and to go to the ER.
At the ER on June 18th a CT scan revealed that it looked like I may have Crohns. I was admitted put on antibiotics and I dont even know what else and started feeling better. I was on a clear liquid diet for two days and then they decided to switch from a clear liquid diet to a liquid diet and from IV antibiotics to oral meds. The next day I was in the worst pain yet! I was put on morphine then duladin and was just in gut wrenching pain. I dont even know what happened for a couple of days while I was there. Anyway after trying this, that and the other with nothing helping, they decided on the 27th that surgery was necessary. By this time I had already been in the hospital for 10 blasted days I was ready to get out!!! I am a teacher this is or was my summer vacation!
So surgery... they took out what the surgeron referred to as a convoluted mess of 3 inches of my large intestines, a foot of my small intestines and my appendix. The surgeon said it was an infected tangled mess all on top of itself. I had ifectious disease doctors in my room daily testing because my blood had an so much infection in it they put me on some other anitbiotic called micafungin. I had a central line and TPN bag of white liquid food for days and days. There was so much sugar in that space food stuff that I had to have my finger pricked every few hours and had more insulin shots than I can count. Things settled, started healing and they finally let me go home on July 4th.
Tomorrow July 11th, I am going to have the staples removed and hope to have at least a week of summer in a pool before going back to work.
I am new to Crohn's, wide awake because of 40 mg of prednisone, anxious about my Remicade, and dont know what to eat!! I feel weirded out because of all the drugs I'm still on. (pentasa, prednisone, fluconazole, and defurozime) Still waiting to for insurance to approve Remicade so I can start that and get off prednisone I hope.
I am glad this is here so I have something to read since I can't sleep. Another 3:00 AM is about to find me awake and foggy.
Thanks for creating and posting.
39 years old and new to Crohns
Sunday morning on Father's Day June 17th, 2012 which was also my 9 year old son's birthday and my dad's 67th birthday this year, I woke as always, felt fine, made a smashing breakfast for the family, cut fresh fruit kabobs and watermelon for the snack after my son's All Star baseball game and went to the Baseball park hoping to watch my son hit a homer on his birthday.
Then about halfway through the game it hit me. I got the chills, my stomach kinda hurt, I was feeling shaky and just plain sick. Frankly I just thought it was a hangover that was hitting me later on with the heat of the day. Had a pretty good family birthday celebration the day before!!
After the game, I still felt like crap but was to go to my mom and dads with the kids for dinner to celebrate fathers day and birthdays. Took our presents, and wend. I went straight to the couch and didnt move not even for birthday cake and singing with my son I felt so horrible. I thought maybe its the flu. I had a pretty high fever, took some advil and tried to rest. After dinner (I didnt eat) we went home and I tried to sleep but my fever was 102 and I was shaking like a leaf. I took a bath and finally got a little sleep. Then next morning I awoke with severe pain in my lower right abdomen and thought this isnt the flu this is bad. I went to urgent care and was told I probably had appendicitis and to go to the ER.
At the ER on June 18th a CT scan revealed that it looked like I may have Crohns. I was admitted put on antibiotics and I dont even know what else and started feeling better. I was on a clear liquid diet for two days and then they decided to switch from a clear liquid diet to a liquid diet and from IV antibiotics to oral meds. The next day I was in the worst pain yet! I was put on morphine then duladin and was just in gut wrenching pain. I dont even know what happened for a couple of days while I was there. Anyway after trying this, that and the other with nothing helping, they decided on the 27th that surgery was necessary. By this time I had already been in the hospital for 10 blasted days I was ready to get out!!! I am a teacher this is or was my summer vacation!
So surgery... they took out what the surgeron referred to as a convoluted mess of 3 inches of my large intestines, a foot of my small intestines and my appendix. The surgeon said it was an infected tangled mess all on top of itself. I had ifectious disease doctors in my room daily testing because my blood had an so much infection in it they put me on some other anitbiotic called micafungin. I had a central line and TPN bag of white liquid food for days and days. There was so much sugar in that space food stuff that I had to have my finger pricked every few hours and had more insulin shots than I can count. Things settled, started healing and they finally let me go home on July 4th.
Tomorrow July 11th, I am going to have the staples removed and hope to have at least a week of summer in a pool before going back to work.
I am new to Crohn's, wide awake because of 40 mg of prednisone, anxious about my Remicade, and dont know what to eat!! I feel weirded out because of all the drugs I'm still on. (pentasa, prednisone, fluconazole, and defurozime) Still waiting to for insurance to approve Remicade so I can start that and get off prednisone I hope.
I am glad this is here so I have something to read since I can't sleep. Another 3:00 AM is about to find me awake and foggy.
Thanks for creating and posting.
39 years old and new to Crohns