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11-04-2012, 11:51 PM   #1
Ozboz
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Location: Melbourne S.E. Suburbs, Victoria, Australia

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Do you carry a kit

Hey guys just wondering if you carry a "shit kit" that's what I call mine I carry a bag with me in it I have a roll of toilet paper god knows how many times I have ran to the toilet sat down not to have an accident and damn no paper to clean up with, then I also carry so baby r wet wipes just in case of an accident and I carry some diapers to change into if I find they help with clean up and smell I find it hard at the best of times to control my bowels, also some lastic carry bags to throw it all out and I have some disinfectant hand liquid and some pills in case I have pain or a painfull BM and my guts hurt after or if any other pain comes over me so how bout you I find this to be a life saver sometimes
11-04-2012, 11:55 PM   #2
Hobbes650
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Hi Ozboz, I never did. I hope you get better soon you so you don't have to do this for very long! LIfe shouldn't be that hard, at least not all the time.
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Hobbes650

Ulcerative Colitis 1986
Complete Proctocolectomy with j-pouch 1987
Permanent Ileostomy 1991
Crohn's Disease (just inside stoma) 2012
No meds post 1987 surgery to 2012

Current Meds:
Pentasa 3000mg daily
Imuran (Azathioprine) 100mg daily
Folic Acid supplement: 1mg daily
Mulit Vitamin/Fish Oil or Flaxseed Oil daily
Tumeric and Boswelia occasionally.
11-04-2012, 11:59 PM   #3
Ozboz
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yeah beats sitting at home all the time I guess
11-05-2012, 12:01 AM   #4
rinasme
 
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Location: Edmonton, Alberta
I don t call it that.. but shit kit works, I always have toilet paper and spare pair of underwear and pants in the truck. My medical bag is buscopan and an antacid carry cream for the sore butt and imodium.
I plan my trips carefully do not eat much if I fly and know where every washroom is.
11-05-2012, 01:40 AM   #5
Jennifer
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When I was growing up my mom always had wet wipes and a spare change of underwear for me if I ever had an accident. She still keeps wet wipes in her purse just in case. I haven't adopted this habit yet unless I'm traveling. Hope you'll start feeling better soon.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
11-05-2012, 03:18 AM   #6
EmmaCh
 
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Location: Wirral, United Kingdom

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Hi

I find these compact little air fresheners really good as part of a kit http://www.scentedcandleshop.com/onl...prays-1433.cfm

Emma
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DX Crohns 1994
3 resections (terminal ileum) 1994, 2011, 2012
Azathioprine, Pentasa, colestyramine, iron tablets and B12 injections
11-05-2012, 07:49 AM   #7
2thFairy
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I had a shit kit, though I rarely left the house before colectomy. Jeans, underwear, wipes, eucalyptus drops for the toilet, and even a pair of socks. Now my shit kit is just my ostomy supplies and I do leave the house a lot.
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
11-05-2012, 09:29 AM   #8
sanni
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With an ostomy I always have an er-kit with spare bag in it. I also carry some wetwipes and a small tissue pac to use as tp or any other reason needed. I have a small pillbox that has some pain meds, salt tablets.. and some other mineral tablets (potassium, magnesium) and imodium. Just anything I may feel I need. Of and ofc hand sanitizer. These all are in my handbad and are with me everywhere I go.
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Crohn's diagnosed in -93 (age 12)
I have had several operations with the result in short gut syndrome.
Ileostomy (2008).
Meds: Humira and tons of nutrition supliments including B12 and D injections.
Hypokalemia (hypopotassemia) and hypomagnesemia.
My Story
11-05-2012, 12:03 PM   #9
CrohnsChicago
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I usually just keep a travel packet of wipes, travel packet of tissue and an extra pair of undies in my purse during a flare as well a few xanax to calm my mind. Because sometimes if I overreact to a stressful situation I am more likely to have a sudden sense of urgency.
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Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

11-05-2012, 02:03 PM   #10
Absentminded
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I always have a spare pair of knickers in my bag, paracetamol and some antibacterial hand gel. I do keep loo roll and wet wipes in my car as that's when I am more likely to have issues!
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Lucinda x

Diagnosed: July 2009

Resection and removal of Enterocutaneous Fistula: Jan 2014
Pelvic infection Drainage: April 2013
Ileostomy reversal: February 2013
Ileocecal resection and temp. ileostomy (Say hello to Norman!): Nov 2012
Current Medication: NONE!

Past medications: Humira, Infliximab, Azapthioprine, Asacol, Budesonide, Prednisolone, Flagyl, Cipro, Cholestyramine (Questran), Fortisips.
11-05-2012, 02:17 PM   #11
PVail
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Spare underwear , wipes/tissue in every coat I own. Pain killers and Asacol everywhere.
In work I keep a complete shower kit for when Im on shift and it all goes wrong and of course a change of clothes.
I find monitoring my movements ahead of time helps me stay somewhat in control. I mean if Im going on a trip then I will be very carefull what i eat previous and mostly dont eat before i leave home.
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Peter


DX March 2012 IBD - Inflammation of the Terminal Ileum with inflammed appendix
Asacol 800mg 4 x day
Amitriptyline 50mg
Omeprazole 20 mg when needed.
11-05-2012, 02:20 PM   #12
CrohnsChicago
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I find monitoring my movements ahead of time helps me stay somewhat in control. I mean if Im going on a trip then I will be very carefull what i eat previous and mostly dont eat before i leave home.
I also take extra care of what I am eating when I know I am going out soon and for long periods of time. Better to be safe than sorry, I tell myself.
11-05-2012, 03:11 PM   #13
Beatit
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I have had toilet paper in my trunk car since 2006! LOL pull over and go to the woods will do!
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Got Crohns: 2006 they scoped throat and colon age 18. They said I could get from throat down anytime.
Current Medication: Taking Asacol
11-05-2012, 07:48 PM   #14
Ozboz
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Location: Melbourne S.E. Suburbs, Victoria, Australia

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I have had toilet paper in my trunk car since 2006! LOL pull over and go to the woods will do!
Yeah done that a few times myself got busted in the bushes at the beach once what can you do if you gotta go you gotta go.


Also my main problem are anal leaks of mucus and watery stuff I have absorption issues my stools are pretty formed but fly out due to the area where the poop stops and stores in the rectum being very inflamed so I have heaps of trouble controlling my motions gotta do the 30second dash sometimes and not always making it thats why I need a kit
11-05-2012, 08:16 PM   #15
Cross-stitch gal
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Location: Vancouver, Washington

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I don't have any in our cars. But, I do have a bag in my locker at work that has a spare pair of pants, underwear, plastic bag to put the soiled clothes in & I'm not sure exactly what else just in case of an accident at work.
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


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