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Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!


 
02-26-2016, 04:17 PM   #2611
Sascot
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Yes, tested last year and again a couple weeks ago. The regular stool test for c diff and bacterial infection was negative
02-27-2016, 04:36 PM   #2612
Optimistic
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Sascot, I'm sorry you are dealing with this. Your description of the pain was so vivid and horrible.

We really don't need anyone else with issues around here, so I've decided this needs to be something very easy diagnose and address.

I hope this is behind you very soon.
02-29-2016, 09:32 AM   #2613
Mehita
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Hugs to you Sascot!
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
03-05-2016, 12:45 PM   #2614
Mehita
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As of this morning, my 11 week old puppy is on Flagyl. The vet was starting to give me the run down on the med and I stopped her and told her we're good (and why). Let's hope tonight we're not running outside every hour for diarrhea!
03-06-2016, 01:51 PM   #2615
Tesscorm
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We have two dogs... between the dogs, my husband's IBS and Stephen's crohns... poop - size, frequency, texture, colour, etc. is a very normal discussion in our house! It's such a typical conversation at home, it's discussed as easily as the weather but I have seen some odd looks on visitors (ie daughter's bf)!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
03-06-2016, 06:48 PM   #2616
Farmwife
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Yup, I just told Grace that it's not common in a public place to talk about poop.
Lol, she thought that was weird.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-19-2016, 08:12 PM   #2617
CarolinAlaska
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Jaedyn has been so descriptive about her poop on at least one occasion that I think she may have shocked her GI!! It certainly took her off-guard. Not an easy task I'm sure!
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
04-06-2016, 01:59 PM   #2618
crohnsinct
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Waiting for FCP results getting a little punchy. Here is a little diddy for you. Sung to the tune of "Oh Where Oh Where Has My Little Dog Gone?"

Oh where, oh where
Is my fecal calpro?
Oh where, oh where did it go?
My patience is short
Is has been so long
Oh where, oh where can it be?
I hope it went down
I should check with nurse White
To see what she could see
Or shut my mouth
and check the portal website
I wonder what could it be
__________________
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
04-06-2016, 02:04 PM   #2619
my little penguin
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I assume it sounds better with
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DS - -Crohn's -Stelara
04-06-2016, 02:04 PM   #2620
fuzzy butterfly
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Nice little ditty.
Hope you get the results very soon..
💕💕
04-06-2016, 02:12 PM   #2621
crohnsinct
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I assume it sounds better with
LOL! Doesn't everything?

Fuzzy Butterfly: I know I am the forum wineo but please tell me I am not imagining things...didn't you used to have a different user name?
04-06-2016, 02:16 PM   #2622
fuzzy butterfly
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Hi no your not lol.. i had a change.. was mandyk.. well still am really haha.. i thought id have a change ,they say its as good as a rest but im not convinced 😃
04-07-2016, 11:44 AM   #2623
my little penguin
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Decided today that crohns is the gift that keeps on giving

Unlike say asthma
You get a dx
Get a med
Maybe have a flare every once in a great while (5-10 years )
But only affects the lungs

Crohns should not be defined as a disease of the gut
At all
It truly is a systemic disease
That is the gift that just keeps on giving
04-07-2016, 11:50 AM   #2624
fuzzy butterfly
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Ye thank you crohns you generous bugger you !!!!
05-12-2016, 02:08 PM   #2625
pdx
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A local grocery store was having really good sales this week. The organic butter that's normally $7.50 was $3.50; the super creamy, high-calorie ice cream that E eats every night was $3 instead of $6; the Larabars that she eats for snack at school every day were $1. So I bought 12 pounds of butter, 40 pints of ice cream, and 64 larabars. I must have had 70 billion calories in my cart. The lady behind me in line asked if I had a restaurant.

E is up to 108 pounds!
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Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
05-30-2016, 09:57 AM   #2626
Tesscorm
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Funny story I thought I'd share

We were walking our doberman, Mika (about 50 pounds) when, suddenly, from around the corner, a fluffy white 10 pound Pomeranian came charging at her! Full of piss and vinegar, barking, growling, actually took a small bite at Mika's leg. Happened so suddenly, other an a quick yelp, Mika didn't have a chance to react before hubby reached down and picked her up. Took a minute before the Pomeranian's owners came running but, what a sight... 6' man holding his 50 lb Doberman, high in his arms, while a barking, growling fluffy white Pomeranian kept them pinned to the wall! LMAO Hubbysaid it happened so fast, his first thought was 'this isn't going to end well!' and scooped up Mika!

