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11-28-2012, 12:47 AM   #1
David
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My holistic treatment diary for Lymphocytic Colitis

Current Status: remission

I do SO WELL if I stick to my regimen I've developed. But far too often, I do not. I'm starting this public diary to pressure myself to finally take that big step, pull up my big boy pants, and stick to my regimen. As such, I will be detailing everything I do to treat my Lymphocytic Colitis in this ongoing thread. I will also post any moments of weakness. Feel free to chime in, ask questions, scold me, etc.

Current symptoms:
I will update these each day in the actual diary posts.

Lower right gut pain
Costochondritis
Eye inflammation
General aches
Emotional stuff

Known dietary triggers:
Eggs
Gluten
Soy
Yeast - Bakers AND brewers.
Corn
Sorbitol
Apples
Onion
Garlic

Suspected dietary triggers:
Salmon
Bananas

Supplements
500-1000mg of Turmeric per day
750mg (down to 300mg) of magnesium per day - these pills also contain calcium and vitamin D. Be VERY careful supplementing over 350mg of magnesium per day and do so under a doctor's supervision. Magnesium in high dosages can have a laxative effect.


Miscellaneous changes I have made:
- I NEVER use normal table salt in my cooking anymore. All it is is NACL. Our bodies (especially those with IBD who are prone to deficiency) need a variety of trace elements and high quality sea salt can help provide some of those, and every bit helps. AND it tastes better. I personally use this as some sea salts are processed.

- I don't use normal toothpaste anymore. Even the "healthy" toothpastes have absolutely terrible ingredients. I realize this sounds paranoid, but read this thread. I use a mix of sea salt, baking soda, peppermint, and coconut oil. Here is the recipe.

- SO MANY organic (and other) products contain carrageenan. AVOID IT LIKE THE PLAGUE.

- The only water I drink is electrolyte enhanced. That reverse osmosis water filter you have? It's stripping out trace elements and probably screwing you up. So I put them back as I have a reverse osmosis system. I purchased and installed this product to put the calcium and magnesium back in my water. EVERYONE with IBD should be drinking electrolyte enhanced water in my opinion unless your water already has lots of natural occurring trace elements and aren't being stripped out by any filtration system.

- I try to get plenty of vitamin D from the sun. Last time I was tested, I was at 82 and that's without supplementing. While supplementation is the best alternative, there's much more going on in your body than just vitamin D generation when you're in the sun. Science is still trying to figure out a lot of these processes.

- I avoid hydroponically grown fruits and vegetables. I want soil microorganisms to help determine uptake of nutrients into plants to avoid high nitrate levels. Highly soluble fertilizers just cram the nitrates into the plant and nitrates can lead to a whole host of problems. This is one of the MANY reasons I only eat organic as well.

- I try to only eat grass fed, naturally raised meats. They are SO MUCH healthier for a variety of reasons.

- I only use coconut oil in my vegetable cooking that goes above 220 degrees (I try to stay below 350 degrees) and only use olive oil, ghee, or organic butter otherwise. I avoid all other oils.

- 95% of my cooking is done on cast iron. The other 5% is stainless steel which I try to limit because of potential nickel exposure. All those non stick pans? Trashed. You can get iron from cooking with cast iron (how many of you are iron deficient) and the non stick pan chemicals are terrible.

- All of my cooking utensils are stainless steel or wood. No plastic allowed. I prefer wood so as to avoid potential nickel exposure.

- I avoid utilizing aluminum as ingredients in anything that might go in my body or in cooking. Why? Give this a read.

- I take between 500mg and 1000mg of Turmeric per day.

I'll add more changes as I think of them. I've made so many that have become second nature that I'm not thinking of them right now.
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11-28-2012, 01:10 AM   #2
David
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Day One

Lower right gut pain - 4 out of ten
Costochondritis - 4 out of ten
Eye inflammation - 5 out of 10
General aches - 3 out of 10
Emotional stuff - Meh

12:50 - 1:08am - Yoga. Felt longer than that I'm out of shape.

1:10am - 1:50am - Meditation and self massage with a tennis ball.

11:30am - Green tea with home grown, better than organic (BTO) Moringa Oleifera leaves.

11:40am - Smoothie with home grown better than organic (BTO) kale, home grown BTO papaya, organic oranges, organic cherries, organic peaches, organic carrots, organic protein powder.

12:45pm - 2:45pm - Worked outside on the farm for a couple hours with no shirt on. Soaked up lots of winter vitamin D.

2:50pm - Ate 1/2 cantaloupe

6:30 - Ate dehydrated organic bananas

9:30 - Ate a homemade soup with a TON of different homegrown and store bought organic veggies with lots of great spices as well.

