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Crohn's Disease Forum » Extra Intestinal Manifestations » Eyes » Eye pain and blurred vision


 
10-09-2012, 09:12 AM   #31
Trish22
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You are so very welcome,and Good on you both for stopping smoking,you will start to feel better regarding the crohns aspect.Smoking is one of the no-no,s where crohns is concerned,At our Gastro clinics there is always someone there at the clinic asking people if they smoke or not,and if they do advising them of the problems it's causes regarding Imflammatory Bowel Disease.
10-09-2012, 09:50 AM   #32
723crossroads
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I had a few days of headaches and eye pain in the back of my eye once and woke up one morning after and my vision was very blurry. I went to the bathroom to look at my eyes and saw white stuff collecting inside the bottom of my pupils. Turns out I had uveitis. The white things were white blood cells collecting in my pupils. Had to do prednisolone for two months before it finally went away. Luckily I was able to treat it and it went away since it's nothing you should play around with and let linger.
Thanx for sharing tha!!!
I quit cigarettes 10 yrs. ago. Can only imagine the money I've saved and the lung damage.
10-09-2012, 10:30 AM   #33
CrohnsChicago
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Crohn's chicago, congrats on stopping smoking. I've also stopped recently though still using an electronic cigarette but it feels great not to be so dependent on something so bad for us cronies. Good on you!
Trish, sorry to hijack this little bit but just wanted to send chicago crohn's my support for stopping smoking. A very hard thing to do.
@Trish - know that the eye thing will get better. It just takes some time and careful observation. Not only did I have to do the steroid drops in my eyes, I also was fully dilated around the clock to let my eyes relax while they healed. That was interesting because I had to wear sunglasses even at work just to type on the computer and couldn't drive much for a while. I was quite the sideshow but at least my brand new designer sunglasses I made myself buy hid my stressed out eyes and made me look cute! LOL....And that's all you can do sometimes is just try your best to live as normal a life as you can during treatment knowing it can't be this terrible forever. Do something nice for yourself during this and try to find some humor or positive spin on this crohn's mess and everything else it causes it will make things a little bit easier to handle hopefully. Wishing you lots of peace and strength!

@Annawato & @723Crossroads - Thank you! It's really hard but it does get easier with time and determination. The only problem is on those frustrating days you have at work or when you are just stressed out in general. I try to at least get some exercise in during those periods. Not going to lie I have taken a quick puff on a night out with friends but that's it and I have not bought a pack for about over a month. I feel much better without them and the desire eventually does start to fade away.

And 723Crossroads, 10 years is AMAZING!! Congrats to you!!! I hope to achieve what you are right now

I quit once a while ago for 6 months and felt great, but this time I know I need to do it for good. The health consequences are so much more obvious to me now. And unfortunately sometimes that's what it takes for me to finally make a necessary change. But at least I am trying....

Best of luck to everyone!
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Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
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Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

10-09-2012, 10:43 AM   #34
723crossroads
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@Trish - know that the eye thing will get better. It just takes some time and careful observation. Not only did I have to do the steroid drops in my eyes, I also was fully dilated around the clock to let my eyes relax while they healed. That was interesting because I had to wear sunglasses even at work just to type on the computer and couldn't drive much for a while. I was quite the sideshow but at least my brand new designer sunglasses I made myself buy hid my stressed out eyes and made me look cute! LOL....And that's all you can do sometimes is just try your best to live as normal a life as you can during treatment knowing it can't be this terrible forever. Do something nice for yourself during this and try to find some humor or positive spin on this crohn's mess and everything else it causes it will make things a little bit easier to handle hopefully. Wishing you lots of peace and strength!

@Annawato & @723Crossroads - Thank you! It's really hard but it does get easier with time and determination. The only problem is on those frustrating days you have at work or when you are just stressed out in general. I try to at least get some exercise in during those periods. Not going to lie I have taken a quick puff on a night out with friends but that's it and I have not bought a pack for about over a month. I feel much better without them and the desire eventually does start to fade away.

