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08-08-2012, 08:35 PM   #1
liv
 
Join Date: Mar 2012
MRSA & Abscesses

Just got back from my third hospital admission in just under a month and a half. First one for micro-abscesses which formed in fistulas in my cecum, second for a large perianal abscess, and now third for yet another large painful abscess on my very lower back. (note:between the second and third visit I developed 5 or 6 seperate abscesses that drained successfully without need for surgery). Surgery went well on both occasions but I have to vent about something that really bothered me.
I was swabbed for super bugs as a precaution. Turns out I'm MRSA positive and have been since at least the first abscess surgery but guess what nobody caught on and told me or anybody else until AFTER my second surgery!! (I'm sure the hospital had fun cleaning down the operating room after that mistake)
I'm really upset because I clearly was not put on the proper antibiotics that could have prevented my second surgery and second spinal tap. I know they don't always give antibiotics for MRSA but I was already on Methotrexate, Cipro, and Flagyl and starting Remicade when I developed the abscess. They have now put me Doxycycline Hyclate for the MRSA and the infection disease specialists have left notes in my file that if I don't respond to treatment I am a good candidate for eradication even though success rate is low.
I'm in a ridiculous amount of pain both from the lesion and the area where they did my second spinal and just kind of wondering what I should do about it? I contacted patient rep and all of them have said that MRSA is not a big deal and as long as I frequently wash my hands and that they don't contact everyone who has it after they've left the hospital. Being on so many medications I feel like I should have been contacted immediately, or am I just worrying about something more than I need to?
Also has anybody taken Remicade while having an MRSA infection? My Remicade nurse requires further confirmation from my GI (who is conveniently on vacation) to approve me for further injections but she thinks it will be okay and that she has injected people with MRSA before. Have been searching the forum for MRSA support and can use any help or advice! I don't know what I'd do without this forum.
08-13-2012, 01:18 AM   #2
Patricia56
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Join Date: Jul 2012
Location: Northern California, USA
Being MRSA positive is not the same thing as having an active MRSA infection.

I'm not clear if you have an active infection or if you are an MRSA carrier.

Do you know?

And I couldn't make sense of what you said the ID specialist put in your file. Could you explain that again?
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Badger, 18, CD, overall great guy
Dxd age 10, 2006 after nearly 1 year of active sx
Current CD meds: Remicade, Methotrexate and Omeprazole, Vit. D, Calcium, Folic Acid, Probiotic

Nothing I say here should be construed as medical advice. I am not a doctor. These are just my opinions.
08-13-2012, 01:26 AM   #3
Patricia56
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Join Date: Jul 2012
Location: Northern California, USA
I don't know if you're in the US or not but here's a link to the CDC website on MRSA. It has a great deal of helpful information. Maybe you will be able to get some answers or figure out what additional questions to ask infections diseases or your other doctors.

http://www.cdc.gov/mrsa/
08-13-2012, 05:14 PM   #4
liv
 
Join Date: Mar 2012
Hi Patricia56, thanks for the reply!
I currently have an active MRSA infection.
I'm in Canada so maybe we deal with the bug differently but as far as I know what the ID specialist was refering to was an attempt to no longer have any MRSA after my infection disappears. Meaning they would try and make sure I wasn't a carrier on top of getting rid of my infection but it's rarely done because MRSA is everywhere so it's likely to get it again even after a more intense "removal" process if you will.
Thanks for the link too !
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