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Crohn's Disease Forum » Ulcerative Colitis Forum » How much is too much?


08-16-2012, 08:44 PM   #1
thejdubb02
 
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How much is too much?

So I have had UC for over a year now. At this point I am pretty blessed to be pain free, but right now I am at my worst thus far with blood.

But how much is too much? When should I be worried? It's scarey for me just because I don't yet know what to expect from this disease.

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08-16-2012, 10:59 PM   #2
Trysha
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Losing blood is always worrying and it would be advisable for you to be in touch soon with your GI specialist.
Feel better soon
Hugs and best wishes
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08-16-2012, 11:01 PM   #3
michaelearnest
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I agree with Trysha and I would also talk to your Primary Care physician.
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08-17-2012, 01:52 AM   #4
Thermo
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You have a lot of blood in your body, make sure you keep up on getting your blood work done as it will show how quickly you are losing blood and how alarmed you should be. What medications are you on?
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08-17-2012, 02:38 AM   #5
thejdubb02
 
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Currently... 40mg prednisone, full dose of Lialda and just started Cimzia. Meeting with doc tomorrow to talk about next steps.

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08-17-2012, 01:12 PM   #6
NMMom
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How long have you been on the prednisone? Were you recently having a flare? From my understanding (which isn't the greatest! I'm new to this) the ulcers and open sores in your bowel need time to heal for the bleeding to stop. Could there be something with your diet? Maybe too much roughage, seeds or red meat. Definitely talk to you doctor and keep us posted. Good luck
08-17-2012, 03:32 PM   #7
Thermo
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It looks like you are doing the right thing medication wise, since you have UC have you ever thought of Mesalamine enemas? They are in no way fun but they do seem to target the large intestines better. Have you tried Pentasa before? Have you made any changes to your diet?
08-17-2012, 11:10 PM   #8
thejdubb02
 
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Thermo, as per your recommendation when I met with my doc today, I asked him about the enemas you mentioned. He thought it was a great idea to try, but usually doesn't give them because most people dont like them (hmmm I wonder why haha). Anyway, I told him I am willing to try anything and started my first on tonight.

Lets hope this works and thanks for the recommendation.
08-18-2012, 12:04 AM   #9
Thermo
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I hope it works! You are taking everything else you should be, and the enemas will attack it from the other end kind of a double assault. I first tried them when I was a kid (Imagine how fun that was as a 12 year old lol) The trick is to retain as long as possible so it has the time to travel to your Ileocecal valve and small intestines. Some say to retain it the entire night but I have never been able to. It worked great for me when my disease showed up in my large intestines, I hope it works for you. Let me know how you feel after it has a chance to work a bit.
08-18-2012, 12:49 PM   #10
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So I accomplished keeping it in all night so I will give them a few days and let you know how they are working.

Next week I will start Remicade as well so let's hope something starts to work.

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08-19-2012, 07:51 AM   #11
sickinlk
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hey,
have you tried a pred enema or suppository.
also if your bleeding alot which i know all about you should be on a low residue diet to let the bowel rest. low fibre, well cooked veg, no salad, no nuts, no skins or seeds. these will all tear up your colon lining passing and make the ulcers bleed more.
ju
08-29-2012, 02:25 PM   #12
2thFairy
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Cortisone enemas were the only thing that stopped the bleeding for me. I was using mesalamine enemas in the morning and cortisone enemas at night on top of all other meds. The mesalamine enemas helped the cramping for me as well. True, they aren't fun, but hopefully they will work for you!
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08-29-2012, 02:40 PM   #13
thejdubb02
 
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The mesalamine enemas worked well for me. But now the Remicade had taken over.
08-29-2012, 02:58 PM   #14
2thFairy
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Hooray! Good luck with the Remicade.
11-12-2012, 11:49 AM   #15
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Sometimes I've noticed that taking too many probiotics / cultured foods, and/or the wrong ones can aggravate my colon and cause bleeding. I've wondered if it's related to a pressure build-up. Has anyone else noticed this? I thought of taking more Fungal Defense (Garden of Life) to calm things down a bit.
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