Share Facebook
Crohn's Disease Forum » Support Forum » Undiagnosed Club » Help! Need some advice!


10-30-2012, 07:15 PM   #1
laurelhedden
 
laurelhedden's Avatar
 
Join Date: Oct 2012
Location: Spokane, Washington
Help! Need some advice!

To start I have a beautiful family, I have 2 beautiful kids... Landon who is 3.. Calianna who is 2... and they are both diagnosed with mild-moderate Autism Spectrum Disorder.. We are headed to Seattle, Washington Children's Hospital for more testing and to find out if it's genetic or not. (okay, I know a little off topic). But, yes I live a very stressful life, a full time mom, photographer, and a full time student pursuing a nursing degree. For the past 3 years my health has plunged. Right now I'm 14 years old.. and when I was 18 my father died from brain and lung cancer and specifically his intestines became septic from problems associated with the chemotherapy. I always thought that he just had really bad IBS (Which the doctors have told me is what I've had for the past years (no testing just theory). Yesterday, my mother finally came out and told me that he had crohn's disease was diagnosed in his 20's and had to have a major surgery his mid 20's and my half sister also suffer's with the same problems so apparently it's genetic on my father's side. So after doing some research which I'm very good at because I had to be a huge advocate for my children in getting their diagnosis of autism. I've had a past history of random sores inside my mouth, random joint and muscle pain that even the doctors can't even explain, FOR YEARS NOW i've had blood on my toilet paper after going number 2 but never really thought of anything of it. I just thought that I had wiped too hard or something. And now for the worst part of it.. I've had Fecal Incontinence for 6 DAYS now with green and bright yellow diarrhea and everything I eat or drink goes straight out of me. I've lost 7lbs in 5 days. I'm so exhausted, tired, dehydrated. I went to the doctor on base (my husband is in the airforce) and my doctor did 2 blood works on me one testing my sodium levels in my blood to make sure my electrolytes are ok and the other was for a white blood count to make sure I didn't have any kind of infection. She also did a urine count. After making me walk throughout the hospital to labs, pharmacy, refferals, and back with out any help being completely fatigued making me wait in a super uncomfortable chair she tells me im completely fine and ok to go im thinking in my head what the hell?! I than go to ask her "Well what about my diarrhea, and keeping fluids down?" She than goes and tells me to go eat whatever I want it's not going to hurt anything and to just stay close to the toilet until the viral bug goes away. She knows that I wanted a referral to go see a gastroenterologist. WTH?!?!?
What do you guy's think I should do? My appt should be this this Thursday at sacred heart? Should I go to the hospital and have them admit me so I can atleast get some fluids? I don't even have the strength to barely pick my own children up or take care of them..

any advice would be great... thank you god for whoever created this forum.. and for all of the people who participate in this forum... and all of the people currently fighting for their lives..and answers.. god bless you all.
10-30-2012, 08:24 PM   #2
afidz
Super Moderator
 
afidz's Avatar
 
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
If you feel like you need to go to the hospital, then go. You could be dehydrated from having bad diarrhea. Of you have noticed blood in your BM's then you should really consider going to the ER. that can be a sign of internal bleeding. a couple years ago I didn't think anything of blood in my stools (it wasn't alot) a few days later I was rushed to the E.R. I lost so much blood that my body was lliterally killing off my arms and legs to save my organs. I am not saying that this is or may happen to you, I am saying that it needs to be taken seriously. And sometimes, the best way to get a reffural for a GI is through the E.R. Make them take you seriously
10-31-2012, 12:40 PM   #3
Ihurt
Senior Member
 
Join Date: Mar 2012
Location: United States

My Support Groups:
So Sorry you are dealing with this. If I were you, I would go back to that doctor, or call her and point blank tell her you want a referral to a GI doctor. Tell her you are not well and want to see a specialist about this. Your other choice is to go to the ER, but I will be honest with you, ER's are not very good unless you are dying basically. They will just run blood tests on you and if everything is ok, they will dismiss you and tell you to follow up with a GI doctor or your regular doctor. So you may just get the run around. You should be persistant with this doctor. Tell her you do not have a Flu bug! 7 days is a long time for a flu bug, you should have seen improvement by now.

Again, I am so sorry you are dealing with this. It is so frustrating, I know.... I am not dx and am feeling awful, so I hear ya.....













