Hi all! I was diagnosed with Crohn's in 1995 after going through bouts of diarrhea, weight loss, fatigue, and anemia for about a year. I had a long road learning to deal with this and finding out what works for me and what I need to do to stay on top of my care. I remember the Doctor who diagnosed me saying "We'll get you some medicine and get you better." If I knew then what I know now, I would have laughed in his face. If only there was a pill that would make it better!
After a few years, of less than stellar care I had a stricture that required surgery. The first resection gave me about 8 good years. However, in the last few years, I began have impaction issues due to more stricturing. I recently had my second resection surgery (fun!!) and am recovering from that. Until my surgery, I was on Humira once per week. I'll be restarting it in about 6 weeks. Hopefully, it will keep me in a good place for a long while.
For me the most frustrating aspect of this disease is the way everyone becomes an expert when it comes to whatever I'm eating, cause yanno forgoing a few potato chips will make the Crohn's go away :yrolleyes:
Anyway, looking forward to sharing and getting some support!
After a few years, of less than stellar care I had a stricture that required surgery. The first resection gave me about 8 good years. However, in the last few years, I began have impaction issues due to more stricturing. I recently had my second resection surgery (fun!!) and am recovering from that. Until my surgery, I was on Humira once per week. I'll be restarting it in about 6 weeks. Hopefully, it will keep me in a good place for a long while.
For me the most frustrating aspect of this disease is the way everyone becomes an expert when it comes to whatever I'm eating, cause yanno forgoing a few potato chips will make the Crohn's go away :yrolleyes:
Anyway, looking forward to sharing and getting some support!