Share Facebook
Crohn's Disease Forum » Surgery » Stoma Subforum » Stoma covers and clothing for ostomates


 
11-01-2012, 11:30 PM   #1
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
Stoma covers and clothing for ostomates

I thought that a thread for this would be useful because we often get people asking for suggestions but then the information gets lost in the general threads.

I was trawling the web and came across this site that has some interesting ideas and even instructions on how to make your own stoma covers.

This list of sources for appropriate products is from 2thFairy:

http://vblush.com/index.php?route=common/home
http://www.pouchpals.com/ostomy.htm
http://www.ostomysecrets.com/
http://www.whiterosecollection.com/index.html

BTW, if you can think of a better Title for the Thread so that it's really easy to find, please suggest away...
11-02-2012, 02:43 AM   #2
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Lovely! I'll sticky it. And if folks find a good product they can add it.
__________________
Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
11-02-2012, 07:50 AM   #3
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
http://www.weircomfees.com/demo/

This company only does clothing for ostomates. I have some of their stuff and it's really good.
__________________
Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

11-02-2012, 11:21 AM   #4
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
Got this email today from Vanilla Blush:

"Ladies and Gentlemen look what has just arrived. A Dita Von Teese Burlesque inspired Knicker. They are totally sexy and super comfy. My personal best so far.

We are offering all our customers who have ordered from us an opportunity to get some Christmas savings.

Our offer is 25% off when you spend 50. Here is the CODE VB-CS-VC

The offer includes our latest new arrival.

Offer only available till the 18th of Nov.

Here is another thing, recommend a friend and when they make their first purchase we will give you a free pair of knickers or boxers.

Happy Shopping."

Happy to assist anyone over the phone 0141 763 0991 / 07988840286 [email protected]

www.vblush.com
__________________
Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
11-02-2012, 11:27 AM   #5
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Well...I know whats going on my xmas list, vanilla blush definetly! (but not the big knickers!)
11-28-2012, 06:41 AM   #6
Spooky1
Forum Monitor
 
Join Date: Sep 2011
Location: South Northants, United Kingdom

My Support Groups:
I was just about to create a new thread about knickers for mum and her ostomy. i will make sure she has these websites. 2th fairy, you're in texas and you know all about our pounds, pence and pants. great!

thanks so much.

p.s. i don't think mum wears her pouch to the groin. its straight down. is that right. she's had hers 40 years. and she is also in desperate need of a stoma nurse as its hidiously sore around the stoma. poor thing
11-28-2012, 07:24 AM   #7
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
I think that the way you wear your stoma bag/pouch is the way you feel most comfortable. I wear a deep convexity bag because I have a retracted stoma and they only come in large. If I wear it straight down it is uncomfortable, so I angle it outwards so that it sits on the top of my thigh.

Your mother definitely needs to see a stoma nurse as she shouldn't be suffering like that. Has she ever seen one? I don't know the system in the UK but here, in Australia, they are usually connected to the major hospitals. Terriernut might be able to help you with how to connect with a stoma nurse over there.
11-28-2012, 12:28 PM   #8
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Yes, most of the NHS hospitals have stoma nurses. All you need do is ring and ask. You dont need a referral or anything. Some will come out to visit you, or you can make an appt to go in and see them.
01-07-2013, 02:56 PM   #9
smallfry
Senior Member
 
smallfry's Avatar
 
Join Date: May 2012
Location: Ontario

My Support Groups:
I just ordered a fun orange giraffe print wrap from Awestomy. They have some nice stuff!! http://www.awestomy.com/ They also have a facebook page. I can't wait, I'll post a review!
01-07-2013, 04:09 PM   #10
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
I just ordered a fun orange giraffe print wrap from Awestomy. They have some nice stuff!! http://www.awestomy.com/ They also have a facebook page. I can't wait, I'll post a review!
I just checked out their site and ordered a "Strut with Your Front Butt" T-shirt. Hahaha!! Thanks for the link, smallfry!
01-07-2013, 04:31 PM   #11
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I want that T shirt!!! I have Oprah Winfrey's butt on my abdomen because of the hernia.
01-07-2013, 05:20 PM   #12
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
Hahaha!!!
01-10-2013, 06:03 PM   #13
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
Just got it! Thanks again for the link, smallfry. From http://www.awestomy.com
Attached Images
File Type: jpg smnew shirt_011013.jpg (45.4 KB, 305 views)
01-12-2013, 12:10 PM   #14
smallfry
Senior Member
 
smallfry's Avatar
 
Join Date: May 2012
Location: Ontario

My Support Groups:
Awesome 2thFairy!!!! That was fast!!! My wrap was backordered, plus i'm in Canada so... I'm so excited for it!
01-15-2013, 01:47 PM   #15
Absentminded
Forum Monitor
 
Absentminded's Avatar
 
Join Date: Nov 2009
Location: Bristol, United Kingdom
I've been getting a rash from my stoma bag (where it's been a bit hot against my skin,) so my stoma nurse ordered me some cotton bag covers. They're prescription ones, so plain white and massive! So, I decided to make myself a properly fitting, pretty one 😃
I would make more in different fabrics, but I'm having Norman reversed in five weeks so there doesn't seem like much point.

