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Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!


 
03-28-2013, 03:32 PM   #1201
Tesscorm
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Stephen was just a bit older when he went, I think maybe 9 or 10. This tournament is only for the younger age groups. Stephen's team ended up winning the tournament for their level and their final game was played in the Scotia Centre/Corel Centre (think that's what its called?? - where the Senators play), they used the Ottawa Senators change room, their bench, they had the lights, buzzer, etc. during the game just like a real NHL game (only thing missing were the fans! ).

Something I don't think we'll ever forget!

One day, I'll have to skate the canal too!!!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
03-28-2013, 07:50 PM   #1202
CarolinAlaska
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Back to your discussion on parent-teacher meetings. Our school assigns times - each parent gets 15 minutes with their kids' teachers. We have 3 kids there (It is K-12th grade!), but we had 4 there at the beginning of the year. Anyway, they always scheduled our conferences back to back. We'd have 15 minutes then a bell would ring and we'd be expected to be at the next teacher's room then switch again, etc. If one parent goes long in front of you, your time gets cut off. If you go long, then your next child's teacher will be waiting and you'll lose out on that conference. Needless to say, I didn't find it very helpful. It was too rushed and not much productive info ever passed. I was pretty frustrated until my husband told me not to worry because if there was a problem we could schedule a meeting with that child's teacher any time. Starting in 7th grade the parents meet with the student and all their teachers in a round table discussion. These are okay. They are student-led.
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
03-28-2013, 07:59 PM   #1203
Tesscorm
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Ours were similar, Carol... 15 minutes and the buzzer would ring...

Beaver Tail recipe

Pizza dough
3 tbsp sunflower oil or as needed
1/2 cup melted butter
1/2 cup white sugar
1/4 cup cinnamon

Tear of a small portion of pizza dough (depending on size you'd like). Roll out thin in a beaver tail shape. Repeat for as many tails as you'd like, lay flattened beaver tails on floured tray.

Combine sugar and cinnamon in shallow wide dish.

In skillet, heat oil. Once hot, add a 'beaver tail' and brown. When brown on the bottom side, flip and brown the other side.

Remove beaver tail and drain on layered paper towels. While still hot, brush with butter and dip one side in sugar/cinnamon mixture.

Not sure this recipe is clean, healthy or acceptable under any diet! But... Enjoy!
03-28-2013, 08:04 PM   #1204
CarolinAlaska
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Ours were similar, Carol... 15 minutes and the buzzer would ring...

Beaver Tail recipe

Pizza dough
3 tbsp sunflower oil or as needed
1/2 cup melted butter
1/2 cup white sugar
1/4 cup cinnamon

Tear of a small portion of pizza dough (depending on size you'd like). Roll out thin in a beaver tail shape. Repeat for as many tails as you'd like, lay flattened beaver tails on floured tray.

Combine sugar and cinnamon in shallow wide dish.

In skillet, heat oil. Once hot, add a 'beaver tail' and brown. When brown on the bottom side, flip and brown the other side.

Remove beaver tail and drain on layered paper towels. While still hot, brush with butter and dip one side in sugar/cinnamon mixture.

Not sure this recipe is clean, healthy or acceptable under any diet! But... Enjoy!
Glad to hear these are not made of real beavers' tails! They sound tastey! Maybe we'll try a gluten-free variety...
03-28-2013, 08:18 PM   #1205
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They are yummy! But rarely have them as they are just sooo not healthy!
03-28-2013, 08:21 PM   #1206
CarolinAlaska
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Nothing that good ever is!
03-28-2013, 08:37 PM   #1207
S mom
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Mmmmm, just chiming in for beaver tails! I never thought of making them - thankfully -otherwise the kids would be requesting one daily and that wouldn't be good
03-28-2013, 08:44 PM   #1208
Tesscorm
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I've actually never made them myself... I went to a cooking demo/class once and they made the beaver tails using this recipe, so I know the recipe is good... but, when I've had beaver tails, it's been at Niagara Falls or Wonderland (amusement park), etc. Luckily, they're not available at every street corner!
03-28-2013, 08:49 PM   #1209
S mom
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Ottawa and Banff National Park for us - fortunately both a far hike away from us!!
03-28-2013, 10:58 PM   #1210
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03-28-2013, 11:00 PM   #1211
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Closely followed by the...
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03-29-2013, 12:33 AM   #1212
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Now this is a beaver tail!!! They are a ski hill treat for us.
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Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
03-29-2013, 04:39 AM   #1213
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If fried dough, butter and sugar wasn't bad enough^^^. Let's add chocolate frosting and Reese's Pieces!! I'm glad someone explained what beaver tails are though
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
03-29-2013, 12:14 PM   #1214
izzi'smom
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Bahaha at the chart, Dusty! Stealing! Dex, I think you were mia for the discussion regarding local foods...it was enlightening!
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-29-2013, 01:11 PM   #1215
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Oh my!!! I've never seen a beaver tail like that!!!

Dusty, love those!!! I think the winebulance is in front of Crohnsinct's house!

03-29-2013, 04:08 PM   #1216
CarolinAlaska
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I love this thread!
03-29-2013, 05:32 PM   #1217
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Yeah! the boys will be home in a couple of hours! They have spent the week with their grandparents volunteering at an animal sanctuary in Utah. The first couple of days was great, got so much stuff done, stayed in my jammies all day one day, but with hubby at work and the boys being gone it was very quiet around here
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-29-2013, 06:39 PM   #1218
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Sounds like the boys will come home with plenty of stories, an animal sanctuary, how cool!

I've been productive the last few days as well, C has been enjoying hanging out with friends and now spring break starts so he is headed out of town with friends and I have a clean house so I plan on doing as little as possible!!
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Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
03-29-2013, 06:49 PM   #1219
crohnsinct
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Bahaha the winebulance IS my house!
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
03-30-2013, 06:26 AM   #1220
Dexky
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Bahaha at the chart, Dusty! Stealing! Dex, I think you were mia for the discussion regarding local foods...it was enlightening!
I'm always MIA!! I'm never IA!! It's my MO!! KWIM!!
03-30-2013, 06:44 AM   #1221
izzi'smom
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^^Wow, Dex, you've some so far! lol!
03-30-2013, 04:53 PM   #1222
Dexky
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Ty!!
03-30-2013, 05:44 PM   #1223
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This may or may not have been my breakfast this morning...
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03-30-2013, 05:46 PM   #1224
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My beaver tail spot.
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03-30-2013, 05:47 PM   #1225
DustyKat
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^^^^ x2!
03-30-2013, 09:10 PM   #1226
CarolinAlaska
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I gotta get a booth like that and start a trend here in AK! This could go over big! Shh! Don't tell anyone! I don't want anyone to do it before I do!
03-31-2013, 02:58 PM   #1227
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Looks AMAZING Twiggy!! x
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Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!
03-31-2013, 06:47 PM   #1228
Dexky
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Looks like those WA state cappucino huts that are literally everywhere!!
04-02-2013, 05:57 AM   #1229
DustyKat
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LMFAO! Well I never...



...I can hear those banjos duelling Cletus Bo Dexky!
04-02-2013, 06:06 AM   #1230
Dexky
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Shoot, I ghost writ that there book! My cuzn Bo can't do no readn and ritin'!
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