And 723Crossroads, 10 years is AMAZING!! Congrats to you!!! I hope to achieve what you are right now

I quit once a while ago for 6 months and felt great, but this time I know I need to do it for good. The health consequences are so much more obvious to me now. And unfortunately sometimes that's what it takes for me to finally make a necessary change. But at least I am trying....

Best of luck to everyone!
Five years after I quit, I found out I had kidney cancer in my left kidney. It had been there for years undetected.So good thing I did quit, or I may not be here to tell you about it. I had surgery and they removed the tumor and around it, but still have my kidney!! God is good! I am in remission and hope to be back in remission from crohn's soon! Good luck or God bless I should say... YOU CAN DO IT if I did! I smoked almost 2 packs a day for 28 yrs. and loved every single one down to my very last. So yes, you can quit!!!
10-09-2012, 10:47 AM   #35
Trish22
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hi Crohns Chicago,thanks for your nice message,I am going to start Transcendental Meditation this Saturday,am looking forward to this type of meditation,have been doing lots of CD Meditation and Hypnotherapy which is good,but I think TM medication goes far deeper,and I think that it will certainly bring my anxiety/Stress levels under control.The oly other time my stress levels are under control is when I visit the US,oh how I love your country,My family and I have visited quite a few times and just love it,and the people of course.
Trish x
10-09-2012, 10:59 AM   #36
723crossroads
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hi Crohns Chicago,thanks for your nice message,I am going to start Transcendental Meditation this Saturday,am looking forward to this type of meditation,have been doing lots of CD Meditation and Hypnotherapy which is good,but I think TM medication goes far deeper,and I think that it will certainly bring my anxiety/Stress levels under control.The oly other time my stress levels are under control is when I visit the US,oh how I love your country,My family and I have visited quite a few times and just love it,and the people of course.
Trish x
Dear Trish22, I have a friend who started playing sround with Tm and a spirit involved started to haunt her and make her life miserable. When you are meditating on anything other than the one true God, you are inviting evil spirits to enter into you and your life. You need to research this and read about people who had to be delivered from evil spirits because of TM. I hope you will take my advice...
10-09-2012, 12:04 PM   #37
Spooky1
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I have always had issues with my eyes. I get a great deal of pain in my right eye. That eye also has like a crescent of a gold moon rising from the bottom and moves across the eye, it is also the one that has night blindness.

I often have bloodshot patches and very dry eyes described as having tiny ulcers all over the whites. Moreover, both eyes have a thick top layer over the whites which comes away on occasions. This is all, i am lead to believe, to do with crohns.

