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11-30-2012, 03:41 PM   #1
Charleigh
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We are 8 days into the SCD diet with DS 11.

We are doing a slow introduction as described on the pecanbread website.

It is tough. All my DS has been able to eat are peeled and well cooked carrots, spinach, acorn/butternut squash, homemade applesauce, bananas, eggs, and plain meat.

We are on our second day of no bowel symptoms though so I consider it a success so far.
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Last edited by Charleigh; 11-30-2012 at 05:12 PM.
11-30-2012, 03:54 PM   #2
Jmrogers4
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Glad you are seeing some improvement
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Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
11-30-2012, 05:13 PM   #3
Charleigh
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Glad you are seeing some improvement
Was it difficult to get your doctor to prescribe LDN? How is it working for you so far?

Thanks
11-30-2012, 05:24 PM   #4
Jmrogers4
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He was the one that suggested it, I had heard of it but I had also heard how hard it was to acquire a prescription from the doctor so it was just one of those things I probably subconsciously said if it is that hard to get maybe there is a reason, so when he suggested trying it instead of going to Humira or Remicade we jumped all over it. So far he is doing great on it. GI was very impressed at our appt. in October. We started on July 1st so he would like to give it a full year and then do a scope so he can see how well or not it is working. But physically from what I can tell Jack is doing the best he has since his dx. We have not seen the weight gain/growth that I wanted to see but then I wanted him to grow 5 inches and gain 30 lbs. I think another LDN mom summed it up best is her daughter ended up growing/gaining weight about the last 4 months of the first year and she believed it took that long for the intestines to heal and be able to do the job they are meant to do.
I think it is definitely worth trying, I know it does not work for everyone and we had a few really bad weeks when we first started which we were able to get under control with diet (or the LDN kicked in and started working). He is back to eating pretty much what he wants. (No seeds, popcorn, etc) and we try and limit the gluten but he doesn't seem to have a problem with it.
12-05-2012, 11:00 AM   #5
Tantija
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We are 8 days into the SCD diet with DS 11.

We are doing a slow introduction as described on the pecanbread website.

It is tough. All my DS has been able to eat are peeled and well cooked carrots, spinach, acorn/butternut squash, homemade applesauce, bananas, eggs, and plain meat.

We are on our second day of no bowel symptoms though so I consider it a success so far.
Hi, just keep going I am on the diet one year already and can confirm it works for me

I am surprised you can eat spinach, I can't it makes D. worse.
12-11-2012, 12:26 PM   #6
Charleigh
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Hi, just keep going I am on the diet one year already and can confirm it works for me

I am surprised you can eat spinach, I can't it makes D. worse.
Cooked spinach is in the first few phases on the pecan bread website. He hates it though, so he hasn't eaten enough of it for us to figure out if it is a problem.
He is doing great so far. We just need him to gain weight. We will try almond flour later this week. If we find we can use nut flours, butters, etc then weight gain should come easier.
12-11-2012, 12:39 PM   #7
muppet
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Where are you even finding almond flour? Through the mail? I couldn't find it anywhere in Connecticut.
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12-11-2012, 01:01 PM   #8
KWalker
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you make it muppet, atleast that's what I've been reading
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Methotrexate (injections)
Cipro
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12-11-2012, 01:09 PM   #9
muppet
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I did blanch a bunch of almonds and grind my own flour, but there's got to be a better way. I keep hearing whispers that people are buying the stuff somwhere but never anything concrete. The best I've ever gotten was "You can buy it on Amazon" and you can, for a lot of money in small quantities, but ugh.
12-11-2012, 01:13 PM   #10
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Oh wait, give me some time and I'll find you the link. Somebody had it posted where they buy there's online. I think they said they buy it in large amounts though as it would obviously cut down on cost. Let me see if I can find it again.

When you made your own did you boil them first and take off the outside? Looking at the cost of almonds alone I can't see it being much more expensive to buy it already done.
12-11-2012, 01:14 PM   #11
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It was over a year ago and I honestly don't remember much about the process as we didn't stick with it. I remember I bought 3 pounds of almonds at Whole Foods and did not get a lot of flour out of it.
12-11-2012, 01:18 PM   #12
KWalker
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The post I saw was somebody buying it at like 50lbs at a time
12-11-2012, 01:20 PM   #13
muppet
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I think SCD will challenge my grocery budget. That's another concern. I was worried about that when we tried it a year or so ago, but honestly we had such trouble even sourcing SCD friendly foods that we gave up too soon to find out.
12-11-2012, 01:28 PM   #14
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I was/still am concerned about the money part of it, but there's also a lot of expensive junk food I buy too so I'll be eliminating that so I'm hoping it kind of evens out. I made a juice the other day and buying all fresh veggies, the drink cost me under $2. Tons of nutrients in it though.
12-11-2012, 02:01 PM   #15
Charleigh
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I did blanch a bunch of almonds and grind my own flour, but there's got to be a better way. I keep hearing whispers that people are buying the stuff somwhere but never anything concrete. The best I've ever gotten was "You can buy it on Amazon" and you can, for a lot of money in small quantities, but ugh.

