coming off preds. - Crohns Disease Forum - Support group and forum for IBD, Ulcerative Colitis and Crohn's Disease

rosie · 09-22-2008, 12:13 PM

my preds are being tapered now so only 5 more weeks left!! have to go for a colonoscopy thing tho to see how bad i have crohns

dreadiing it :'(

s.a.m. · 09-22-2008, 12:32 PM

how long were you on them before they started to taper them?
I just had my first colonoscopy last week, it wasnt too bad.

rosie · 09-22-2008, 02:50 PM

iv been on them for about 4 weeks now. started on 40mg and am now down to 25 as of tomorrow. Im just so dreading the thought. apparently he only got the crohns in my left side.. and i need a colonoscopy to see id its in the right too. Hopefully not tho. diff meds depending more side affects possibly?? great.

amor151 · 09-22-2008, 04:39 PM

im also tapering rosie are you noticing anu difference in your symptoms as you lower your dose of steroids? have you had a colonoscopy before?

Colt · 09-22-2008, 05:58 PM

I'm also tapering. I'm down to 2mg. I'll start 1mg for a week on Tuesday and then I'm done. At 40mg I felt wonderful. Things became slowly less good as I continued to taper and after I tapered from 10mg to 5mg all hell broke lose and I'm as bad off as I went into this. That and I've got some extra problems like body acne and extra back hair from the prednisone.

rosie · 09-22-2008, 05:58 PM

no im not noticing anything different in my symptons at all. i only start on 5 tomorrow morning tho. The doctor said ill probs feel a bit ill when im down too 2?

starving pangs have gone but thats the only difference. I havent really felt crohns yet just massive side effects off preds. Yes the 2nd week i was in hosp hated it. So embarressing and uncomfortable. DREADING IT!!!

rosie · 09-22-2008, 05:59 PM

Quote:

Originally Posted by Colt

I'm also tapering. I'm down to 2mg. I'll start 1mg for a week on Tuesday and then I'm done. At 40mg I felt wonderful. Things became slowly less good as I continued to taper and after I tapered from 10mg to 5mg all hell broke lose and I'm as bad off as I went into this. That and I've got some extra problems like body acne and extra back hair from the prednisone.

oh dear. thats what the doctor said too! oh the joy of whats in store.

amor151 · 09-22-2008, 07:55 PM

i think you will be ok to be honest rosie. if you've never really felt the symptoms of crohn's yet i dont think they will start now. 10mg is still quite a low dose so if you're not feeling any different now i think you should be able to taper all the way to 0mg without too much hassle.

rosie · 09-22-2008, 08:47 PM

i hope so. i really do. I know i was quite bad before preds. but was only the start and only for about a month. im on 30 mg atm25 starting tomorrow. But 2bh i think ill be just fine too stil got the invinceabilty off 40mg preds so optimsm is still with me.

09-22-2008, 12:13 PM	#1
rosie Senior Member Join Date: Sep 2008 Location: grimsby Posts: 111	coming off preds. my preds are being tapered now so only 5 more weeks left!! have to go for a colonoscopy thing tho to see how bad i have crohns dreadiing it :'( __________________ x x Always take the time to smile x x

09-22-2008, 02:50 PM	#3
rosie Senior Member Join Date: Sep 2008 Location: grimsby Posts: 111	iv been on them for about 4 weeks now. started on 40mg and am now down to 25 as of tomorrow. Im just so dreading the thought. apparently he only got the crohns in my left side.. and i need a colonoscopy to see id its in the right too. Hopefully not tho. diff meds depending more side affects possibly?? great. __________________ x x Always take the time to smile x x

09-22-2008, 05:58 PM	#5
Colt Senior Member Join Date: Mar 2008 Posts: 869	I'm also tapering. I'm down to 2mg. I'll start 1mg for a week on Tuesday and then I'm done. At 40mg I felt wonderful. Things became slowly less good as I continued to taper and after I tapered from 10mg to 5mg all hell broke lose and I'm as bad off as I went into this. That and I've got some extra problems like body acne and extra back hair from the prednisone. __________________ Certified Medication Aide, Certified Nurse Aide, Phlebotomist, and Resident Cynic Meds: Prednisone, Pentasa, Vitamin D & Calcium, Atenalol, Darvocet Current Issues: Crohn's inflammation primarily of the upper GI (duodenum and up), Tachycardia, Osteoporosis Current Stage of Grief: Anger

09-22-2008, 05:58 PM	#6
rosie Senior Member Join Date: Sep 2008 Location: grimsby Posts: 111	no im not noticing anything different in my symptons at all. i only start on 5 tomorrow morning tho. The doctor said ill probs feel a bit ill when im down too 2? starving pangs have gone but thats the only difference. I havent really felt crohns yet just massive side effects off preds. Yes the 2nd week i was in hosp hated it. So embarressing and uncomfortable. DREADING IT!!! __________________ x x Always take the time to smile x x

09-22-2008, 08:47 PM	#9
rosie Senior Member Join Date: Sep 2008 Location: grimsby Posts: 111	i hope so. i really do. I know i was quite bad before preds. but was only the start and only for about a month. im on 30 mg atm25 starting tomorrow. But 2bh i think ill be just fine too stil got the invinceabilty off 40mg preds so optimsm is still with me. __________________ x x Always take the time to smile x x

09-22-2008, 12:32 PM	#2
s.a.m. Senior Member Join Date: Jul 2008 Location: Nova Scotia Posts: 154	how long were you on them before they started to taper them? I just had my first colonoscopy last week, it wasnt too bad.

09-22-2008, 04:39 PM	#4
amor151 Senior Member Join Date: Dec 2007 Location: jolly old england Posts: 176	im also tapering rosie are you noticing anu difference in your symptoms as you lower your dose of steroids? have you had a colonoscopy before?

09-22-2008, 07:55 PM	#8
amor151 Senior Member Join Date: Dec 2007 Location: jolly old england Posts: 176	i think you will be ok to be honest rosie. if you've never really felt the symptoms of crohn's yet i dont think they will start now. 10mg is still quite a low dose so if you're not feeling any different now i think you should be able to taper all the way to 0mg without too much hassle.