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Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!


 
03-13-2015, 11:16 AM   #2341
my little penguin
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For DS he dips his hands
The warm heat from the wax is much more effective than a heating pad
We have tried the heating pad first
I tried it once just to see and the type of heat is very different
Good luck
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03-13-2015, 12:17 PM   #2342
izzi'smom
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Dd asked me repeatedly to go home while we were at my parents this past weekend. I thought it was boredom as her cousins left.
Until we got in the car and she said "I don't know why they bother buying toilet paper. They should just use sandpaper. It feels the same."

I have never laughed so hard. We now carry our own tp lol.
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-13-2015, 01:10 PM   #2343
Farmwife
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Ya, Grace remarked how soft the new paper towels were, all she did was stare and I knew she was thinking...............I wish it was toilet paper.

I'm expecting a roll to go "missing" any day now.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-13-2015, 01:31 PM   #2344
Jmrogers4
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My kids won't go at school because they say the schools buy sandpaper for toilet paper and it's too thin.
They're toilet paper connoisseurs can only use the good stuff.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-13-2015, 02:07 PM   #2345
Maya142
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That's hilarious
I once bought the "wrong" kind of toilet paper (it was extra strong not extra soft). M freaked out!! She still talks about it like it was this major traumatic event in her life .
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
03-13-2015, 02:17 PM   #2346
crohnsinct
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That is hilarious Angie!

Yep! Toilet paper diva's here also but for O it is the sandpaper stuff because everything else makes her psoriasis there really bad. Go figure!
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
03-13-2015, 08:35 PM   #2347
Susan2
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That's another advantage of having an ostomy! You can stop being paranoid about the toilet paper.
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Crohn's Disease - symptoms since c1955, diagnosed early 1970s. On Prednisolone until...
Total Proctocolectomy in 2000.
Ileostomy that behaves most of the time
Currently on no medications, but under constant gaze of very caring GP, with annual blood and other tests.
03-13-2015, 08:57 PM   #2348
izzi'smom
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Lol at the "wrong kind". Cict, she has it there too? As a fellow psoriasis sufferer, ouch!
My mom buys Scott "for her septic" and I like cottonelle but will buy a couple of others-soft with texture is good. She tells me the schools is ok.

Needed-mini tp rolls, single use. Marketed with extra undies, wipes, and poopouri.
03-13-2015, 09:20 PM   #2349
my little penguin
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Charming sells little single packs of tp
I think at the dollar store or similar
My mil got one for DH as a gag for Christmas
03-13-2015, 09:22 PM   #2350
my little penguin
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http://www.safetycentral.com/chtogotrtoti.html

Link for some travel packs of tp
03-13-2015, 10:31 PM   #2351
Susan2
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I was trying to find a source of toilet-tissue-to-go in Australia and found this on Amazon:

Toilet Tissue To Go - 3 pack
Buy new: $9.98
4 Used & new from $2.99


03-13-2015, 10:35 PM   #2352
Jmrogers4
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I was trying to find a source of toilet-tissue-to-go in Australia and found this on Amazon:

Toilet Tissue To Go - 3 pack
Buy new: $9.98
4 Used & new from $2.99


I don't know which I'm more shocked at $10 for a 3 pack of tp or used tp
03-14-2015, 07:42 PM   #2353
izzi'smom
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Wow! $2 for a 50 sheet roll!!
I was only joking about to to go...I removed the core from a partially used .50 roll of cottonelle and tucked it in a Ziploc. I should fancy up the packaging and sell it lol! I like it as is, though-also fits a pair of underwear
03-15-2015, 02:33 AM   #2354
Catherine
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My youngest is off to camp this Thursday.

They have all learnt how to treat snake bite. The group 2 year ago put the knowledge in the practice.

K is under instructions to avoid all contact with grass.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
03-15-2015, 06:52 AM   #2355
CarolinAlaska
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Catherine, I hope your youngest has a great and safe time at camp!
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
03-15-2015, 07:06 AM   #2356
crohnsinct
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Boy Catherine! I wish I owned the wine shop near your house! Your girls are really putting it to you!
03-15-2015, 07:09 AM   #2357
Farmwife
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I hope she has fun Catherine.
03-15-2015, 07:22 AM   #2358
my little penguin
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Hope she enjoys camp
Minus the grass of course
03-15-2015, 01:36 PM   #2359
kimmidwife
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Hope she has an awesome time! And avoids the grass! (Both kinds of course! )
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.

Last edited by kimmidwife; 03-15-2015 at 08:49 PM.
03-19-2015, 03:17 PM   #2360
Mehita
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Fundraising ideas for the Take Steps walk? I was thinking of a garage/rummage sale, but that seems like a lot of work. Any ideas?
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
03-19-2015, 04:23 PM   #2361
crohnsinct
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Quote of the day:

T has a softball tournament (she is a catcher) this weekend but had diarrhea this week. It has since cleared and she said, "Phew! I am glad that nonsense stopped. Being a catcher with diarrhea could be a very messy situation"

Note to self: enroll daughters in charm school.
03-19-2015, 04:30 PM   #2362
crohnsinct
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Mehita: Decorate cans and place them at local businesses.

Near us, local restaurants will donate a portion of their sales to your cause if the patrons bring in a flyer. We pass them out at school, sports teams, churches etc.

We make a lot of money with tag sales...always have a bake sale table with it.

...have you heard of Flocking? Look it up...basically plastic pink flamingos placed on a lawn. The person pays to have them moved to a friends lawn...people can pay to protect their lawn also. My daughter's softball team does this and makes a lot of money and it is fun to flock the people when they aren't home etc..a funny twist would be if you could find plastic toilet bowls...or how about toilet papering a home....what? goes with the theme!

Bounce houses/YMCA's etc. have the kids sell tickets t a night of fun. Y get's a portion of the proceeds and the rest goes to the cause. Sell food/ice cream etc.

I probably have a ton of others but am running out for a few. Will pick the girls' brains for their favorites.
03-19-2015, 04:45 PM   #2363
Mehita
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Out of the blue DS just told me that berry flavored Propel reminds him of Volumen... so he's not going to drink berry Propel anymore.

Mmm, okay.
03-19-2015, 05:32 PM   #2364
Jmrogers4
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Well the nurse told Jack it tasted like blueberries so I guess I can see that. Jack says it tastes like no blueberry he's ever had but I could see that it's pretty sickly sweet.

I've seen the flocking idea with a toilet, they painted it purple and same thing pay to have it removed/moved to a friends or just protection. There was a sign as well so it brought awareness to Crohn's. I'll see if I can find the pictures/site again.
03-19-2015, 05:36 PM   #2365
Jmrogers4
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Well this one's for cancer but you get the idea.
03-21-2015, 07:53 PM   #2366
Tesscorm
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Had to share this...

https://www.youtube.com/watch?v=ZKLnhuzh9uY
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
03-22-2015, 09:22 AM   #2367
izzi'smom
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Lol...blooper reel is funny too!https://m.youtube.com/#/watch?v=E9LrUEK97AA
03-24-2015, 07:09 PM   #2368
Tesscorm
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This one's especially for CIC... the one who likes her men in uniform! (Just imagine the uniforms...)

http://blog.theveteranssite.com/chee..._term=20150318
03-24-2015, 08:30 PM   #2369
crohnsinct
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I DO like a man in uniform but shirtless works just as well!

But geez! I think I could have babysat half those kids! A little too young for even a dirty old geezer like me!

The mop pom poms was too funny! Nice to see them having fun!
03-24-2015, 08:32 PM   #2370
Tesscorm
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I didn't notice the mop pom poms!
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