Share Facebook


View Poll Results: Have you gained/lost weight with Crohns?
Lost 28 38.89%
Gained 12 16.67%
stayed the same 8 11.11%
up/down depending on meds 24 33.33%
Voters: 72. You may not vote on this poll

07-20-2012, 09:12 PM   #1
Stacey
Member
 
Stacey's Avatar
 
Join Date: Jul 2012
Location: christchurch, New Zealand
Weight!

Just wanting to know if you have lost/gained weight after being diagnosed? Do you think certain medication has an effect on either way?
07-20-2012, 09:22 PM   #2
hlmurray99
 
Join Date: Sep 2011
Location: Medford lakes, New Jersey
Lost weight initially, gained it back and then some with entocort. Losing it now that I'm off entocort but not yet where I started. Having a bowel resection in 10 days so i'm assuming that I'll end up losing again, but I guess that remains to be seen.
07-20-2012, 09:23 PM   #3
Z_Ghost
Senior Member
 
Z_Ghost's Avatar
 
Join Date: Jul 2012
Location: Arlington, Texas

My Support Groups:
For the first 4 years that the Chron's was active and I got a flair I would stop eating and would lose a lot of weight, I lost 15 lbs in 1 week one time.
Now even with a bad flair I am about 30 lbs over what I want to be.
It's just seems to change how it effects me as time goes on.
Humira seems to be working and I am going to start working out a bit so maybe I can drop a few lbs.
07-21-2012, 01:21 AM   #4
Kiwi-Fiona
 
Join Date: Feb 2012
Location: Logan, Queensland, Australia
Hi for me I lost a lot of weight, half of my body weight, i was 78 kgs and i went down to 44 kgs, right now im stitting at 49 kgs
__________________
Diagnoised with Crohns on the 24th April 2012,

Surgery: Right Hemicolectomy 2nd July 2012

Mercaptopurine 50 mg Daily

Pred 50 mg Daily

Nexium 40 mg Daily

B12 Injections every 3 months

Calcium

Vitamin D OsteVit-D

Swiss Womens Multivitamin

Pro-biotics
07-21-2012, 01:34 AM   #5
Jennifer
Adminstrator
 
Jennifer's Avatar
I only lose weight while in a flare. Only med that made me gain weight was Prednisone but it was all water weight and I lost it after stopping it.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
07-21-2012, 06:40 AM   #6
Stacey
Member
 
Stacey's Avatar
 
Join Date: Jul 2012
Location: christchurch, New Zealand
Thanks for your replies, i dont really understand all the different meds, but i have not been on anything in 9yrs ?(my choice not too) and apparently mine is severely active at mo... i dont seem to lose weight but gain... About to start Azathioprine.. and hoping i dont gain.. Just have recently (4months) gave up smoking after 15yrs and have gained alot. Really wanting to lose and would be nice if this disease i have is good for something..lol
I think i need to learn more about foods as i still eat what ever i feel, even if it gives me pains which i still dont know what ones do.
07-21-2012, 04:02 PM   #7
Z_Ghost
Senior Member
 
Z_Ghost's Avatar
 
Join Date: Jul 2012
Location: Arlington, Texas

My Support Groups:
Finding the foods that cause you problems is one thing that will help a lot.
I had to give up.
Raw Veggies
Seeds and Nuts
Corn-Popcorn
Spicy foods
Hot sauces of any kind
chocolates
Dairy
And a lot more, kind of a pain to keep up with all of them, then it's a real pain to eat something bad.
A food diary will help.
07-21-2012, 04:31 PM   #8
Cross-stitch gal
Moderator
 
Cross-stitch gal's Avatar
 
Join Date: Dec 2011
Location: Vancouver, Washington

My Support Groups:
I loose weight mostly while in a flare. But, prednisone helps me gain it back. When I'm not flaring I normally stay within about the same weight.
__________________
Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
07-21-2012, 05:03 PM   #9
Stacey
Member
 
Stacey's Avatar
 
Join Date: Jul 2012
Location: christchurch, New Zealand
My GI wanted to put me on prednisone along side with Aza but i refused to go on prednisone because of its weight gain gift it has!