10:40 - Exercises for my costochondritis using these.
11-29-2012, 01:10 PM   #3
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From now on, all foods are organic unless stated otherwise.

Day Two

Lower right gut pain - 2 out of ten
Costochondritis - 3 out of ten
Eye inflammation - 5 out of 10
General aches - 4 out of 10
Emotional status - 5 out of 10 (with 10 being super happy and 1 being super depressed)

Late start today

12:30pm - Morning tea - Green with moringa

1:00pm - Smoothie - Oranges, berry blend, acai, carrots, banana, black strop molasses

*** I seem to be having some indigestion. Hurts when I breathe in, in my abdominal area. Not sure if it's the tea, smoothie, or just a coincidence. Kinda weird. Didn't finish the tea or smoothie. I'll repeat them both tomorrow with the exact same ingredients to see if it happens again. It's a newer tea whereas all the other ingredients have been used often so it would be my primary suspect.

2:30pm - 3:00pm - Yoga

3:00pm - Homemade soup

6:00pm - Grapes

6:45pm - A piece of Dubliner cheese. This is a hard, aged cheese. Not organic though.

7:30 - Homemade soup and cucumber/carrot salad

8:30 - Dates

9:30 - Liverwurst - I eat liverwurst because organ meats such as the liver, kidneys, and heart are EXTREMELY dense in various vitamins, minerals, and extremely important essential nutrients. Yet we never eat it anymore! In older times these organs were viewed as magical, I personally believe due to the nutrients contained within them that the ancients didn't understand. Anyway, the liverwurst I linked is by far the best I've found and is actually very tasty.

10:00 - Neti pot - Utilizing the neti pot seems to help my eye a bit but I also use it to get all the gunk out of my nasal passages that collected during the day, especially when I work in the yard.
11-29-2012, 02:14 PM   #4
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Good on you for starting the diary and tackling things head on. The diet regime - how long are you going to be on that for?
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11-29-2012, 02:25 PM   #5
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Thanks! I've already avoided some stuff because I didn't want to have to admit I ate it. Hahah. Peer pressure is wonderful This should also help me correlate various foods and practices with my symptoms.

Regarding how long I plan to be on the diet, at present, forever. My diet is based upon my research into nutrients and slowly figuring out what foods trigger me. I have no doubt it'll continue to evolve as I learn more.

I'll edit in my known and suspected triggers into the first post.
11-29-2012, 02:57 PM   #6
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Naughty boy. What did you eat that you didn't confess to earlier? Is that not maybe what's causing the pain?
I have to say the diet sounds quite tough, David. I know you know your stuff, but it sounds like quite a big ask to live on just soup and smoothies.
11-29-2012, 03:11 PM   #7
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Thats awsome David that you are doing the diet. I really hope it can heal you and keep you well..

I am also seriously contemplating doing a special diet too. I already eat as much organic as possible( no GMO foods at all). I know it will tricky for me as I have other issue besides my gut. Like for instance what may not bother my gut will inflamme my bladder and vice-versa so it will be a venture to say the least in terms of finding what works for me.

I know it is hard to give up certian things we love to eat. I have sacraficed So many food due to my illnesses. I have not eaten chocolate in over 6 years! I also have not been able to drink coffee in years as well. I had to give up salads as well since they upset my intestines too much . I miss my greek salads the most out of everything( I know, I'm a werido Like who misses salads right lol!

Keep with it David, I truely hope it works for ya!!! I mean if it does, then it was well worth it in the end....
11-29-2012, 06:18 PM   #8
David
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Naughty boy. What did you eat that you didn't confess to earlier? Is that not maybe what's causing the pain?
I have to say the diet sounds quite tough, David. I know you know your stuff, but it sounds like quite a big ask to live on just soup and smoothies.
The last two weeks or so I was TERRIBLE. From Nachos (about 6 times) to McDonalds (seriously), I went on a bender. I start to feel really good and then... yeah.



I definitely don't just eat soup and smoothies though they are my go-to for getting things under control. I have a freezer full of grass fed steaks and enjoy fruits and veggies in a variety of preparations.
11-29-2012, 06:21 PM   #9
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Thanks for posting this David, i've always been somewhat intruiged as to how you treat yourself, considering how well read you are.
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11-29-2012, 06:22 PM   #10
David
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Thanks for posting this David, i've always been somewhat intruiged as to how you treat yourself, considering how well read you are.
Hmmm. I didn't look at it from that perspective. This was more of a means of pressuring myself not to slip up as much

Would you like me to list all the changes I've made that have to do with my treatment?
11-29-2012, 10:30 PM   #11
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Yes, please.
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11-30-2012, 05:52 AM   #12
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Hmmm. I didn't look at it from that perspective. This was more of a means of pressuring myself not to slip up as much

Would you like me to list all the changes I've made that have to do with my treatment?
I really would. It always interested me just because 90% of people on this forum have their treatments in their signiature. I assumed as an Admin you were just trying to remain impartial, hah.

