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Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!


 
06-28-2013, 06:40 PM   #1471
crohnsinct
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Sorry guys...feeling very defeated tonight and still at swim practice so can't drink so you are it!

Reading all that nickel stuff got me thinking wonder if nickel causes psoriasis. Goggle and BAM! All this crap about low nickel diet curing people's psoriasis...all antidotal but still. High nickel diet is all the stuff O eats...plant foods, soy, seeds, veggies, beans, nuts. But her IBD and overall health is going so well....I think.

Then C's cough and Jarogers and the MTX causing the deep cough and having to pull her son off. Just when you accept the risks some stupid complication.

Just feeling like damned if we do or damned if we don't!

Well, maybe just looking for a reason to drink some wine when I get home.
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
06-28-2013, 06:54 PM   #1472
DustyKat
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Oh man cic, I so hear you mate.

You think you finally have reached some level of acceptance and risk taking then BAM...someone has pulled the rug out from under you! It sucks. Not to mention those of you dealing with more than one disease...trying to juggle which disease is given more credence at any given time.

I am even feeling a little fraught at the fact that we adding Pentasa to Matt's meds! Pentasa! Little inoffensive 5ASA that it is, a small dose, just as a precaution. How pathetic am I!

Now shove over woman! You will have to fight me for the bottle! Nah, I'll share with me Crohnie mates.

Dusty. xxx
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06-28-2013, 07:24 PM   #1473
Jmrogers4
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I'll have a couple for you CIC, heading out to a comedy club with an old friend and her hubby is driving us. Jack is at camp and James is staying the night at grandmas.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
06-28-2013, 07:33 PM   #1474
crohnsinct
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NICE JOB JACQUI! Got rid of the kids and got a designated driver. You go girl!
06-28-2013, 08:17 PM   #1475
my little penguin
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We just go with the scariest disease at the time .
Those meds rule all else takes a back seat.
Which would explain the three dermos we went through
Since two wanted to "play" with his asthma meds to fix his skin.
I don't think so....

It does shift. Though
Tightrope walk all the time .
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06-28-2013, 08:24 PM   #1476
Tesscorm
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When I am having a down moment or feeling panicked, I'm so grateful to be able to come here and find, not only friends, but camaraderie with friends who truly understand and care!

This disease sucks in so many ways... the meds, the symptoms, the rollercoaster, etc., etc., having this outlet here is invaluable!

Dusty - I think ANY change, even one as mild as adding pentasa, is a scary reminder that things can change and that's always unbalancing (to say the least! ).
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
06-28-2013, 08:31 PM   #1477
DustyKat
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Thanks Tess.

This place is just the best ay? Just like a big 'ole comfy armchair...pure bliss.

Dusty.
06-28-2013, 08:35 PM   #1478
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Just like a big 'ole comfy armchair...pure bliss.
That's the perfect way to describe it!!!
06-29-2013, 05:14 AM   #1479
Dexky
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Just feeling like damned if we do or damned if we don't!
I wonder how many times that sentence or some derivative has been used on this forum Drinks all around!!
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
07-02-2013, 06:53 AM   #1480
Catherine
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Men!

Husband went to the doctors today, with the instructions to get a referral to a specialist for his type 2 diabetes. Dr told him he didn't need a specialist because sugar test was 8.2. He got sorts of diabetes complications eg eyes, feet, plus others.

My husband is quite a number years older that me and what him to be as healthy as he can be. The chemist advice was to get a specialist opinion as he on a unusual combination of medications for the diabetes.

Wouldn't give him copy of the MRI of his shoulder. This is the same clinic which miss read Sarah ultrasound.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)

Last edited by Catherine; 07-03-2013 at 05:57 AM.
07-02-2013, 07:32 AM   #1481
Tesscorm
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Drives you crazy, eh? Sometimes it feels like having a husband is just like having another child (sorry Dexky , but I did say 'sometimes' ). And exactly why I would NEVER let hubby take Stephen to GI apptmt!

But, I hope you can convince your husband to go back/call and again request a referral to a specialist. My dad has diabetes and, as you're obviously aware, if not properly taken care of, it can cause lots of complications; it was was the catalyst for all the problems he had over the winter (and is STILL being treated for)!
07-02-2013, 07:52 AM   #1482
Catherine
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This gp told husband you only need a specialist if you need insulin injections.