Still working out the food side.. i could eat 1 food lots of times and be fine then eat it another time and it effects me so not sure what that is.
07-21-2012, 05:38 PM   #10
crazycanuck
Senior Member
 
crazycanuck's Avatar
 
Join Date: Dec 2009
Location: Langley, B.C.
While being diagnosed at 16 I went from 145 lbs to 132. Since starting remicade I went from 130-135 to now weighing 175
__________________



Diagnosed October 2007
Currently on Remicade 400mg (October 2010)

Tried Budesonide (april 2010-july 2010) & Asacol (october 2007- dec 2009) & Imuran (Dec 2009-Dec 2011)
07-21-2012, 05:39 PM   #11
Z_Ghost
Senior Member
 
Z_Ghost's Avatar
 
Join Date: Jul 2012
Location: Arlington, Texas

My Support Groups:

Still working out the food side.. i could eat 1 food lots of times and be fine then eat it another time and it effects me so not sure what that is.
Had that happen a lot at one time and the funny thing is if I waited a month or so I could eat that same food again without any problems.
07-21-2012, 09:54 PM   #12
tracycat79
Member
 
tracycat79's Avatar
 
Join Date: Jun 2012
Location: Raleigh, North Carolina
My GI wanted to put me on prednisone along side with Aza but i refused to go on prednisone because of its weight gain gift it has!

Still working out the food side.. i could eat 1 food lots of times and be fine then eat it another time and it effects me so not sure what that is.
I have the same problem with the food situation. I can eat something several times and it doesn't bother my stomach. Then randomly it will. Started a food diary to see if it helps.
07-22-2012, 12:13 AM   #13
EthanPSU
Senior Member
 
EthanPSU's Avatar
 
Join Date: Jul 2010
Location: Pennsylvania

My Support Groups:
Always down during a flare. Currently going up up up. Couldn't be happier
07-22-2012, 02:30 AM   #14
Rebecca85
Senior Member
 
Rebecca85's Avatar
 
Join Date: Apr 2010
Location: Nottingham, UK
In the months leading up to my first big flare, I don't remember weighing myself but I do recall buying clothes in a size smaller than usual (size 8 for the first time since puberty). I then lost weight rapidly (a couple of kilos a week) during the big flare, mainly due to vomiting my meals up!

Since being on meds my weight has gradually but steadily increased (put on a kilo every couple of months).

And I never have fit back into those size 8 jeans I bought!

Oh- and in the last few months I have really packed on the weight thank goodness for elastic waistbands!
__________________
Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
08-09-2012, 10:46 AM   #15
HorseLover!!
Senior Member
 
HorseLover!!'s Avatar
 
Join Date: Dec 2011
Location: Penryn, Cornwall UK

My Support Groups:
It depends on what meds I am on at the minute i'm on aza and I seem to be losing weight and not putting it on.
08-09-2012, 03:55 PM   #16
shamrock15
Forum Monitor
 
Join Date: Apr 2011
Location: ottawa, Ontario

My Support Groups:
Not sure if mine are meds dependant.
Started out at 175 pounds as a teen.
Dropped to 140 before diagnosis. Some rebound when on steriods initially, gradually lost its effect.
Couldn't go over 150 pounds for the next 15 years, and on one hospital stay I dropped below 122 pounds (at the start of the hospital stay).
About 4 years ago, got back to about 155 reguarly, not apparently related to meds.
Currently high 160's, again not apparently due to meds, and it seems to be mostly healthy muscle. May be due to changes in sleep patterns more than anything else.
Reply

Thread Tools


All times are GMT -5. The time now is 12:04 PM.
Copyright 2006-2017 Crohnsforum.com