But yes considering your depth of knowledge, the manner in which you personally choose to medicate your own body is of great interest to me! I hope it does well to encourage you not to slip up!
11-30-2012, 11:15 AM   #13
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I really would. It always interested me just because 90% of people on this forum have their treatments in their signiature. I assumed as an Admin you were just trying to remain impartial, hah.

But yes considering your depth of knowledge, the manner in which you personally choose to medicate your own body is of great interest to me! I hope it does well to encourage you not to slip up!
I edited in some of my changes in the first post. I'll add more as I think of them as some have become second nature.

I avoid putting my treatment in my signature for a few reasons. One of the bigger ones is because I have Lymphocytic Colitis, not Crohn's disease or Ulcerative Colitis. While LC is a form of IBD, if my disease is mismanaged, it's not going to lead to a whole host of very bad complications. Many people don't understand the difference between LC and CD/UC, especially new people, and I don't want to mislead them into thinking what I'm doing might be right for them. What I'm doing may be good supplemental treatment for people with UC or CD, but I definitely don't believe it should be the entire treatment.

Everything I'm doing is an experiment. While it's all based upon science, I'm not in remission. Hopefully that's because I have slipped up so often and that'll change soon
11-30-2012, 11:23 AM   #14
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Day 3

Lower right gut pain - 2
Costochondritis - 2
Eye inflammation - 5
General aches - 2
Emotional stuff - 7 (with 10 being super happy and 1 being super depressed)

10:30am - neti pot

11:00am - Green tea with Moringa. - No indigestion.

11:15am - 1/2 Cantaloupe

12:15pm - Smoothie - same as yesterday but added a brazil nut for selenium. -- no indigestion today after the green tea and smoothie. So it may have just been a coincidence but I was pondering it. I made them at the same time yesterday and both were sitting on my desk. I may have switched back and forth between drinking hot then super cold. So THAT may have been what freaked my body out.

1:30 - Liverwurst (explanation given yesterday)

2:30 - Piece of cheese

4:05 - Grapes

5:30 - Homemade soup

8:00 - Dehydrated bananas

8:05 - Exercises for costochondritis

10:15 - Grapes

11:00 - Homemade soup

-- I had my first near cave after dinner. I was pressured into having some chocolate because, "It's ok in moderation." I was tempted but stayed strong

1:15am - Neti pot

1:20 until whenever - Meditation. Goodnight.
12-01-2012, 12:59 PM   #15
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Day 4

My gut really flared up for some reason It's worse than it's been for awhile. I'm thinking maybe it's all the cheese I've been eating creating really hard stool. Considering I've recently been diagnosed with bleeding hemorrhoids (fun) and told I need to increase fiber intake, maybe that's all related. So no more cheese for awhile

At least other stuff is doing pretty good

Lower right gut pain - 5 out of ten
Costochondritis - 2 out of ten
Eye inflammation - 2 out of 10
General aches - 2 out of 10
Emotional stuff - 4 out of 10

10:00 - 10:30am - Self massage with tennis ball

11:00 - 11:20am - Yoga

11:30 - Homemade soup

12:00 - Neti pot

3:00 - Organic grass fed hamburger

4:15 - Pork ribs (not organic)

5:30 - Carrot juice

7:30 - Dates

9:30 - Grapes

10:15 - Goat milk kefir. I found this at whole foods today and thought I'd give it a shot. It's the plain kind but I like the taste!

10:45 - Costochondritis exercises
12-01-2012, 01:27 PM   #16
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How long have you been using the Turmeric? Do you find it helpful? I've read conflicting things about it...I know you have LC and I have UC so I should read more about it before I start taking it (Have some in my medicine cabinet)

I think it's a good idea for everybody to document their daily regimen. Forces one to stay on track and figure out their triggers. I might have to follow suit

I'll be following along with this....btw can't wait to start my costochondritis exercises! Pain is killin me today!
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12-01-2012, 04:04 PM   #17
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Hey David, this is a stand-up post, no doubt about it.