One more thing, does anyone have badly burning eyes when they cry? i mean to the point whereby they need running under the cold tap. i just can't cry its far too painful but no optician or specialist understands.
10-09-2012, 12:23 PM   #38
Trish22
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Thanks for that 723 crossroads,I am quite level minded,and have gone into it and have some friends that practice it,I am not doing it in depth,just for stress reduction really,simply if I find it don't work,I won't do it,I shall go back to either my CD meditation or Buddhist meditation.
Spooky 1
I would really go and see some ophthalmologist at the hospital,if I were you,although my eyes seem a lot better now than at the week end just gone,they have found out today I have pressure at the back of my infected eye,He asked if anyone suffered with Glaucoma in the family,I said no,asked if I had got that,being quite alarmed,he said no,but my pressure was up,he seemed to think it may be the infection and the steroids drops that have caused it,I really hope so,am really frightened at the thought of glaucoma,although he did say no I had not. Have to go back next Tuesday.
Over riding my story whati am trying to say is,I could not feel any pressure behind my eye,so none of us really know what is going on,so really go and get checked out,itis quite scary what can happen to us Crohnies with suppressed immune systems.
10-09-2012, 09:53 PM   #39
annawato
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@ trish, Tm meditation, hypnotherapy etc are all fantastic adjuncts to dealing with stress so good on you. And maybe you'll get a good and helpful spirit to help you!
@crohn's chicago, I've been using an electronic cigarette to stop smoking. It delivers nicotine and water vapour and is really helpful for those difficult times. Doesn't have any smell and none of the bad stuff so doesn't hurt us or offend anyone else. Of course it sounds like you'r over the worst of it but just though I'd mention it in case.
@spooky No burning eyes when I cry so cant help except to send a hug.
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you name it, i've tried and failed it! currently on- waiting to see whats new and reducing pred
temp. ileostomy reversed feb 2011, new ileostomy, nov 2012
4 resections plus removal of adhesions etc, recurrent intestinal abscesses
lyme disease, depression, sacroileitis, chronic pain and......Crohn's..........
10-10-2012, 02:11 AM   #40
Trish22
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Hi Anna,hope you do to mind me asking,I noticed you have had 4 bowel resections,did you find when you came round you were in a lot of pain,that's the only thing that sticks in my mind,each time when I have opened my eyes after surgery,the pain is like nothing on this earth,I have tried to explain to theDrs/gastros,they keep saying but we give you lots of pain /sedation drugs,and drugs you can administer yourself via a watch system on your wrist,well them just do not work for my pain,I can cope with the after pains a few days later,it is just that initial pain when you leave the operating theatre.
Any advice
10-10-2012, 05:08 AM   #41
Spooky1
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Trish, i scream the place down for four days and nights. the pain meds keep me awake24 hours a day and they just don't work. feels like i have had an axe struck into my torso! does remind me of what medieval warfare would have been like, or being hung, strung, drawn and quartered. I identify totally.
10-10-2012, 07:44 AM   #42
annawato
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Yes the first two days are pretty awful. I'm ordinarily on pretty hefty painkillers so the last two times the anaesthetists give me a ketamine infusion and that helps a lot. The first time I had this it ran out about 4 hrs post op and the nurses were busy with an emergency so I had absolutely no pain relief for over 6 hours - absolutely horrendous!!!!!!! One of the relief nurses actually got fired because on top of it he was yelling at me not to push the pca button and set the alarm off - he didn't even know it went off automatically and I had nothing to do with it. Anyway I know if I can just get through that first 36 -48 hours it improves heaps, still sore but bearable. I'd definitely tell them that you don't find the pain relief adequate post op. There is no reason for them to have you in more pain than you can stand and it is even considered to be bad for you because it stresses the body delaying healing, and it stops you moving which delays improvement too. make sure you talk to your surgeon and anaesthetist before the operation so they can something stronger in place for you. Other than that it is just a waiting game. Just keep thinking every hour i'm getting better and better and tomorrow I'll be better again. Sorry not really helpful advice I know. I just found out today I have to have another operation with another ileostomy and the first thing i thought of was post op pain. Its just Not fair is it?
10-10-2012, 07:47 AM   #43
annawato
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Spooky, i also get no sedation from pain meds, even the ketamine so its just lying there hour after hour waiting for the worst to past. Medieval, definitely!
10-10-2012, 08:46 AM   #44
Trish22
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If this surgery does come sooner than later,I will make sure I ask for a meeting with both surgeon and anaesthetist before deciding on the op,I have never met ananeathatist before deciding on an op,have you,they usually turn upa couple of hours pre op here in the UK.
And also tell you all the possible things that could go wrong!!!!!i can never get my head around this,persuade you to have an op,saying all the benefits,then an hour before the op,aneathatist and assistant comes round tosign form stating that you could die of heart failure etc and all the things that can wrong,iwas in floods of tears the last ime,andnearlynever went thru with it,I thought I was not going to wake up,it was dreadful.
10-10-2012, 09:35 AM   #45
annawato
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yes its really odd how you only see the anaethetist at the very last minute. Its the same here. As if you're likely to back out as the are wheeling you in to the operating theatre! I've just learnt now to make sure they understand my pain needs beforehand so I don't get caught out. I guess they have to tell you all the bad things that could happen but these are a very small minority so don't worry too much about what could happen - the benefits of the surgery will be greater than possible side effects. Still scary though.
11-08-2012, 08:56 PM   #46
wildbill_52280
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check your dietary intake of vitamin e, vitamin a(carotenoids, not retinol), iron intake(only iron from meat really counts, and protien intake. iron and vitamin a have relationships with each other.

