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07-16-2012, 10:25 AM   #1
Cross-stitch gal
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Location: Vancouver, Washington

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Supporting our children

Hi.
I'm looking to write my local congresswoman about putting together a group for children of parents with IBD. If it's approved, would any of you be interested in helping put one together in your state/area?

The goal would be to educate and help our children to cope with our sicknesses. It'd be mostly run by volunteer and donations. My thought would be to bring in a local G.I. along with patients anywhere from children to adults to answer any questions the kids might have on what we deal with on a day to day basis.

I'd love for this to be a free event especially since majority of us don't have much cash on hand. But, I was wondering if you might be able to offer any ideas as to a minimal/fair amount we could ask for to cover costs of supplies needed, refreshments and a little something for the G.I. for their time donated. Thanks in advance for your suggestions. Lisa
__________________
Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


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07-16-2012, 06:01 PM   #2
Cross-stitch gal
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A friend of mine also suggested the possibility of maybe applying for a grant to get this going. Just am not quite sure how about applying for one...
07-20-2012, 12:49 AM   #3
Jennifer
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What sort of supplies and are refreshments really required? A donation is a donation so you shouldn't have to give anything back to the GI. Perhaps a local church may be of help.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
07-20-2012, 01:03 AM   #4
Cross-stitch gal
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Not exactly sure as far as refreshments go especially since everyone has different allergies. Thought about the possibility of talking with the red cross to see what they might suggest. My husband is a regular blood donator and I've donated some of my cross-stitch to them as well. So, they know us. Still in the brainstorming part and have never done anything like this before. So, we'll see...
07-20-2012, 01:05 AM   #5
Jennifer
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Bottled water and make it a pot luck!
07-20-2012, 01:11 AM   #6
Cross-stitch gal
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Love it Bottled water wouldn't be a bad idea and something everyone can have. Not rushing into anything though. Am thinking a few more weeks won't hurt anything especially since we've done without something like this for this long...
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