I had a few things I wanted to add:

1. You seem to put a lot of fruit into your smoothies, perhaps try adding a higher balance of veggies to fruit (i.e. kale + cucumber, water and 1 apple) -> that way the drink is very low glycemic (could really help stabilize your blood sugar)

2. Do you have a goal in mind when you are doing this process?

I suspect (but don't want to assume) that I know why you are cheating so much ... let me know and I might be able to get rid of those cheats for you

Oh yeah, one more thing, what kind of organic protein powder are you using (i am assuming new Zealand?)

let me know, because I used to use the powders a lot before, but completely switched off them (I absolutely hate that industry for more reasons than 1)
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12-01-2012, 09:06 PM   #18
David
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How long have you been using the Turmeric? Do you find it helpful? I've read conflicting things about it...I know you have LC and I have UC so I should read more about it before I start taking it (Have some in my medicine cabinet)

I think it's a good idea for everybody to document their daily regimen. Forces one to stay on track and figure out their triggers. I might have to follow suit

I'll be following along with this....btw can't wait to start my costochondritis exercises! Pain is killin me today!
I've been taking Turmeric for around two months now. I've definitely seen an overall reduction in symptoms. Obviously that may be in part or whole to other things I'm doing but I value it as part of my regimen.

I'm sorry your chest is hurting so bad I've been there, it's miserable. I feel you bud.

And by all means, feel free to start your own thread. I enjoy reading others journeys and I really do think it helps.
12-01-2012, 10:41 PM   #19
David
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1. You seem to put a lot of fruit into your smoothies, perhaps try adding a higher balance of veggies to fruit (i.e. kale + cucumber, water and 1 apple) -> that way the drink is very low glycemic (could really help stabilize your blood sugar)
Thank you for the suggestion! Would you be willing to educate me about the benefits of stabilizing blood sugar?

2. Do you have a goal in mind when you are doing this process?
remission

I suspect (but don't want to assume) that I know why you are cheating so much ... let me know and I might be able to get rid of those cheats for you
I'm all ears!

Oh yeah, one more thing, what kind of organic protein powder are you using (i am assuming new Zealand?)
Florida, USA. I use this one. I personally prefer not to as I get plenty of protein but my wife is vegetarian and doesn't get much protein. I make us both smoothies so *shrug*

Thanks Boris
12-02-2012, 05:44 AM   #20
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I would like your toothpaste recipe, please and thank you The thread about what's in commercial toothpaste absolutely horrified me.
P.S. My grandmother used to clean her teeth with soot from the chimney!!
12-02-2012, 11:27 AM   #21
David
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Day 5

My gut is MUCH better than yesterday thank goodness!

Lower right gut pain - 3 out of ten
Costochondritis - 1 out of ten
Eye inflammation - 2 out of 10
General aches - 1 out of 10
Emotional stuff - 6 out of 10

10:00am - Goat milk kefir

11:20 - Yin yoga - Janu sirsasana - Basically this means I held this post for about 3 minutes per side. It helps with some serious lower right back tension I have.

11:27 - Smoothie

1:30pm - Fell of the wagon Went to a gardening club meeting and had some breaded chicken fingers and corn chips.

Back on the wagon we go...

4:50pm - Goat milk kefir

5:00 - Grapes

~7:00 - Meditation

9:00 - 2x Tangerines

12:30am - Soup
12-02-2012, 11:35 AM   #22
David
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I would like your toothpaste recipe, please and thank you The thread about what's in commercial toothpaste absolutely horrified me.
P.S. My grandmother used to clean her teeth with soot from the chimney!!
Soot? Hah! How were her teeth?

Here is the recipe I use.
12-02-2012, 03:33 PM   #23
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Thank you for the suggestion! Would you be willing to educate me about the benefits of stabilizing blood sugar?




remission


I'm all ears!


Florida, USA. I use this one. I personally prefer not to as I get plenty of protein but my wife is vegetarian and doesn't get much protein. I make us both smoothies so *shrug*

Thanks Boris
That I would my friend

Basically what happens when you eat to many fruits at once (or any kind of high glycemic food: white breads, sugar, candy, white pasta etc)

Your body spikes your insulin levels. This will give you a great boost of short term energy, but it also assures you a crash as soon as the spike is over.

The more you spike your insulin, the more resistant you become to it. (meaning it starts being less and less effective and could end up causing diabetes)

Not only that, but the crash drains all your energy and you start to feel tired. So you make your body go through up's and downs.

On top of those factors, if you aren't using that short term energy, your body won't need it and it will be stored as fat.

Lastly, (although this isn't really a concern for you) the more veggies usually assures more alkalinity in the nutrients taken in.


As for your goal:

Looks like I did guess correctly

There is a reason why people who lose a lot of weight gain it back.

It is a psychological principle that goes like this:

If you make a goal that's targeted to going away from something (i.e. I don't want to be fat anymore and I want to look fantastic for my wedding -> for example)

What ends up happening is that you achieve your goal (losing the weight for the wedding), but after the wedding you gain it all back again.

why?

