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Crohn's Disease Forum » Your Story » I come from the land down under (Australia)


10-18-2012, 08:50 AM   #1
JT643
 
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Join Date: Oct 2012
Location: Sydney, New South Wales, Australia
I come from the land down under (Australia)

Hey fellow peps, its great to see such a large forum full of people who want to make a difference in their lives INSPIRATIONAL.

My names JT,
I was diagnosed with Crohn's at the age of 2. From 2-12 had many fistulous was a vegetarian during that period (Milk but no eggs). From 12-present (23) had more inflammation along the large intestine. Age 18 stricture at the junction of small and large had that surgically removed and joined up. Last year had a stricture at the join of the small and large at the same spot and now have an colostomy bag with the option to remove the bag later down the track.

I've been inspired to be a role model for kids with Crohn's and I aspire to be the best version of myself mentally, physically and emotionally (which I will blog about later).

At the moment I'm working on making covers for colostomy bags with cool designs on them to give to kids in hospitals.
10-18-2012, 08:56 AM   #2
JT643
 
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Join Date: Oct 2012
Location: Sydney, New South Wales, Australia
Also if theirs any young people in Sydney that need support or help please feel free to reach out to me

Also at the moment I've been looking into this cool website google bulletproofexec and they have some really great information in their podcasts regarding diets and hacking the body.

At the moment I'm going on a meat and veg diet and avoiding toxic foods with mycotoxins and grains which has been proven to spike crohns.
10-18-2012, 01:24 PM   #3
Angrybird
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Hello and welcome to the forum

How are you feeling now? Are you on any meds? We do have a stoma forum you may like to check out so you can have a chat with others about these: http://www.crohnsforum.com/forumdisplay.php?f=46. Also are the docs keeping any eye on your vitamin levels at all?

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
10-18-2012, 11:59 PM   #4
JT643
 
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Join Date: Oct 2012
Location: Sydney, New South Wales, Australia
Thanks for the welcome AB.

I'm feeling absolutely awesome at the moment. I'm on Imuran 25mg and thats it. My vit D levels were really now at 22 units about a month ago and now are at 66 units I've been taking D3 at 9-6000 unit per day. I have osteo from all the prednisone so I'm looking to cure that with the help of vitamins and supplements...And I have remicade every 8 weeks. My doctors are just monitoring my liver and my CRP levels at the moment.

I will join the stoma forms.
10-19-2012, 01:27 AM   #5
Angrybird
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It's great to hear you are feeling well! Another level to keep an eye on is your B12 - do you know if this has ever been done?
10-19-2012, 10:43 PM   #6
David
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Hey there JT and welcome! What a cool idea making bag covers for kids. That's brilliant. Good for you

Out of curiosity, what foods contain mycotoxins?

All my best to you.
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10-23-2012, 10:38 PM   #7
JT643
 
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Join Date: Oct 2012
Location: Sydney, New South Wales, Australia
Hi David,

Thats for that. I'll be posting photos of my bags I've coloured in soon.

There's a great website called "thebulletproofexec".com

Here a post that will explain about mycrotoxins

http://www.bulletproofexec.com/anoth...r-performance/

http://www.bulletproofexec.com/mycotoxins-in-america/
10-23-2012, 10:39 PM   #8
JT643
 
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Join Date: Oct 2012
Location: Sydney, New South Wales, Australia
I highly recommend going through the website and listening to the podcasts as they has lots and lots of information on diet and hacking the body.
10-23-2012, 10:39 PM   #9
David
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Thank you, I appreciate it.
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