if those are fine then, perhaps its something else, but these could be the first place to check for simple causes of dry eyes.
11-08-2012, 09:47 PM   #47
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If you have red eye that looks like pink eye... H
It might be iritis. I know it sounds strange but I had iritis flare my eye and the doctor told me was related to crohns. Are you having flares?
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5-ASA- failed
Imuran-failed with a strange reaction-paralysis
Remicade- failed with infusion reaction.
Mesalamine-another failure
Entecourt - fail- no help.
currently on Methotrexate 25mg and Humira combo.
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Hyclosomine,Ultram,vicoden for pain as needed
Extended right Hemocolectomy 5/24/13 Univ.Of Chicago
11/7/13- small crohns ulcer at surgical site (active).
01-17-2013, 11:55 AM   #48
scottchopchop
 
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You guys should consider a couple things:

1- Try LDA Immunotherapy
http://www.drshrader.com/ProblemsWeTreat.htm

There is a thread in this forum about LDA including links to find a physician close to you that uses LDA.
http://www.crohnsforum.com/showthread.php?t=45977

Dr. Wycoff does a nice little video on LDA Immunotherapy and mentions IBS and Crohn's specifically at around 4:30
http://www.youtube.com/watch?v=_hdwRQj1C4A


2- Also consider that 75% of people with severe allergies or auto-immune disorders also have problems with TMJ. And most people don't know it but TMJ can cause really horrible symptoms like brain fog and chronic fatigue, screwy vision, balance issues, etc. The reactions that the body is having cause the muscles in your shoulders neck, jaw and head to contract and this causes the TMJ and that presses on the trigeminal nerve and that causes all kinds of trouble including stopping signals to the brain that tell the brain to produce neurotransmitters and if you are low on these neurotransmitters then horrible symptoms are the result.

Dr. Klemons is likely the world's foremost expert on this topic. He is located in NJ, but he has a network of jaw specialists that are like minded, and he can refer you to one close to you.
http://www.headaches.com/
01-17-2013, 04:57 PM   #49
Spooky1
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this looks so interesting, but i can't really go for that treatment, nor can i afford it. i bet my gi knows nothing on these subjects. i suffer so badly in the jaw and neck. interesting info. many thanks will try and find british practitioners.
01-17-2013, 05:26 PM   #50
scottchopchop
 
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Yes, it is likely that your GI doc will be clueless, like most physicians tend to be....We want them to be like House or Sherlock Holmes...to be interested in a mystery and to solve it. But 99% of them, in my experience, just punch the clock and have no intellectual curiosity. After 18 specialist with no clue, I decided that I was in charge and I would use them like tools in my belt.

Now, Dr Klemons at www.headaches.com who I mentioned above is one of the good ones. He is a dentist who specializes in the jaw. He is known worldwide in this field, and is considered the world's foremost expert, and very likely has a like minded colleague in the UK.

I would call his office and ask. I was able to speak with him directly on the phone and he referred me to one of his like minded colleagues on the other side of the USA closer to myself.

I might warn you guys that not all TMJ doctors are good. You really should contact Dr Klemons for a referral.

If you happen to be in the middle of the USA, then you can see or call:
Dr Robert Talley
Craniofacial Pain, TMJ and Sleep of Oklahoma
www.tmj-pain.com
448 36th Ave. N.W., Suite 103
Norman, Oklahoma 73072
Phone: 405.321.8030

You might also like to read this book...again by a dentist /jaw specialist ...it explains the issue and also provides a number of self therapy options
http://www.amazon.com/gp/offer-listi...condition=used

The basic therapy from one of these dentist jaw specialists, is to give you a set of two mouthpieces, one on top and one on bottom. These mouthpieces only allow your front teeth to touch. Your brain won't press hard on those front teeth for fear of breaking them, and so your brain tells those jaw/neck/face muscles to relax. It takes a couple weeks for your brain and muscles to fully respond, but the relief is almost immediate.