To start I have a beautiful family, I have 2 beautiful kids... Landon who is 3.. Calianna who is 2... and they are both diagnosed with mild-moderate Autism Spectrum Disorder.. We are headed to Seattle, Washington Children's Hospital for more testing and to find out if it's genetic or not. (okay, I know a little off topic). But, yes I live a very stressful life, a full time mom, photographer, and a full time student pursuing a nursing degree. For the past 3 years my health has plunged. Right now I'm 14 years old.. and when I was 18 my father died from brain and lung cancer and specifically his intestines became septic from problems associated with the chemotherapy. I always thought that he just had really bad IBS (Which the doctors have told me is what I've had for the past years (no testing just theory). Yesterday, my mother finally came out and told me that he had crohn's disease was diagnosed in his 20's and had to have a major surgery his mid 20's and my half sister also suffer's with the same problems so apparently it's genetic on my father's side. So after doing some research which I'm very good at because I had to be a huge advocate for my children in getting their diagnosis of autism. I've had a past history of random sores inside my mouth, random joint and muscle pain that even the doctors can't even explain, FOR YEARS NOW i've had blood on my toilet paper after going number 2 but never really thought of anything of it. I just thought that I had wiped too hard or something. And now for the worst part of it.. I've had Fecal Incontinence for 6 DAYS now with green and bright yellow diarrhea and everything I eat or drink goes straight out of me. I've lost 7lbs in 5 days. I'm so exhausted, tired, dehydrated. I went to the doctor on base (my husband is in the airforce) and my doctor did 2 blood works on me one testing my sodium levels in my blood to make sure my electrolytes are ok and the other was for a white blood count to make sure I didn't have any kind of infection. She also did a urine count. After making me walk throughout the hospital to labs, pharmacy, refferals, and back with out any help being completely fatigued making me wait in a super uncomfortable chair she tells me im completely fine and ok to go im thinking in my head what the hell?! I than go to ask her "Well what about my diarrhea, and keeping fluids down?" She than goes and tells me to go eat whatever I want it's not going to hurt anything and to just stay close to the toilet until the viral bug goes away. She knows that I wanted a referral to go see a gastroenterologist. WTH?!?!?
What do you guy's think I should do? My appt should be this this Thursday at sacred heart? Should I go to the hospital and have them admit me so I can atleast get some fluids? I don't even have the strength to barely pick my own children up or take care of them..

any advice would be great... thank you god for whoever created this forum.. and for all of the people who participate in this forum... and all of the people currently fighting for their lives..and answers.. god bless you all.
11-10-2012, 09:55 AM   #4
dannysmom
Forum Monitor
 
Join Date: Oct 2010
Location: NY

My Support Groups:
I agree with the above advice. If you cannot get a GI referral, then go to the ER. Good luck!!
__________________
Jeanne
Mom to Danny (16), sick since Dec 2008 but current diagnosis uncertain.

(Danny's story)
11-14-2012, 03:00 PM   #5
tiredofbeingsick
 
tiredofbeingsick's Avatar
 
Join Date: Nov 2012
Location: St. Louis, Missouri
I dont have anything to add but wanted to say that I agree you should push for a referral to a GI doc. I am currently experiencing the same thing as you (the yellow/green loose BM`s and the food/drinks going right through me, along with a host of other symptoms) I am waiting on results of biopsys taken during a EGD on Monday. I wish you the best and hope you will keep us posted. Good luck!
11-14-2012, 05:26 PM   #6
laurelhedden
 
laurelhedden's Avatar
 
Join Date: Oct 2012
Location: Spokane, Washington
Finally got to the GI doc and the next day they gave me an upper and lower colonoscopy with an endoscopy of my esophagus. They took plenty of pictures, an cut out biopsy samples. I hope they can find an answer soon. The day after my diarrhea stayed green and than into clumpy little balls like mushy like. I'm hurting today ugh =(
11-15-2012, 04:11 AM   #7
StarGirrrrl
Moderator
 
StarGirrrrl's Avatar
 
Join Date: Sep 2010
Location: UNITED KINGDOM

My Support Groups:
Hopefully that will give you some answers, but if not there is the small bowel to run tests on, both scopes only peek into either end.
__________________
2006. Tummy issues (more IBD than IBS).
2009 joint pain/worsening tummy issues.
CRP 20-36 2006-now. C3/C4 inflammation markers huge,
2014 IDA & low B12.

June 2014 admitted to Hospital 3 nights as emergency transfused 2 units of blood. Dangerous case of anaemia.
Caught by pure chance!
Cause currently unknown but suspected CD.

Waiting on blood & stool results from January.

Hoping to stop anaemia treatment soon & lower B12 daily dose!
Reply

Crohn's Disease Forum » Support Forum » Undiagnosed Club » Help! Need some advice!
Thread Tools


All times are GMT -5. The time now is 11:45 PM.
Copyright 2006-2017 Crohnsforum.com