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Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Can crohn's be treated without the use of medication?


View Poll Results: Do you think that crohn's can be treated without the use of medication?
yes, any severity 12 5.56%
yes, but depends on severity 72 33.33%
the use of minor medication is needed with a proper diet/natural therapy 37 17.13%
no, if you have crohn's you need some form of medication 95 43.98%
Voters: 216. You may not vote on this poll

 
09-06-2008, 11:06 AM   #1
james
 
Can crohn's be treated without the use of medication?

Regardless of your treatment, do you think that crohn's can be treated without the use of medication?
09-06-2008, 12:43 PM   #2
D Bergy
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It can be done without medications, but that may not be the best way to go about it.

Dan
09-06-2008, 01:29 PM   #3
teeny5
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I think for treatment to be effective you will probably needs meds at some point. Though maybe you could not be on them forever...that I am undecided about.
01-16-2009, 01:29 PM   #4
ChronsSUCKS
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I think if you have a serious flare you would probably die without medication or surgery. However when the disease is inactive, it MIGHT be possible to keep it away without medication. Although i wouldn't count on it.

I was healthy until i stopped taking azatioprine, and my CD came back hard. And i am someone who lives a very active and healthy life, and drinks alcohol very moderately and doesn't smoke. I have to say that no you cant do it without medicine, but then again there might be somebody with milder crohns who can and has done it.
03-16-2009, 03:16 AM   #5
mRae85
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Meds are a must have I think, to go without them is asking.... actually begging for troubble I think
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03-16-2009, 04:51 AM   #6
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i went for the 2nd option, but i would stress that i believe only mild Crohns can be treated/tolerated with options other than meds, such as a very carefully planned diet taking into account nutritional absorbtion, immune-building foods etc...

there wasn't any mention of surgery in the poll. i think basically if someone has really aggressive Crohns, causing all the horrid effects we know and read about, then they wouldn't have much of a life without medicinal or surgical intervention.
03-16-2009, 04:55 AM   #7
merrywidow
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nope. you need medication/surgery to have a half decent life.
whats the point of having pain when there is great meds to help you?
sharon xx
05-06-2010, 06:01 AM   #8
Amay
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Personally speaking - I had a year of meds (prednisone etc), then a resection, followed by approx 10 years on Mesalazine and Immodium, and for the last 5 years I have taken no meds. Have had active lifestyle, careful diet and cod liver oil, but that's just luck - I'm certainly not going to try and persuade others to stop taking meds. This was under the guidance of the doctor at the hospital and it was very very gradual and controlled.

I think I'm lucky in that my Crohn's has gone from middling-severe to fairly mild (still have some pain and upsets but probably one day in 3 rather than constant every day).

I am an example of Crohn's with no meds and I do keep a close eye on it and have had a couple of dashes to hospital for suspected obstruction, but these turned out to be partial and subsided.

I now only go to see the hospital doctor if I need to - so that went from once a week (15 years ago), to monthly to six monthly to yearly.....and I haven't seen a specialist for about 3 years.
05-22-2010, 02:58 PM   #9
Jennifer
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It's an autoimmune disorder and no diet can change that. For some people its worse than others but that doesn't mean you should go without medication. I'm like Amay right now where I'm not seeing a specialist and I'm not on any medication. Do I recommend this? NO. I'm only doing it because I'm having a problem with my health insurance covering my medications and the GI I tried to see in this area was horrible and I never want to see them again. Once I move in a few months I'll find another GI and hopefully go back on medication. I've been in remission for over 10 years but its also after my surgery and its not uncommon for patients to go 10 years or more without a flare.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
05-27-2010, 09:34 PM   #10
cins
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I tried when i was first diagnosed. Natural therepies. Hmmm I don't think that I got better but it helped for when I started med. I'm only on pentasa at the moment. Boosting your immunity is great though. I think vit and minerals along with medications helps to control it so you don't flare so easily. But I think both meds and natural therepies helps.
Good Luck
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05-28-2010, 09:52 PM   #11
Cog
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My preference is as few meds as possible - pick your poison as a Doctor once said to me

Downside a very restricted diet

I am currently down to Bactrin and Colestipol + herbs and spices and oils

Long may it continue

If i can keep the gut guessing may be I can keep it under control

I do have meds waiting in case it changes - and I hit it hard and fast and hopefully shorten my recovery time to remission

Helps having a great GI on my side - so to speak
08-11-2010, 12:37 AM   #12
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My husband has been in remission for about 20 years. He got Crohns as a teenager and was on meds until his mid 20's. He used to take Prednisone and was down to 140 pounds when we married. But he has taken hardly anything for years. He does take immodium once in awhile and lactaid. (He is also lactose intolerant.) And he also takes Gaviscon occasionally for acid reflux. He is very particular about what he eats, not a lot of cheese or fatty or starchy foods. He does eat a lot of meats - mostly beef and pork and a little chicken, and he loves a green salad with lots of veggies in it. He rarely eats fruit. He also stays away from citrus if possible (but he loves tomatoes) and he doesn't drink coffee. He also doesn't drink beer, but he occasionally drinks hard liquor and cola. He is even picky about what water he drinks and always drinks either water from our home faucet or one store brand. The different mineral contents in water are very noticeable to him. He goes in to get looked at once every few years and always comes out pretty clean with little or no evidence of Crohns. He also doesn't let stress bother him and doesn't keep things bottled up inside. He does tend to have a temper once in awhile though.
08-14-2010, 06:11 AM   #13
debs1983
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Personally I believe you don't need meds all the time
just when you have a flare up

