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10-09-2012, 08:54 AM   #1
Sam07301985
 
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Who else has Psoriasis?

So ever since all my crohns symptoms started about 5 years ago I also started getting Psoriasis bad. Ive seen where Psoriais and Crohns are linked in some studys but I was wondering how many people here have it and what yall have found that helps the Psoriasis go away. Honestly the only thing that I have found that does any good is sun light.
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10-09-2012, 04:46 PM   #2
2thFairy
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There are a few people around here that have made mention of it, but I can't right off think of who. Anyhow, bumping this up for more exposure.
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
10-09-2012, 05:02 PM   #3
Tina80
 
Join Date: Sep 2012
Location: Glasgow, United Kingdom
I've had psoriasis since I was a teenager and got diagnosed with crohn's in my early twenties although I probably had it for a few years prior. I think there seems to be a link with many autoimmune diseases. My sister also has psoriasis and my mum has rheumatoid arthritis. I've found azathioprine keeps my psoriasis at bay, however my dose has been lowered recently and the psoriasis seems to be getting worse.
10-09-2012, 10:15 PM   #4
CourtneyReann
 
Join Date: Oct 2012
I have psoriasis and have had it for over 15 years. At one point, when I was 19, my psoriasis covered over 20% of my body. I've used so many topicals over the years I'd never be able to list them all. I started my first systemic therapy when I was 19 years old. I self-injected Enbrel 2x a week. It worked amazingly for me until July of 2011. Then I switched to Humira 40mg/mL self injected once every other week. The Humira maintains my psoriasis but doesn't make it any better. I also use two topicals - Taclonex for large, thick plaques and Triamcinolone cream applied to my whole body twice a day. This combination of drugs seems to be the right combo for me... for now anyway.

During my last derm. Appt. I found an interesting booklet on psoriasis in the waiting room. People who are diagnosed with psoriasis are at an increased risk of developing an IBD. interesting, hu?

I think you're right about the autoimmune link.
10-09-2012, 10:37 PM   #5
D Bergy
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I got rid of mine using an old but experimental treatment.

If you are interested in an out of the box treatment PM me for the details.

Dan
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Nothing I post here is to be construed as medical advice. I am not a doctor or health professional.
They are simply my opinions.
10-10-2012, 04:13 AM   #6
Bld
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I have recently had some flakey red patches come up on my face. My GP says it isn't Psoriasis but I think it is, my Mum has it and it looks and sounds like it to me. Strong steroid cream calms it down really fast but within two days of stopping it comes right back up again.
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Diganosed with Crohn's in 1996. Flaring since Sept 2011.

Current meds:

6MP = 50mg/day
Pentasa 4 x 1mg/day
Ferrous Sulfate 3 x 200mg/day
Omaprazole
10-10-2012, 05:17 AM   #7
ellie
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I'm fairly sure the are links between psoriasis, rheumatoid arthritis, and IBD.. And prob some others.
? Genetic


HD
10-10-2012, 07:37 AM   #8
AIjen
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I have it! I've had it pretty much since I was born. Only on my scalp though. I had some issues with it on my elbows and one ear briefly, but it was really bad on my scalp. One I got on Cimzia (for the Crohn's), it started to go away and now it is completely gone. Oh happy day!!! I can wear black and navy blue shirts for pretty much the first time ever!!!
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Current Diagnoses: Asthma (Can't remember), Hashimoto's (June 07), Psoriasis (March 08), Undifferentiated Connective Tissue Disease (Jan. 08), Fibromyalgia (Jan. 08), Crohn's (Dec. 08), Chronic Fatigue Syndrome (June 12)

Current Medications: Levothyroxin, Lyrica, Advair, Cimzia, Zyrtec, and Prevacid. Back on Pentassa 12/04/12.
10-10-2012, 09:14 AM   #9
D Bergy
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Red scaly patches around the oily parts of the face often is seborria. The difference between that and psoriasis is that it does not itch like crazy.

I have used coconut oil as a potential treatment and I am not sure if that is why it is going away, but for some reason it is much better.