One last thing....I mentioned LDA Immunotherapy above...in the UK it is known as EPD and I believe it is available on the NHS
http://www.foodsmatter.com/allergy_i...icles/epd.html

Taking LDA (EPD) will dramatically loosen your jaw / neck /face and upper back muscles...or at least that has been my personal experience.

My doctor likes to use LDA Immunotherapy (EPD) and LDN (low dose naltrexone) together.

I take both LDA Immunotherapy (EPD) and LDN (low dose naltrexone).

The LDA immediately gave me tremendous relief from pain in my back, neck, jaw, and face too. And then a couple months after beginning LDA (EPD), I started LDN (low dose naltrexone) and this again loosened all those muscles and markedly reduced my pain.

This loosening not only almost totally eliminated pain, but it also dramatically improved my vision and balance. The theory is that the tight muscles in your neck/jaw/face pull on tiny little muscles inside your ear and these control your balance as well as some part of your vision. TMJ is well known for also causing eye ball and face pain.
02-19-2013, 01:22 AM   #51
PollyH
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but he said I had Herpes Simplex in my eye and also starting in my right eye,has he said all sensitivity had gone from right eye,although that one seemed ok,he reckons that it is because I am on Immunosuppressants azathioprine.i asked him if I could lose my sight through it,Is answer was as long as I continue to take antiviral a for the rest of my life,it should be ok.I was mortified!!!!!
Lysine should be helpful here. However, you have to use a lot, perhaps a tablespoon a day for a month or so. Lysine suppresses the growth of Herpes Simplex. The good news is that taking lysine might also help you suppress the growth of some of the herpes viruses in your gut. (They often find the herpes family viruses of Epstein Barr, CMV, and HHV-6 in the intestines of those with IBD.) The Lysine can suppress the growth of these viruses, but by itself, it isn't going be able to totally eradicate the viruses. So, even if you feel a lot better after a month or so, you may have to still use at least some lysine on a continuing basis, just to make sure the viruses don't get the upper hand again. Calcium, selenium and vitamin C will also help keep viruses in check.

To keep herpes viruses in check, you need to keep a high lysine to arginine ratio in the foods you eat. Look up the amounts of arginine and lysine in various foods. Avoid foods high in arginine, like nuts. Use more of the foods high in lysine, like yogurt, if you can tolerate that.

CMV is a known inducer of uveitis / glaucoma. You definitely want to keep that virus in check. If you are interested in more supplements that keep viruses in check, you might want to watch Dr. Tent's video called "The Exploding Autoimmune Epidemic."
02-19-2013, 01:54 AM   #52
PollyH
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I noticed that a few people mentioned cigarettes. Smoking is associated with increased risk of glaucoma. One reason may be the cadmium in the cigarettes. Cadmium is associated with glaucoma.

H. pylori infection is also associated with glaucoma. Possibly H. pylori sets you up for the glaucoma / eye problems because of all the nutrients it eliminates, like phospholipids and vitamin B12.

H. pylori infections are very difficult to detect using the standard tests if there is a problem with dysbiosis. (Dysbiosis means the wrong bacteria, yeast, viruses and parasites are inhabiting the intestines.) Since there is a problem with the standard breath test for H. pylori, one should look for markers of H. pylori infection, like possible low manganese, high cadmium, low copper, low arginine, low iron, low B12, low carnitine and low phospholipids.

Here is an amazing but long lecture by Dr. Amy Yasko on how to diagnose and eradicate H. pylori infections. http://www.dramyyasko.com/resources/...to-the-puzzle/
02-19-2013, 11:29 AM   #53
Trish22
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I am a non smoker and also was eradicated Of H Pylori some 20 years ago so all good there.

Trish
02-19-2013, 12:06 PM   #54
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
The LDA Immunotherapy injection has several bacterial "mixes" , klebsiella, and strep and others too...LDA turns off the bodies reactions to those bacteria....this has been a miracle for me.
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