My husband has already has surgery on both eyes for bleeding at the back of his eyes.

They are going to threat the shoulder with corticosteroid injection at a local hospital.

I have told him that I want to attend his next appointment.
07-02-2013, 07:58 AM   #1483
Tesscorm
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I think that's a good idea! Everytime my mom would suggest going to the doctor with my dad, he'd always say he was fine, he could handle it, etc., etc.... until the problems began! My dad now says he would never be able to handle all the apptmts, meds, etc. without my mom coordinating it all!
07-02-2013, 10:32 AM   #1484
crohnsinct
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ERGH! Catherine, are you married to my husband?! Also a diabetic with complications whose GP insists he has it all under control and GP can handle his case...Really?! Cuz the blood sugar numbers, feet, legs and weight I am looking at are way outta control.

Funny Tesscorm...another child..
07-02-2013, 10:41 AM   #1485
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They even give the same answers as kids.... Yes, I knoooowww, okay, okay, I'm fine, don't worry, I'll call/I forgot, etc., etc.
07-02-2013, 07:22 PM   #1486
Dexky
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We don't need no stinking doctors!!!!
07-02-2013, 08:18 PM   #1487
Tesscorm
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Hmmm, where have I heard that before???
07-02-2013, 09:49 PM   #1488
crohnsinct
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We don't need no stinking doctors!!!!
or directions!
07-02-2013, 10:03 PM   #1489
Tesscorm
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LMFAO!!!!
07-03-2013, 05:22 AM   #1490
Dexky
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or directions!
Doesn't everyone have GPS now?? I always use the female voice setting...just so I can remember what it was like before.....turn here, turn there, watch where you're going, you do see that truck don't you....nag, nag, nag!!!!
07-03-2013, 07:24 AM   #1491
crohnsinct
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OMG! LMFAO!

I am glad it is the same in every other marriage!
07-03-2013, 07:25 AM   #1492
crohnsinct
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BTW - I use the male voice with the Italian accent!
07-04-2013, 08:31 AM   #1493
crohnsinct
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Hey y'all. Leaving for our mission trip Sunday so won't be around.

Yes, I am cooking again this year for 150 mission workers. 3 meals a day for 6 days. Ugh! This year will be so much harder than last. IDK if I can look at those tubes o'meat or hockey puck frozen sausages much less eat them. Not a drop of alcohol all week either!

Keep it together while I am gone. Keep your diets clean and the forum cleaner!

Kim if you make your big announcement while I am gone you will pay!

All of you in hospital and such I will be praying for you.

There will be lots and lots of prayer all week. If anyone wants us to pray specifically for them pm me and I will add you to the list. Non IBD issues welcome as well!
07-04-2013, 08:36 AM   #1494
Farmwife
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Where ya going.

Keep the forum clean...what do you think I've been trying to do????
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
07-04-2013, 08:43 AM   #1495
Tesscorm
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tubes o'meat or hockey puck frozen sausages
You'll have them all going vegan in no time!
07-04-2013, 08:57 AM   #1496
crohnsinct
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FW: Newark NY...well at least you have one less loose canon to have to watch

Tess: I like that! Maybe that is my mission? I am sure all those teenagers would love to learn about the virtues of plant eating. They have just been waiting for someone to come along and throw out their fruit loops, French fries tacos and oreos and I am just the mom for the job! O will be so popular!
07-04-2013, 10:47 AM   #1497
Dexky
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FW: Newark NY...well at least you have one less loose canon to have to watch
Canon...is that just your wry sense of humor coming through? I live by a relaxed set of canons as well
07-04-2013, 07:44 PM   #1498
DustyKat
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Have fun cic and cook up a storm!

I'll keep an eye on things! The forum will be spick and span with me at the helm!

St Dusty of Oz.
07-04-2013, 09:02 PM   #1499
Susan2
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Crohn's Disease - symptoms since c1955, diagnosed early 1970s. On Prednisolone until...
Total Proctocolectomy in 2000.
Ileostomy that behaves most of the time
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07-04-2013, 09:16 PM   #1500
DustyKat
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^^^^Hmmmmm, that seems a little unclean. Perhaps I should delete it?

St Dusty of Oz.
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