Dan
10-10-2012, 02:02 PM   #10
Sam07301985
 
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My Psoriasis is on my scalp and in a few other places on my body like my belly button. I have tried several ointments including Talconex, dolvonex and several others. Ive found that hydrocortisone cream helps the other places on my body where the Psoriasis is. I just start putting it on as soon as I see it starting. The bad thing about that though is that hydrocortisone cream thins your skin out with prolonged use. The best thing for my scalp is sunlight. During the summer months when Im outside alot the psoriasis on my head isnt near as bad as it is during the winter months. So im not looking forward to the next few months it gets so aggrivating having dandruff all the time and it itches like crazy. I havent had much luck with Dermatologist in my area. BUt my Psoriasis started when my crohns symptoms started so I know there has to be a link and I also think its the auto immune system. I havent tried any biologics or corticosteroids specifically for the Psoriasis but I am on Entecort which is a corticosteroid so maybe this winter season wont be so bad. Thanks for all the responses. : )
10-10-2012, 03:43 PM   #11
marjaw
 
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I was diagnosed with crohn's last year. I've had psoriasis for 51 years, a lot of the time with 90% coverage of my body. I've had every treatment for it you can think of. I was a test subject for PUVA (light therapy) before it was FDA approved and used that from age 16 to about 27. Worked great.....except for the fact that it caused so much sun damage that I'll probably have melanoma at some point. But they didn't know that at the time. I was using Enbrel and that also worked great. I was switched to Humira becasue it combats both. Works as well as the Enbrel did. Also, I am on prednisone right now after a bad flare so that's really clearing up the skin.
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Crohn's Ileitis diagnosed Dec 2011
SBO 12/2011, 3/2012, 8/2012
Psoriasis since 1961
Psoriatic arthritis since 1988
Currently on Predinsone 40mg starting step down 9/5/12
Started Humira 4/25/12
10-10-2012, 04:27 PM   #12
atomb
 
Join Date: Mar 2011
My father has recently been diagnosed with Crohn's at the age of 65 and I have been sick all my life with what looks now to be to be Crohn's im undiagnosed. i have been diagnosed with IBS a few years back a but anyway
Yes I have Psoriaisis as well and know in my heart and mind that they are linked have had both issues since i was probably old enough to remember and now im 39.
Thats my story.
I use
talconex
allegra and
antiderpressants to deal with it all. My 2 cents..
My father has recently joined this miserable condition.
10-10-2012, 04:58 PM   #13
21years
 
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Location: United Kingdom
Yes real minor
10-10-2012, 04:59 PM   #14
21years
 
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Location: United Kingdom
Note that Pentasa side effect is Lichen Planus
10-21-2013, 03:59 PM   #15
DougUte
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Yes, a minor case. I believe there is a very close connection between IBD and Plaque Psoriasis. Both diseases are inflammatory, TNF-a is a factor in both diseases (and Rheumatoid Arthritis). Several medicines are approved to treat both diseases. Hmm.
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Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin

Last edited by DougUte; 10-21-2013 at 04:40 PM.
10-21-2013, 08:44 PM   #16
ronroush7
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I have it but don't know of a cure.
10-21-2013, 09:11 PM   #17
DougUte
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No cure. Also like IBD.
10-21-2013, 10:40 PM   #18
rrhood1
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According to my GI & my rheumatologist my psoriasis is part of my Crohns. The dermatologist they sent me to suggested bleach baths at least twice a week. I tried them (full bathtub with 1/2 cup of bleach) and the patches dried up. My rheumatologist also upped my dosage of methotrexate so that may have helped too.

I still get occasional patches on my palms but they subside quickly after the bleach baths. Hope this helps.
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Dx: Crohns - 2010
Dx: Severe cervical spondylosis/foraminal stenosis, ruptured discs
Dx: Severe lumbar ruptured discs
Dx: thyroid cancer - 2 surgeries - done with
Rx: Remicade, Methotrexate, Sulfasalazine, Lyrica
Vitamin D, C, B, calcium
10-22-2013, 05:42 AM   #19
ronroush7
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I go through periods where it itches and then it calms down.
10-22-2013, 05:52 PM   #20
DougUte
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Mine will itch, then calm down. They also sometimes come off my skin. It really is just a minor irritant for me.
10-23-2013, 07:21 PM   #21
sickofcrohns
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I had 6 months of guttate psoriasis a few years ago. I had to practically swim in Dovobet and get phototherapy twice weekly before it all went away -- but it did.