Simply because the goal was going away from being fat. What your subconscious mind then does is say " ok great, I won't ever be fat anymore, so now I can eat that junk again" ->(you don't even realize that this is happening, which is the frustrating part)

So you start to slowly let foods back in and before you know it, you are fat again.


However, positive (going toward goals) last long-term. For example (I am going to exercise because I want to attain better health and fitness everyday for the rest of my life)

Now you are constantly going toward something and it's for the rest of your life. You don't have a point where you will reach the goal and say, ok great I can't reach better fitness or health anymore.


So for you specifically, because your goal is remission, when you are in remission, your subconcious mind goes "ok great, remission, time to eat junk again because I will never flare again"

Instead of remission, a possible goal could be "I will work on my diet and nutrition, everyday to cure my intestinal problems and then to achieve even greater health and set an example for other people"

Now you are setting yourself up for a) believing you can cure yourself and b) going for even more and setting examples for others (of course I just made this up on the fly, but I hope it shows my point)


My problem with protein powders:


To summarize I could create a protein powder tomorrow, put in anything I wanted and sell it to you.

Basically, there is 0 regulation over these products and they are purely made for profit (with great margins).

Here is a video I highly recommend (that shows a guy who does exactly what I explained- highers Mexican workers to package a "proprietary protein powder" and he shows how he out's nothing but fluff in them"http://www.youtube.com/watch?v=ApmX8Q0vqKI


whew! Hope that helps
12-02-2012, 05:23 PM   #24
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Great regimen David, I look forward to following the thread.

Suspected dietary triggers:
Salmon
Garlic
I find Salmon as a possible trigger quite interesting. Do you have any problems with any other fish? Do you handle nuts well?

Gianni
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12-02-2012, 09:37 PM   #25
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Thanks Boris.

I read what you had to say and then went and meditated for about an hour.

You're absolutely right. I haven't wanted to change. I have wanted to do the least amount necessary to feel better. And once I'd start to feel pretty good, because the goal wasn't permanent change, it was justification for me to start eating like crap again. Because that's what I wanted to do. Because crap food tastes so freaking good, is easy, and addictive.

I need to break this cycle. But I have to want to change.
12-02-2012, 09:41 PM   #26
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I find Salmon as a possible trigger quite interesting. Do you have any problems with any other fish? Do you handle nuts well?
Not that I'm aware of. It doesn't make much sense to me either and it's still theoretical. Hopefully not as I love salmon. In case you're wondering, only wild caught of course.

I've had three different days where the day after I ate salmon my gut was a lot worse. And I stopped salmon oil supplements a long time ago as I felt like I was worse on them.

I do fine with nuts.
12-02-2012, 09:53 PM   #27
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Well seafood allergies and stomach issues related aren't uncommon. I know that there is a standing theory on the role of mycotoxins in seafood being a cause for many of the allergies and problems associated with seafood.

I'm sure you're aware that fish goes bad really fast so I believe that even if fish is left unfrozen for just a day that the structure of the meat changes drastically.

The Japanese immediately throw the fish that they catch into an ice bath immediately after killing them and keep the meat frozen until they decide to eat it.

Unfortunately here in the states grocery stores will advertise "fresh" "Wild caught" fish and they will unfreeze the frozen product to make it look fresh. But then the fish will continue to rot as it sits there, in the display, waiting to be bought. If you decide to give salmon another try, ask the seafood department at the grocery store if you could get the frozen wild caught salmon instead of the displayed one. See if it makes a difference.

Gianni
12-02-2012, 09:54 PM   #28
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I get the frozen fillets at Costco. I don't trust the display counter fish either
12-02-2012, 09:56 PM   #29
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Interesting about the mycotoxins by the way. I haven't done very well after eating sushi for awhile too but always figured it was the soy sauce. But since it was sushi, well, it was worth it
12-03-2012, 01:23 AM   #30
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I made a new vat of my homemade soup this evening for dinner. I thought I'd share the recipe:

- Home grown better than organic (BTO) okra.
- Home grown, BTO garlic chives.
- Home grown, BTO Moringa
- Home grown, BTO sweet potato vine leaves
- Home grown, BTO edible hibiscus
- Home grown, BTO yard long beans
- Home grown, BTO oregano.
- Organic peas
- Organic broccoli
- Organic red cabbage
- Organic cauliflower
- Organic zuchinni
- Tons of different spices and some salt

Usually I add some black or kidney beans but I'm out.

Toss in a big vat and boil for 15 minutes. Yummy
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