Share Facebook
Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!


 
09-20-2016, 11:06 AM   #2641
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
Glad the GP is going to refer him.
09-20-2016, 02:55 PM   #2642
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
Clash,
I am so sorry hear. Have had limited reception the last two weeks. I agree that this sounds like Lyme disease. Please keep us posted.
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
09-21-2016, 10:42 AM   #2643
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Have been away for a bit. Clash, I hope your husband is doing better???
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
09-21-2016, 11:06 AM   #2644
Clash
Forum Monitor
 
Clash's Avatar
Still having fevers but the fevers aren't 24/7 anymore nor are they getting as high. The past two days he is fever free til about 12 or 1 then the fever starts climbing. Where he was spiking 103 it is now around 100. Can be controlled with Tylenol and advice whereas in the beginning neither would touch it. Overnight, the fever goes up and he sweats it off.

I can tell he feels a bit better, less lethargic and more animated.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
09-21-2016, 11:37 AM   #2645
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
So is he seeing infectious disease since he still has fevers
__________________
DS - -Crohn's -Stelara -mtx
09-21-2016, 03:27 PM   #2646
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
I am glad he is feeling a little better! Very good to hear!
09-21-2016, 04:25 PM   #2647
Clash
Forum Monitor
 
Clash's Avatar
We're to call the GP on Friday is the fevers aren't completely gone then he's going to give us the names of some colleagues in infectious disease, one in a med size city an hour away and the other in ATL. So, we'll choose and make an appt.

Oh he still really thinks it's viral and is fizzling out now since fevers are no longer constant and not spiking as high.
09-22-2016, 08:03 AM   #2648
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I'm glad he's beginning to feel better. Hopefully, his GP is right and this will run it's course and be finished!
09-24-2016, 01:20 PM   #2649
pdx
Senior Member
 
Join Date: Dec 2014
Location: Portland, Oregon

My Support Groups:
How's he doing today?
__________________
Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
09-24-2016, 06:31 PM   #2650
Clash
Forum Monitor
 
Clash's Avatar
Hey guys fever broke Thursday and hasn't occurred since. GP says more than likely viral and we'll probably never know what exactly it was. Still, he's waiting on another call about the blood cultures and if any thing has shown up in them. It was negative after 2 or 3 days but that was early he said.

So fevers, body aches and joint pa8n are completely gone. They lasted 14 days.
09-24-2016, 06:47 PM   #2651
Maya142
Forum Monitor
 
Maya142's Avatar
Wow, that is one nasty virus! Glad he is doing better!
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-25-2016, 12:46 AM   #2652
pdx
Senior Member
 
Join Date: Dec 2014
Location: Portland, Oregon

My Support Groups:
Good to hear!
09-25-2016, 10:08 AM   #2653
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
Very very glad to hear!!!!!
09-25-2016, 11:01 AM   #2654
Clash
Forum Monitor
 
Clash's Avatar
Yeah, I was really starting to get nervous but counting Thursday we've had 4 fever free wake ups! I'm so thankful! I haven't felt completely comfortable until this morning. But it does seem whatever it was it has passed.
09-25-2016, 04:12 PM   #2655
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
Glad things have settled!
09-26-2016, 10:59 AM   #2656
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Yes, I'd be getting nervous after 14 days too! Nasty!!
09-23-2017, 09:47 AM   #2657
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
I have to share a funny!

Grace and I were in Wal-Mart.
We were passing thru the aisle that had the laxatives
An older couple was arguing over which stool softness the husband had used last.
So Grace
Takes it upon herself to walk over and told the man about a wonderful product called miralax.

Her advice to him had the whole aisle (about 20 people at this point ) in laughter.

She said. .....
Mix well with a cold beverage.
Drink fast because you'll hate if you don't.
It might take days to work but when it does you should stay near the bathroom.
Or bring a change of clothes

The older couple said thank you and looked at me to say something but I shrugged my shoulders, smiled and left.
Sometimes the genius of an 8 year old need no reply!
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
09-23-2017, 10:21 PM   #2658
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
Love it!!!!! Such a cutie!!!
09-25-2017, 10:00 PM   #2659
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Very cute!!
12-14-2017, 01:29 AM   #2660
crohnsinct
Senior Member
 
Join Date: Mar 2012
Location: California

My Support Groups:
Got this on my twitter feed from an IBD Dietician:

7yr old: Mum, what happens if you eat lots of tinsel?
Me: probably emergency surgery to prevent obstruction somewhere in your digestive system.
7yr old: *blank face* *small voice* you get tinselitis
__________________
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
Reply

Crohn's Disease Forum » Parents of Kids with IBD » Much Ado About Nothing! eh!
Thread Tools


All times are GMT -5. The time now is 09:58 PM.
Copyright 2006-2017 Crohnsforum.com