Apologies for the bad photo! The bag cover isn't perfect, but not bad for a first try. ImageUploadedByTapatalk1358275604.652112.jpg

P.s. I followed the instructions on this website, although its not really that difficult! http://www.stomaatje.com/clothing.html#covers
__________________
Lucinda x

Diagnosed: July 2009

Resection and removal of Enterocutaneous Fistula: Jan 2014
Pelvic infection Drainage: April 2013
Ileostomy reversal: February 2013
Ileocecal resection and temp. ileostomy (Say hello to Norman!): Nov 2012
Current Medication: NONE!

Past medications: Humira, Infliximab, Azapthioprine, Asacol, Budesonide, Prednisolone, Flagyl, Cipro, Cholestyramine (Questran), Fortisips.
01-15-2013, 02:24 PM   #16
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
whoop whoop! Looks good!!
01-15-2013, 02:50 PM   #17
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
That's great! And it's your first try?! Wow!
01-15-2013, 03:04 PM   #18
Absentminded
Forum Monitor
 
Absentminded's Avatar
 
Join Date: Nov 2009
Location: Bristol, United Kingdom
I should add that I do a lot of sewing....so although it's my first stoma bag cover, it's not the first thing I've made!
01-15-2013, 04:35 PM   #19
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
Hey, that looks great. I love the fabric that you chose.
01-15-2013, 04:46 PM   #20
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
That looks fantastic! What talent you have
01-15-2013, 05:03 PM   #21
Absentminded
Forum Monitor
 
Absentminded's Avatar
 
Join Date: Nov 2009
Location: Bristol, United Kingdom
Ah thanks everyone! It's a Cath Kidston fabric, I love her prints!
01-15-2013, 06:07 PM   #22
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
Btw, thanks for the link to awesomy...I just ordered 2 t-shirts, the mama's got a brand new bag, and everybody poops somehow...lol Awesome!!!
01-21-2013, 12:49 AM   #23
smallfry
Senior Member
 
smallfry's Avatar
 
Join Date: May 2012
Location: Ontario

My Support Groups:
I got my wrap on friday It fits me perfect!! I was worried being small that a small would not fit but it does yay! I like the little pouch at the bottom to support my bag.
02-08-2013, 07:21 PM   #24
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
Vanilla Blush has their naughty undies and some other stuff on sale for Valentine's Day.

"Hi all just to let you know that we are having a little sale for a limited time only

All our Crotchless underwear, and a few of our other items are all reduced to 10."



www.vblush.com
02-09-2013, 10:29 AM   #25
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
JennaRae found this place: Gus Gear http://www.gusgear.net/default.html
02-09-2013, 10:30 AM   #26
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
Here is an Australian company with undies and pouch covers.

http://betweenyouandme.com.au/index.php
03-19-2013, 06:32 PM   #27
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
http://www.dailymail.co.uk/femail/ar...tners-off.html

An article about a new line of lingerie for ostomates
03-19-2013, 07:00 PM   #28
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
Great for colostomates who have stomas that have periods of time with little or no output. I like the idea of combining with some "body art" - could disguise scars, too.
03-20-2013, 02:08 AM   #29
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Very nice! Let's hope he gets his company up and running and is successful.
03-20-2013, 07:58 AM   #30
Jaano711
Forum Monitor
 
Jaano711's Avatar
 
Join Date: Apr 2012
Location: South Australia

My Support Groups:
I got my 'my ostomy is here' t shirt today. I want to wear it but will wait for the outlaws to go so I don't have to answer any 'strange' questions from them.
__________________
__________________________________________

: Janette


I meant to have Jano as my user name, but did a typo!
Reply

Crohn's Disease Forum » Surgery » Stoma Subforum » Stoma covers and clothing for ostomates
Thread Tools


All times are GMT -5. The time now is 05:20 AM.
Copyright 2006-2017 Crohnsforum.com