I am new to the Forum to read, read, read all I can about Crohn's. My 16 year old son was just diagnosed 4 weeks ago with Crohn's. For approx. 4-5 years he has had stomach cramps/pains and bouts of diarrhea. Never had a firm BM. Seemed like it was brought on by dairy products and would last 1-2 days. He would complain of the pain. And I would think....stomach cramps.....who doesn't get them. Suck it up. Well he has played hockey since he has been 5. This year he has moved to a different team that has a vigorous off-ice work-out in addition to the on-ice and they go 12 months. The coaches had them drinking protein as a part of their work-out process. After 2 weeks of drinking the protein with MILK.....he went into a weeklong stretch of cramps and pains and diarrhea. After the 6th day - I took him to the ER because now it was going on for far too long and I was worried. The ran blood work and an xray. The ER dr suggested I take him to see a gastro specialist. Luckily for me, I know one personally and we were in within the week. He doesn't see "children" but he agreed to treat my son. We saw the dr on a Mon., Tues. he had blood work and Fri. he had the colonoscopy. When the Dr. came out from doing the colonoscopy.....he said he can't believe he didn't have any other symptoms that he most definetly has Crohn's. The medicine that he prescribed for him was not covered by 2 health plans so he went on 20mg prednisone for 1 month and a nightly supository. Last week he started to take him off the prednisone to see how his body responds. He also had the barium small bowel xrays which show something and I am waiting for the call back from the dr for that report.
I'm having a hard time not beating myself up over this. One of the first things my son asked me was "Am I going to die, Mom?". Of course I told him absolutely NOT and that he will be just fine with medication and listening to the dr and his body. But I didn't take his pain as serious as it was. I just had him avoid dairy. Maybe I could have prevented some of the damage that has been done if I would have acted sooner.
Any help on questions that I need to ask because all of this information is so overwhelming would help me. Thank you all!
I'm having a hard time not beating myself up over this. One of the first things my son asked me was "Am I going to die, Mom?". Of course I told him absolutely NOT and that he will be just fine with medication and listening to the dr and his body. But I didn't take his pain as serious as it was. I just had him avoid dairy. Maybe I could have prevented some of the damage that has been done if I would have acted sooner.
Any help on questions that I need to ask because all of this information is so overwhelming would help me. Thank you all!
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