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10-19-2012, 12:07 AM   #1
Thales
 
Join Date: Oct 2012
Symptoms

Our daughter has Crohn's, down syndrome, achalasia, thyroid problems, diabetes, and an ostomy, and she had a psychotic episode and no longer speaks. We do not know what pain she may be feeling or where that pain, ache, whatever is localized. She has a very high tolerance for pain and rarely shows discomfort, so we have a hard time trying to figure out what she is experiencing. We would appreciate any input anyone may have on what living with Crohn's is like. Thank you.
10-19-2012, 12:38 AM   #2
Cross-stitch gal
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Join Date: Dec 2011
Location: Vancouver, Washington

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Welcome to the forum I'm afraid that each of us with crohn's may be a little different. So, there is no one exact diagnosis. But, here are a few things that I have seen with my time with crohn's. Hope this might help some.

-Stomach pain when hungry/full
-Nausea
-Diarrhea/stool with blood
-Dripping blood from the anal area into toilet
-fatigue
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Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

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10-19-2012, 10:16 PM   #3
David
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Join Date: Feb 2006
Location: Naples, Florida
Hi Thales.

Wow, your poor daughter My heart goes out to your entire family.

The best advice I can give is read the stories of members here. Their experiences should give a pretty good insight into what life with Crohn's can be like. You'll see both ends of the spectrum and everything in between.

All my best to you.
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