I needed them to get well when first diagnosed

then stopped taking them about 3 yrs ago


although Im having a flare up now, have been given pentasa-mesalazine to keep 'in case' as a consultant now has to re-issue me them
08-14-2010, 08:29 AM   #14
D Bergy
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This is highly speculative, but I will throw it out there for those that want to consider the possibility. I have not proven it to a degree I where I am comfortable saying it is factual, but it is the hypothesis I am working on.

I do not know the original cause of the immune system dysfunction. It is likely a mix of factors including genetic disposition. The genetics make it more likely we will get the disease, but all with the genetic disposition will not get it.

I am thinking there is a pathogen, or more than one that is introduced into the body, one way or another that causes the immune dysfunction. It seems that a virus would be the most likely culprit, as the immune system is pretty good at getting rid of most pathogenic bacteria. Once the alleged virus is established, then other opportunistic bacteria that normally would be eliminated by the immune system , starts getting a foot hold in the body.

A few of the bacteria I suspect are responsible for symptoms are:

H-Pylori
Porphyromonas gingivalis
Some strains of E-Coli
MAP bacteria

There may be others as well. The opportunistic co-infections most likely vary between individuals, and bring different symptoms, and even completely different diseases. Autoimmune condition may result in any number of different diseases. We happen to have crohn's because of the group of similar opportunistic infections we acquired after the original cause of immune dysfunction.

Having dealt with Lyme disease, and the co-infections that often come with it, I have been able to piece together a similar cause and effect concerning autoimmune disease. People with Lyme often enough develop one auto immune disease or another, as a result of the borrelia burgdorferi bacteria which suppresses the immune function. This allows the body to pick up any number of other infections, causing the disease to progress in strange directions.

This is not our bacteria of original cause, or at least it is not involved with most of us, but could be in some cases. There is something else that has a similar effect that is yet unidentified.

All speculation, for those who like mental chewing gum.

Dan
08-14-2010, 08:39 AM   #15
Dallies
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And very interesting it is too!! I know after having a chat with our daughter's professor he mentioned 'bacteria'.

However in answer to the question, Can crohn's be treated without the use of medication?

I'd say no.
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Surgery:hemicolectomy June 2010
08-14-2010, 09:24 AM   #16
D Bergy
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I think you have to use medication to either suppress the immune system to keep it from reacting and inflaming the body. In particular the intestinal tract. Or you have to boost the immune system to make its attack against the various pathogens more effective.

I feel the second method is preferable, if it will work for you. The reason being suppressing the immune system could lead to even more infection in the long haul, giving you periods of relief, but possibly more symptoms, and possibly other autoimmune diseases later.

There are many variables that might determine this, such as exposure to other pathogens, the level of suppression, individual physiological differences, and genetic predispositions. Some may do perfectly fine, others may not.

The other option is to intervene on behalf of the immune system and treat infections with some other method such as antibiotics, or some other method of killing pathogens, most of which would be experimental. I think this is impossible to do as well as the immune system can, but may be useful for short term effect.

You may also be able to inhibit some of the more destructive effects of Chronic inflammation by using TNF inhibitors, either medications, or natural TNF inhibiting substances such as Turmeric. Dosage needed are mostly trial and error.

I think it is possible to do it without medication, but do to the nature of the disease, it think it would be difficult for most of us, at the very least.

I did do without medication for most of my life, so the degree of illness plays a role in this also. It is hard to have a yes or no answer to the question because we all vary too much in our disease process. But for most of us, I would say yes, you will likely need a medication of some type.

Dan
08-15-2010, 11:17 AM   #17
Dexky
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Well said as usual Dan!! I liked your old sig line better but I can certainly understand your need for the new one!!
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08-15-2010, 02:24 PM   #18
Entchen
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+1 Dan.