I wish I'd thought to take a picture!
06-03-2016, 08:32 AM   #2627
Farmwife
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Lol about your husband.
I know people think I'm nuts but I'm more scared of small dogs than big ones.
07-04-2016, 07:27 PM   #2628
crohnsinct
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Parody
https://www.youtube.com/watch?v=aS3xaXsh6vo
07-06-2016, 03:09 AM   #2629
malorymug
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I love zdogg! I follow him on fb. I like his thoughtful discussions about dignity at end of life.

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Mom to: 15 year old boy
Crohn's in stomach, small intestine, large intestine, and perianal disease
Diagnosed April 2014, at age 13

Currently taking:
Remicade 10mg/kg every 6 wks
Methotrexate 7.5 mg/wk
Cipro
Augmentin
Miralax

previous meds:
6mp 50mg
Flagyl
Cipro
Prednisone 30 mg
09-18-2016, 07:39 AM   #2630
Clash
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So weird things going in with the Hubby.

Last Monday he started with low grade fevers and body/joint aches. No other sympyims. We figured it was viral.

Thursday, we went to urgent care. Still only fevers and body aches. Fevers spiking 103. Negative flu test, CBC looked good white count low normal, nothing in the labs to indicate viral illness (monocytes lymphocytes normal) Doc gave a z-pack.

So he's been doing Tylenol then motrin to get fever down but would only come down to 100-101. Then yesterday fever got 103 and nothing would bring it down so went to ER. They couldn't give meds because of all the fever reducing meds he had taken so 2 bags of fluids.

They did blood cultures to send off and all the basic. Flu test still negative and CBC looks good.

Doc ran a course of vanco (just in case?). And said to see GP and possibly rheumatologist because the only thing he can come up with is something rheumatic like sjorens or lupus (doest really fit either).

99.9 when we left Hospital. 101.9 when we got home. 102.9 when we woke up. Doc also said (when I asked at what point should I bring him back if fever spikes over weekend and can't get down) take a cool bath fevers aren't fatal.

That's all we got, any gurus have suggestions of tests? I'm wondering about tick borne illness.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
09-18-2016, 07:47 AM   #2631
hawkeye
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Lyme is the first thing that came to my mind.
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Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
09-18-2016, 11:06 AM   #2632
my little penguin
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Lyme
Adneovirus
Lone star tick disease
SpA

Tagging maya142
09-18-2016, 11:07 AM   #2633
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You could try an infectious disease specialist. They will test for Lyme and other infections.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-18-2016, 11:12 AM   #2634
Maya142
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Fever seems kind of high for SpA. We have low grade fever here with SpA -- between 99.0 and 100.2 usually. Doesn't get higher than 100.4 F ever.

It could be Lupus though... Seeing a rheumatologist might help.
09-18-2016, 12:03 PM   #2635
Clash
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Yeah I don't know what to think. We have a new puppy but it's on flea and tick med, he works outside with the phone company. He's pulled two ticks off of him from work and there was a knot with one of them. But that was in May and the end of July.

I guess we'll go to the GP tomorrow then go from there with rheumatologist and infectious disease.

I just don't know what to think.
09-18-2016, 12:43 PM   #2636
my little penguin
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Given he pulled ticks off
I would push for Lyme testing /infectious disease
It can take a while to show up
09-18-2016, 06:43 PM   #2637
CarolinAlaska
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Sorry to hear it. Did anyone do a urinalysis?
09-18-2016, 07:29 PM   #2638
Clash
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Yes they've done it twice. So far everything they've tested has come back normal.

Today the highest his fever has been is 102.7. This is the 6th or 7th day. His first dose today which was Tylenol and motrin was the only time he didn't have fever. Since then it been Tylenol then motrin and the fever stays about 101 or 102.
09-19-2016, 09:35 AM   #2639
Sascot
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I would agree with Lyme disease. Difficult to diagnose though as the blood test isn't always reliable
09-19-2016, 05:35 PM   #2640
Clash
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Okay went to the GP today. He ran more blood work. He said we'd wait for the cultures to get back. He hopes it's a self limiting viral illness but if hubby has 2 more days of fever then he sending him to an infectious disease specialist. Still running fevers today but didn't start til after lunch.
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