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08-02-2012, 01:12 PM   #1
napster
 
Join Date: Jul 2012
Location: Ohio

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Seton/suppositories??

I have a rectal-vaginal seton in, and am wondering if anybody out there uses canasa (or other) suppositories with a rectal seton - or if anybody knows whether using suppositories where there's a seton can do any kind of damage to the seton or fistula, or cause pain, or whatever?

I was using the suppositories when I had the fistula, without the seton in, and didn't have any problem with them. Thanks for any input!
08-13-2012, 08:43 AM   #2
napster
 
Join Date: Jul 2012
Location: Ohio

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Looks like nobody uses suppositories with their setons? Anyhoo: I gave them the old college try and didn't have any problems with inserting them. Very carefully. I figured if my CR dr. said I could have intercourse with a seton there, I can certainly insert a suppository with no problem. I called to let the doc to let her know I was going to use them, but got no response. So, guess I'm good to go with using them.
08-13-2012, 01:04 PM   #3
Grumbletum
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Just bumping your post as I don't have experience with setons myself.
__________________
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
08-17-2012, 01:28 PM   #4
Sailorluna
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Join Date: Oct 2010
Location: Coon Rapids, Minnesota

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I have used canasa but it was right before my first fistula and I have not used it since.
I have a silly fear that it will some how gum up the works and cause another abscess.
Let us know how it works for you.
-Barbara
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Symptoms since 98
Resection and diagnosis June 2010
3 fistulas
abscess drained 6 times (so far...)
currently 2 seton in place 1 since 9/11 the other 4/14
1 strange small air pocket with an 8 cm sinus track leading into the great unknown
methotrexate weekly
folic acid
2 lomotil
2 Welchol
B12 injections (monthly)
Remicade

_____
Goodbye Humira
Goodbye Cimzia
Goodbye Azathiprine
08-22-2012, 11:15 AM   #5
napster
 
Join Date: Jul 2012
Location: Ohio

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So far, so good. I used them for a week, and am now off until I feel I need them again!
08-22-2012, 04:38 PM   #6
shermel2
 
Join Date: Aug 2012
Location: Houston, Texas
Hi Napster,

I have used other suppositories (not Canasa) with both of my rectal setons. Haven't had any issues. The seton is keeping the fistula open thus I don't see the suppository clogging it up. Curiousity, you mentioned your seton was for a recto-vaginal fistual... is your seton just through the rectum? Or through the vagina as well?

Take care
08-23-2012, 06:03 AM   #7
napster
 
Join Date: Jul 2012
Location: Ohio

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Hi Shermel2 thanks for your information. Good to know!

I have a jpouch-vaginal fistula - the interior fistula holes starts around the dentate line in the rectal area goes to just outside the V opening. So the seton runs through this tunnel, and comes out the exterior opening that's just outside the V opening, and is tied off outside the rectal area, creating a circle. The outside half of the circle, which is visible, runs along the perineum. How 'bout yours?
08-23-2012, 10:04 PM   #8
shermel2
 
Join Date: Aug 2012
Location: Houston, Texas
Mine exits right outside the bottom of the left labia. It circles through the rectum and is knotted outside the near the labia. Apparently it goes through the sphicnter muscle so the seton is the only option.

Such a pain. I've had mine since Feb 2009 and I really hate it. I've been told I have to "keep it in for life". I'm hoping that one day there will be better methods/technology......
08-28-2012, 06:46 AM   #9
napster
 
Join Date: Jul 2012
Location: Ohio

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Yeah, I hear you Shermel. My CR surgeon said in so many words that there's no fix for this particular fistula. Not many viable options at this time. Why oh why can they send a man to the moon, transplant hearts, transplant faces, but not find a way to close these tiny little tunnels?!?
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