My GI's view is that medication is needed to both reduce inflammation and to keep it from returning. I've been reading up a storm in the past number of months and I agree with that view. At least while our knowledge is relatively limited, meds are generally the best option we've got. That won't stop me from doing another all-liquid diet, spending time at the Y to get my body into fighting form, etc., to try to help things along, though! Meds are a tool for me; I'm not going to stop trying to learn and do whatever I can to feel and be well.
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Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon

Last edited by Entchen; 08-15-2010 at 04:53 PM.
08-15-2010, 03:32 PM   #19
Astra
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My gastro explained to me that Crohn's is inflammation, and no amount of diet or change of lifestyle will cure inflammation when it strikes!
Therefore the only way to reduce inflammation is meds!
Other intestinal manifestations such as diarrhea can be controlled with diet, or painkillers to reduce joint pain.
But leaving inflammation to soldier on without meds, is asking for trouble, ie, blockage, infection, peritonitis and rupture.
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Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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08-15-2010, 05:52 PM   #20
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Well said as usual Dan!! I liked your old sig line better but I can certainly understand your need for the new one!!
I second that! Poor Dan. But we have problems on here from time to time.
08-15-2010, 06:04 PM   #21
ameslouise
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I don't really have much to add, other than my support for Dan!
08-15-2010, 09:37 PM   #22
D Bergy
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It is just a matter of time before everyone in the U.S. will have to have disclaimers everywhere.

I am thinking of putting one one my car. It will read "I am now a grandfather, so please ignore the left blinker that is always on".

Dan
08-15-2010, 09:40 PM   #23
Dexky
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It is just a matter of time before everyone in the U.S. will have to have disclaimers everywhere.

I am thinking of putting one one my car. It will read "I am now a grandfather, so please ignore the left blinker that is always on".

Dan
Amen, brother!! As far as I'm concerned though, you are safe here!!! Keep posting your research and personal experiences and let the adults decide for themselves!!!!
08-15-2010, 09:44 PM   #24
Pirate
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lol. So True Dan
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08-19-2010, 11:28 PM   #25
YogaGirl
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My Crohn's practically went away for three years with only an over the counter probiotic. I had no other meds for three years and no flares whatsoever. Unfortunately, it came back, even with the probiotics and now I am forced to return to the medication.
10-22-2010, 08:36 PM   #26
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My husband has been in remission for about 20 years. He got Crohns as a teenager and was on meds until his mid 20's. He used to take Prednisone and was down to 140 pounds when we married. But he has taken hardly anything for years. He does take immodium once in awhile and lactaid. (He is also lactose intolerant.) And he also takes Gaviscon occasionally for acid reflux. He is very particular about what he eats, not a lot of cheese or fatty or starchy foods. He does eat a lot of meats - mostly beef and pork and a little chicken, and he loves a green salad with lots of veggies in it. He rarely eats fruit. He also stays away from citrus if possible (but he loves tomatoes) and he doesn't drink coffee. He also doesn't drink beer, but he occasionally drinks hard liquor and cola. He is even picky about what water he drinks and always drinks either water from our home faucet or one store brand. The different mineral contents in water are very noticeable to him. He goes in to get looked at once every few years and always comes out pretty clean with little or no evidence of Crohns. He also doesn't let stress bother him and doesn't keep things bottled up inside. He does tend to have a temper once in awhile though.
That diet would destroy all CD patients I know! I have doubts that the problem is CD....
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11-14-2010, 02:02 PM   #27
karrieg
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Yes, in some cases it can be controlled without meds. Mine was. I had a serious flare when I was first diagnosed. I actually am pretty certain I had had CD though for years before that because of all of my digestive issues I've had for as long as I can remember. Anyway, 11 years ago, I had many of the classic symptoms- fever, diahrrhea, pain, headache, and serious blood loss that required 2 transfusions over a 2 week time period. As soon as the doctor came to a diagnosis, I began a natural product specifically for IBD and other inflammatory conditions called UltraInflamX by Metagenics. I took it daily for about two months and took nothing else but kept having regular check ups with the plan of taking meds if the natural failed. Not only did I go into remission but I felt better than I had EVER felt in my life. ALL my digestive symptoms were gone and I had energy like never before. I remained symptom free until now, 11 years later at which point I think I may be having some issues which I am currently trying to get diagnosed!
12-04-2010, 04:35 PM   #28
meardonna
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while breastfeeding I needed no meds and had a wonderful life first time two years feeding, second time 2 and a half years! does breastfeeding count as meds!! seriously wish it did! I think everyone needs ssomething and there bodies react differently some might be able to manage with diet herbal remedies and in my case feeding a baby.
12-22-2010, 05:25 PM   #29
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I think that almost everyone needs meds to help them. If a patient has an incredibly mild case, then maybe not. If the disease cannot get into remission/going into remission, I believe that the damage may become unrepairable and cause many more problems down the road. I havent read about anyone that has CD under control without any medical help.
12-23-2010, 05:25 AM   #30
meardonna
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I'm not with the group who say they can cure IBD with herbal remedies and diets etc, but from my lifestyle and experiences I do believe these have a place in helping in most cases. breastfeeding sent me into a wonderful remission, but now am back to reliance on drugs. Even now though, i'm slightly better when I stick to my healthy diet and avoid certain foods than I am when I eat rthings I shouldn't. we will be stuck on meds forever, so we may aswel try to find things which lessen the amount of drugs we do need, if you find diet, or herbal remediees, or even pregnancy/breastfeeding thenn we should grab on to them while they help
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