He had upper and lower gi scopes and about 20 biopsies. All biopsies showed no signs of crohns.. but this was noted: the biopsies of the gastric body and antrum show mild to moderate expansion of the lamina propria due to lymphoplasmacytic infiltrate. No active inflammation or infectious organisms see. the remainer are normal.
The ileum showed bumps (ulcers) and was inflamed,etc
He also had barium xray, tons of blood drawn , etc. He had a round of the steroid targeted to the gut, he had a round of flagyl, and he's been on pentasa.
He can go 2 - 3 weeks or so without getting sick , but his eyes will get really dark around them, he'll get a headache, and he'll start throwing up.. sometimes just one day, sometimes more. I think it may be food related, but I just want to make sure they're not missing something. We have a new gi who I left some paperwork with, and he only wanted a few pages and just glanced over it quickly and said :yeah, its crohns, and he'll never be well, medicine and maybe surgeries his whole life. .. I won't say what I felt like doing in that moment, my 11 year old son was right there and it left him feeling completely hopeless. I've been trying to fix that ever since.