Hi
I'm 24 and was diagnosed with crohns disease 6 years ago. never written on a forum but thought i'd give it a try. My first flare was particularly bad. I did not respond well to any medication and after 9 months on steriods and pain killers, constant agony, losing 2 stone (going from a size 14 to a size 8) ended up with an emergency bowel reseaction. All seemed well after but infortunately 3 months after the surgery I was rushed into A&E and had another resection due to my bowel closing.
Well 5 years on an the dreaded crohns is back. I was very lucky to have 5 realtively symptom free years (except for the odd bad day and D if i ate the wrong foods) however i'm back to the stage of having D after every meal I eat and noticing the pain returning gradually. It seemed to creep up on me and I think I was actually in denial for a while until I ended up in the car 10 minutes away from home and had an accident. This was my first ever accident and I cant begin to describe the utter humiliation I felt..I've even traded in my car as hated the reminder everytime I got in. The pain is nowhere near as bad as during my first flare but I no longer smoke (and havent done for 5 years) so guessing this is a big positive for this. feeling really worried incase the flare is building up like it did last time round and I end up really poorly again. I work full time and my job is stressful so I can not afford to be ill!
My specialist put me on budesonide however changed me onto pred after 5 weeks due to the budesonide having no effect. Well 7 weeks later of starting on 40mg a day and cutting down as directed (currently on 25mg) i'm feeling as rubbish as ever. I'm having to cancel plans with friends as darent leave the house after a meal as I end up spending my evening in the bathroom . We went through IVF in february which failed but I gained 18 pounds during and after treatment so trying so hard to keep the weight down whilst on the pred. Last time I was ill I lost a lot of weight very quickly but this time the weight doesnt want to budge. Instead I'm getting a lovely beard, acne and moonface (due to the pred i'm guessing). Not the most wanted side effects for a 24 year old female but i'll try anything to get better!
My husband is very understanding and really supportive but I cant help but feel rotten and guilty for having this stupid disease. We married 4 months ago after 5 happy years together and for me it feels the honeymoon period is definitely over as everything centres around my crohns at the moment and my reluctance to make plans and leave the house except for work must be hard to understand. Also the awful stink coming from the bathroom constantly isnt the most romantic thing for him to put up with! :stinks:
I'm waiting for confirmation of a colonoscopy appointment which is hopefully in the next 2 weeks and the specialist has spoken about starting me on infleximab?? following the colonoscopy. I had an xray the other day and bloods done so hoping I have the colonoscopy soon and can start the new medication.
Reading back through this its not the most positive but just wanted to vent how i'm feeling really. Really hoping this flare isnt going to be as bad as last time!
xx
I'm 24 and was diagnosed with crohns disease 6 years ago. never written on a forum but thought i'd give it a try. My first flare was particularly bad. I did not respond well to any medication and after 9 months on steriods and pain killers, constant agony, losing 2 stone (going from a size 14 to a size 8) ended up with an emergency bowel reseaction. All seemed well after but infortunately 3 months after the surgery I was rushed into A&E and had another resection due to my bowel closing.
Well 5 years on an the dreaded crohns is back. I was very lucky to have 5 realtively symptom free years (except for the odd bad day and D if i ate the wrong foods) however i'm back to the stage of having D after every meal I eat and noticing the pain returning gradually. It seemed to creep up on me and I think I was actually in denial for a while until I ended up in the car 10 minutes away from home and had an accident. This was my first ever accident and I cant begin to describe the utter humiliation I felt..I've even traded in my car as hated the reminder everytime I got in. The pain is nowhere near as bad as during my first flare but I no longer smoke (and havent done for 5 years) so guessing this is a big positive for this. feeling really worried incase the flare is building up like it did last time round and I end up really poorly again. I work full time and my job is stressful so I can not afford to be ill!
My specialist put me on budesonide however changed me onto pred after 5 weeks due to the budesonide having no effect. Well 7 weeks later of starting on 40mg a day and cutting down as directed (currently on 25mg) i'm feeling as rubbish as ever. I'm having to cancel plans with friends as darent leave the house after a meal as I end up spending my evening in the bathroom . We went through IVF in february which failed but I gained 18 pounds during and after treatment so trying so hard to keep the weight down whilst on the pred. Last time I was ill I lost a lot of weight very quickly but this time the weight doesnt want to budge. Instead I'm getting a lovely beard, acne and moonface (due to the pred i'm guessing). Not the most wanted side effects for a 24 year old female but i'll try anything to get better!
My husband is very understanding and really supportive but I cant help but feel rotten and guilty for having this stupid disease. We married 4 months ago after 5 happy years together and for me it feels the honeymoon period is definitely over as everything centres around my crohns at the moment and my reluctance to make plans and leave the house except for work must be hard to understand. Also the awful stink coming from the bathroom constantly isnt the most romantic thing for him to put up with! :stinks:
I'm waiting for confirmation of a colonoscopy appointment which is hopefully in the next 2 weeks and the specialist has spoken about starting me on infleximab?? following the colonoscopy. I had an xray the other day and bloods done so hoping I have the colonoscopy soon and can start the new medication.
Reading back through this its not the most positive but just wanted to vent how i'm feeling really. Really hoping this flare isnt going to be as bad as last time!
xx