Yup. Love those autoimmune diseases. :S
10-29-2013, 01:14 AM   #22
Elle97
 
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I have it on my scalp, itches like crazy!! The sun and steroid cream help
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Biopsies consistent with Crohns - Jan 2014
Low Iron, Vit B12, and folate.
Ankylosing spondylitis.
Osteoporosis with spinal fractures at T6, T8 and T12.

Medication:
Humira, Oxycodone, Omeperazole, Ranitidine, Fluoxetine, Folic acid, Clonidine, Zoledronic acid, and Fresubin energy. (I've probably forgotten some meds )

Previous medication:
Prednisolone, Azathioprine, mercaptopurine, and Pentasa.
11-03-2013, 01:52 AM   #23
Shiny
 
Join Date: Jan 2013
Psoriasis since 1988, only thing that has cleared it for me is weekly enbrel shots. Started those about 3 years ago. I did find that sea water did clear things up when had beach vacations. Tried sea salt baths in between and they helped but not total clear.
01-07-2014, 12:18 AM   #24
mrjohns2
 
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I am 37. I have had Psoriasis since I was 3. Very severe. Without a biological (Enbrel, Humira, or Stelera) I am about 80-90% covered. With it, I would say 5-10%. It seems like the Stelera works well for my Crohn's as well (have had Crohn's for 2-6 years).
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Matt
Crohn's, Severe Plaque Psoriasis, Asthma, high bp, OCD, and weight
Surgeries: Ruptured Appendix; Hernia Repair post Appendix
Current Treatment: Humira
Other Meds: Vitamin D 6000 iu, 325 mg Iron, B12 Pill, Fish Oil, Multivitamin
Past Treatments: Enbrel, Humira, Stelera, Prednisone (short run)
01-07-2014, 12:33 AM   #25
ronroush7
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I have it on my arms and legs.

2
01-27-2014, 07:13 PM   #26
Miss Underestimated
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I have it. I had one tiny spot on my abdomen for a long time - since before I was diagnosed. After I had been on Humira about a year, I started getting patches of it on my thighs, mostly on the front, but a couple of tiny patches on the backs. I bought a dandruff shampoo that has coal tar in it, and it dried it up to where it's just about invisible, but it smelled so bad, I bought a jar of ointment on Amazon that has the basic ingredient that is in the shampoo, but the ointment absorbs quickly and the odor goes away. It leaves a mild plesant odor after about 30 minutes.

I now have another skin symptom - nodules on my legs, so I guess I will be seeing a derm. soon. I am slightly annoyed at having to see more doctors.
I'm supposed to see a derm once a year anyway, since I'm on Humira, but I've managed to forget about that when I could do something about it.

Last edited by Miss Underestimated; 01-27-2014 at 07:14 PM. Reason: corrections
01-27-2014, 08:11 PM   #27
ronroush7
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I also have it in my scalp.

2
01-27-2014, 08:13 PM   #28
ronroush7
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I am 37. I have had Psoriasis since I was 3. Very severe. Without a biological (Enbrel, Humira, or Stelera) I am about 80-90% covered. With it, I would say 5-10%. It seems like the Stelera works well for my Crohn's as well (have had Crohn's for 2-6 years).
Can't wait to switch to Stelara.

2
01-28-2014, 03:22 PM   #29
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I have it but it only flares when either I get really sick or start steroids.
01-31-2014, 02:59 PM   #30
Miss Underestimated
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Update: After considering the timing, I think perhaps the coal tar might have cause the skin inflammation. i stopped using it and they seem tobe less inflamed. I didn't think I would absorb much of it.
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