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11-14-2012, 11:22 AM   #1
kmatthews530
 
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Join Date: Jun 2012
Location: Downingtown, Pennsylvania
Cimzia gave me a healthy pregnancy

I'm sharing my story because it helped me so much to see others on this forum fighting the same battles I was, and not giving up hope. It helps so much to know you're not alone in a fight...
I've been battling Crohn's the better part of 10 years. After unsuccessful results from all of the "wimpy" drugs, 2 years into my official diagnosis Remicade proved the miracle cure for me. However, a few years later (3 days after returning from my honeymoon) I had a severe reaction during an in-home Remicade infusion. My body had developed antibodies against the one drug that worked. My husband and I were already testing our vows "through sickness and in health!"
I immediately tried Humira, even a double dose, but still no relief over the next few years.
Despite the ever-present Crohn's symptoms, I was able to conceive in July 2009, and was in remission during a wonderful, healthy pregnancy. I stayed on the Humira throughout pregnancy, which I worried about, but my son was born, and at 2 now is still, incredibly healthy.
In October 2011 I had a small bowel resection, and it seemed that my Crohn's got WORSE after surgery. I felt so defeated after going through such an invasive surgery and grueling recovery period, and not seeing the "miracle" results my husband and I hoped so much for.
I started on Cimzia shortly after surgery, but it didn't seem to give any relief. A colonoscopy in January 2012 showed the Crohn's was back.
To add insult to injury, a routine eye exam showed the prolonged steroid use was my prime suspect for the beginning stages of Glaucoma.
In April 2012, a negligent doctor gave me Keflex for a sinus infection, spiralling me into a horrible flare, and eventually landing me in the hospital. Unfortunately, I also miscarried as a result of the flare. I was so devastated that this disease would take away my choice to grow my family.
Following that last flare and the miscarriage, I skeptically started on a double dose of Cimzia - one shot (given by my loving husband) every week. A few months later, I was feeling great (gaining weight and energy), I was pregnant again!, and this time, 3 months in now, everything is looking great.

Please don't lose hope. I thought I was going to, but now I have so much to be thankful for
11-14-2012, 03:44 PM   #2
Angrybird
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Location: Cambridge, United Kingdom

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Hello amd welcome to the forum

I am so pleased to hear that the Cimzia has been able to turn a corner for you and things are now going well after such a tough time - long may it continue! We do have a sub forum for this med that is worth checking out to speak to others about being on it: http://www.crohnsforum.com/forumdisplay.php?f=87.

Wishing you all the best.

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
11-15-2012, 08:33 AM   #3
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What an amazing story! It's really heartening for me personally to hear about healthy, normal pregnancies in women who have Crohn's. Congratulations on BOTH your little ones!
11-17-2012, 08:07 PM   #4
David
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Location: Naples, Florida
Hi there and welcome to the community! Thank you SO MUCH for sharing your story. I hope you don't mind, but I'm also going to copy your thread to our TTC forum as people there can certainly use great stories like this.

Again, welcome!
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11-22-2012, 04:06 AM   #5
StaceyQ
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Location: Petersfiel, United Kingdom
Welcome to the forum and thank you for shring your amasing story.

I too want to grow my family (already have 2 children) but you have made me realise that i can. My consultant said no but you have just proved to me that you can do it.

Thank you.
11-22-2012, 05:49 AM   #6
cleuger
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Location: Space Coast Florida

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That's wonderful. Cimzia for some is a nothing short of a miracle, well for me anyway and it sounds like you've been helped tremendously. I wished I had been diagnosed during my last 2 pregnancy's I was flaring through both. Hope everything continues to go well for you.
__________________

Diagnosed 10/02/2012 Crohns Colitis
05/28/14 Surgery Abscess due to Fistula
09/18/2014 Surgery Total Proctocolectomy
rectum removed and closed up.
Best Decision I ever made.

Gastro Released me said I didn't need meds any longer

Have 3 kids only 1 at home 17 yr old is Type 1 Diabetic


Currently Taking
Tramadol
Xanax
Multi Vitiman
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