Hello to everyone! Very happy to have found this forum! :sign0144:
I was diagnosed with Crohn’s in 2009; my GI Doc figures that I had been wandering around undiagnosed for about 10-12 years prior to that; mostly due to my procrastination, belief that I was invisible, able to withstand anything and, a busy doctor who was over worked.
In 2008 “AS” (Ankylosing spondylitis) took over my life! The pain was unbearable, body parts became severely inflamed (especially my lower back) and I believe the worst was my eyes… they would become so swollen; I could actually feel the eye pushing out. Luckily this appears to be a problem that comes and goes with flare ups. However, it was “AS” that assisted doctors in diagnosing me with Crohn’s (Ankylosing spondylitis in females is normally a secondary condition to Crohn’s). Between AS, canker sores, abdominal pain, diarrhea, etc. you begin to wonder if you are falling apart! (Nope still in one piece :ylol2
In 2009 I was started on a vigorous drug regime, all of which made me extremely ill, experiencing every side effect. The latest regime is Mezavant, Salofalk and Imuran, all of which I am giving up for Humira. I just received the prescription and now getting ready to start this new drug.
But I need your help or advice……
My problem is how I feel… constantly Sick and Tired, no matter what prescription I am on. Constant nausea, sleep problems, constant bathroom trips, fatigue, dizziness, HUGE weight gain (which makes little sense when I am not on steroids and I do exercise and watch what I eat) and extremely bad bloating. I may harm the next person who asks me if I am almost due….grrrr :ytongue: I have food tracked and still not sure what causes it, sometimes it lasts for an hour, sometimes longer or shorter… do others feel this way or experience this? Do others get frustrated when you are having an uncomfortable flare up and someone asks you what is wrong? You respond that you are experiencing a Crohn’s issue and they turn to you and say “everyone has that now, suck it up” or “Smith, in office 2A has that; he does this and eats this, maybe you should to because now he is cured!”
With all that said, I am happy to have found this forum; to know that what I am experiencing is normal and does happen or, even signs and symptoms to watch out for.
It is great to meet you all!
I was diagnosed with Crohn’s in 2009; my GI Doc figures that I had been wandering around undiagnosed for about 10-12 years prior to that; mostly due to my procrastination, belief that I was invisible, able to withstand anything and, a busy doctor who was over worked.
In 2008 “AS” (Ankylosing spondylitis) took over my life! The pain was unbearable, body parts became severely inflamed (especially my lower back) and I believe the worst was my eyes… they would become so swollen; I could actually feel the eye pushing out. Luckily this appears to be a problem that comes and goes with flare ups. However, it was “AS” that assisted doctors in diagnosing me with Crohn’s (Ankylosing spondylitis in females is normally a secondary condition to Crohn’s). Between AS, canker sores, abdominal pain, diarrhea, etc. you begin to wonder if you are falling apart! (Nope still in one piece :ylol2
In 2009 I was started on a vigorous drug regime, all of which made me extremely ill, experiencing every side effect. The latest regime is Mezavant, Salofalk and Imuran, all of which I am giving up for Humira. I just received the prescription and now getting ready to start this new drug.
But I need your help or advice……
My problem is how I feel… constantly Sick and Tired, no matter what prescription I am on. Constant nausea, sleep problems, constant bathroom trips, fatigue, dizziness, HUGE weight gain (which makes little sense when I am not on steroids and I do exercise and watch what I eat) and extremely bad bloating. I may harm the next person who asks me if I am almost due….grrrr :ytongue: I have food tracked and still not sure what causes it, sometimes it lasts for an hour, sometimes longer or shorter… do others feel this way or experience this? Do others get frustrated when you are having an uncomfortable flare up and someone asks you what is wrong? You respond that you are experiencing a Crohn’s issue and they turn to you and say “everyone has that now, suck it up” or “Smith, in office 2A has that; he does this and eats this, maybe you should to because now he is cured!”
With all that said, I am happy to have found this forum; to know that what I am experiencing is normal and does happen or, even signs and symptoms to watch out for.
It is great to meet you all!