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Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!


 
07-04-2013, 09:18 PM   #1501
Tesscorm
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Clearly a warped sense of 'clean'!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
07-04-2013, 09:21 PM   #1502
DustyKat
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Hmph! Looks like the disrespectful cloth will get a work out today!
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Mum of 2 kids with Crohn's.
07-05-2013, 02:41 AM   #1503
DustyKat
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For my bro Dexky.
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07-05-2013, 04:48 AM   #1504
DustyKat
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This is an oldie but this guy is brilliant!

07-05-2013, 05:27 AM   #1505
Dexky
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Wow!! Louis was brilliant wasn't he??
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
07-05-2013, 05:46 AM   #1506
Crohn's gal since 1989
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OMG, Wisconsin-ites use 'eh' too!!! Farmwife - they even have a definition for it!

Farmwife - great idea for this thread!! Your speech left me a blubbering mess!

Dusty - as always, great intro - no one could've said it better!
The difference between Canadians and New Yorkers is that Canadians say,"How's it goin eh?"

New Yorkers say,"Eh how's it goin?"

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Bonnie

Diagnosed 1989
Asacol,Pentasa and Entocort (didn't work in 2005 and didn't work now)
Done with Prednisone 09/07/13
Azathioprine (Imuran)150mg no longer working
Developed allergic reaction to Humira injection!
Currently trying Remicade with Methotrexate
Still trying to get into remission!

Ileocecol resection surgery
September 14th, 2013.
55cm small bowel removed!
07-05-2013, 09:10 AM   #1507
crohnsinct
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1044754_394172687354774_1251490588_n.jpg
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
07-05-2013, 07:47 PM   #1508
Dexky
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I'm neither thanking you nor hugging you for that!
07-05-2013, 07:52 PM   #1509
Tesscorm
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Dexky, I think the correct response would be...
07-05-2013, 07:54 PM   #1510
Dexky
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...nor bowing! All you beaches can kiss my arse! We don't need no stinking doctors, directions nor nagging mothers!!
07-05-2013, 07:59 PM   #1511
Tesscorm
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LMAO... I'd be worried Dex!
07-05-2013, 11:09 PM   #1512
CarolinAlaska
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Doesn't everyone have GPS now?? I always use the female voice setting...just so I can remember what it was like before.....turn here, turn there, watch where you're going, you do see that truck don't you....nag, nag, nag!!!!
This reminds me, when I do my Wii Active 2, I always choose the male coach cause I don't think I could put up with some girl with a perfect body telling me to work harder... ! LOL
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
07-12-2013, 04:30 AM   #1513
DustyKat
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07-12-2013, 07:54 AM   #1514
DustyKat
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Yep, Sarah's cat is possessed.
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07-15-2013, 10:25 AM   #1515
Twiggy930
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We are on holiday in California and this morning we are planning to go to a water slide park. So my husband asks my son, "How's the gut?". Son responds, " A little upset." Husband counters with, "Do you think you can go to the water park? You're not going to be the brown jet are you?". We then all laughed so hard we were crying.
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Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
07-15-2013, 10:50 AM   #1516
Tesscorm
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OMG, that was funny!

Enjoy your vacation!!!
07-15-2013, 12:08 PM   #1517
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That is hysterical! Have an awesome trip!

Dusty,
Yesterday I went to my niece's camp for visiting day. All their counselors are non-American. She has one counselor from Australia. I met a counselor from Ireland, from New Zealand, and from Argentina. It was really cool. Ooh those accents! What a great experience for the kids meeting people from all over the world. I talked to the guy from New Zealand for quite a while. I told him we are hoping to take a trip to Australia in the comming year. We have friends living there for three years so I am hoping we can figure out the finances to go visit.(Plane tickets are so crazy expensive!)
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
07-15-2013, 02:35 PM   #1518
DustyKat
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We don't have an accent, all you guys do!

The kids must love it and the counsellors must have a fab experience too.

Where do your friends live?

Ugh! The cost of flying is outrageous so I hope you get the chance to head out here. Good luck!

Dusty. xxx
07-16-2013, 09:18 AM   #1519
kimmidwife
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Our friends live in Sydney.
07-16-2013, 04:06 PM   #1520
Sascot
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Had a good laugh looking at some of these posts. Twiggy - have a great time!
We are back from our cruise which was unfortunately a bit disappointing. The weather wasn't great - alot of clouds/cold wind, so we couldn't swim much. However it was really good to get away and have someone else cook, clean, etc. I enjoyed Madeira, Tenerife and La Palma.
Now I have done loads of washing - only for my washing machine to break down!! Is it very sad to be excited about a new washing machine?
07-16-2013, 05:32 PM   #1521
Tesscorm
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Sascot, if this is your new washer, I'd be excited too!!


man-laundry.jpg

But, sorry the weather wasn't better on your cruise!
07-16-2013, 05:35 PM   #1522
my little penguin
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I "think" I need a new washer... ASAP
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07-16-2013, 05:50 PM   #1523
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Lol!
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Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!

Last edited by DustyKat; 07-18-2013 at 07:35 AM. Reason: Pic resize
07-16-2013, 05:50 PM   #1524
Niks
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Seriously didn't mean to make it THAT big! lol
07-16-2013, 05:57 PM   #1525
my little penguin
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love it
07-16-2013, 06:34 PM   #1526
Jmrogers4
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Looks like new washers for everyone. I'll take one of those. Everything smells like campfire right now
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
07-16-2013, 08:58 PM   #1527
crohnsinct
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LMAO! I'll take washer. Throw in cook and I have died and gone to heaven!
th.jpg
07-16-2013, 09:04 PM   #1528
Jmrogers4
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Oh can we get a whole set? Washer, cook, cleaner and cabana boy as well to bring me my wine
07-17-2013, 12:50 PM   #1529
crohnsinct
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New game! What strikes fear into an IBD parents heart? I'll start...

This past weekend we were away at a swim meet. In hotel Saturday night drinking tap water like crazy. Next morning go to restaurant across the street and they tell us due to boil water restrictions for the town no tap water, ice, soda etc. WHAT?!

So in addition to praying that the problem occurred after we went to bed and the water she drank was safe I was watching her like a hawk and asking her for full reports every time she went to the bathroom! Who got sick? ME! Not bad though.

BTW - Hotel never notified guests...not even Sunday!
07-17-2013, 09:06 PM   #1530
Crohn's Mom
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Holy (crap) CIC !
Argghh !
I hope you're feeling better by now ?
Stupid hotel not notifying you !
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DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
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Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!
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