I bought some from www.honeyville.com You can buy it in 25 pounds bags. If you sign up for their email they sometimes send out 15% off coupons.
12-11-2012, 02:05 PM   #16
Charleigh
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I think SCD will challenge my grocery budget. That's another concern. I was worried about that when we tried it a year or so ago, but honestly we had such trouble even sourcing SCD friendly foods that we gave up too soon to find out.

I think it depends on how you go about it. Are you content to change your diet completely? If you try to eat almost the same way you were eating before (especially if you ate a very grain based diet) then it will get very expensive. You can't have a diet that depends heavily on nut flour breads, muffins, cookies, etc and not break the budget because nut flours are expensive. What we have opted to do is focus on meat, veggies, and fruits with a few baked goods as an occasional treat rather than the norm. Ultimately, take away the prepackaged stuff and you should save money or at least not be in the hole. Just my opinion though.
12-12-2012, 02:02 AM   #17
Tantija
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It was over a year ago and I honestly don't remember much about the process as we didn't stick with it. I remember I bought 3 pounds of almonds at Whole Foods and did not get a lot of flour out of it.
Hi! Here in UK we have supplier you can buy the grounded nuts from. I always buy for 50 GBP so it's free delivery and it last for few mounths. But of course there is no point for you to buy it from here.

http://www.naturalchoice.co.uk/acatalog/index.html


But on the other hand we do not have dry cottage cheese in UK
12-12-2012, 06:08 AM   #18
Charleigh
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But on the other hand we do not have dry cottage cheese in UK

I can't find that here either. We are not using any of the suggested dairy products, so it isn't a big deal for us, but I did look for it and could not find it.
12-12-2012, 09:10 AM   #19
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I couldn't find it either. I know Whole Foods is sort of a sham anyway, but I was a little surprised I could find so few SCD legal things there relative to a regular supermarket.
12-12-2012, 10:02 AM   #20
Charleigh
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I couldn't find it either. I know Whole Foods is sort of a sham anyway, but I was a little surprised I could find so few SCD legal things there relative to a regular supermarket.

SCD things are difficult to find anywhere. That is why Elaine says you need to make everything homemade. Time consuming. I think it would be hard to succeed unless you have a good support ~ my husband is completely on board!
12-12-2012, 08:23 PM   #21
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You can buy almond flour at nuts.com for $6.99 a pound. I used to be on SCD and that's where I got mine.
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02-20-2013, 10:18 AM   #22
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I can find almond meal at my regular grocery store (Martins), but it's $9.99 for a 1 lb. bag.
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05-11-2013, 11:14 PM   #23
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You can buy almond flour in various quantity bags at DigestiveWellness.com. comes in the mail, works well and more economical than supermarket. I buy a lot and keep in freezer. Check out their other products too.
05-12-2013, 09:23 PM   #24
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I've only tried the bobs red mill and the honeyville brands. I think the honeyville is wayyyy better. Cheaper too in the 5lb bags.
05-12-2013, 11:42 PM   #25
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Anyone know if Farmer Cheese can be used in stage 1 if still have D.
05-13-2013, 06:42 AM   #26
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I did blanch a bunch of almonds and grind my own flour, but there's got to be a better way. I keep hearing whispers that people are buying the stuff somwhere but never anything concrete. The best I've ever gotten was "You can buy it on Amazon" and you can, for a lot of money in small quantities, but ugh.
My daughter told me the best place to buy almond flour is Trader Joe's.
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05-13-2013, 06:46 AM   #27
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The cheesecake is part of the intro diet and it contains dry curd cottage cheese aka farmer's cheese, so I would assume so, but I'm no expert!
05-14-2013, 06:20 AM   #28
Charleigh
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Anyone know if Farmer Cheese can be used in stage 1 if still have D.
This is where I split ways with SCD. I personally would avoid dairy until symptoms are gone and then try it, knowing that if you are sensitive to the proteins it may take a few weeks of consumption before you start having issues.
05-15-2013, 12:03 PM   #29
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As a vegetarian, I'm not sure what my son would be eating without dairy, right now. He's eating a lot of the yogurt.

He tried well cooked string beans last night and although they didn't make him feel bad, they pretty much went straight through. First food that has done that.

I want to put a T of organic almond butter into a banana & cooked apple smoothie for him soon, in order to increase his calories. He's been feeling well, having well formed BMs and maintaining weight of 101. Been on the diet (with 4 Peptamen still) 9 days. Is it too soon?
05-15-2013, 06:06 PM   #30
Charleigh
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As a vegetarian, I'm not sure what my son would be eating without dairy, right now. He's eating a lot of the yogurt.

He tried well cooked string beans last night and although they didn't make him feel bad, they pretty much went straight through. First food that has done that.

I want to put a T of organic almond butter into a banana & cooked apple smoothie for him soon, in order to increase his calories. He's been feeling well, having well formed BMs and maintaining weight of 101. Been on the diet (with 4 Peptamen still) 9 days. Is it too soon?
Do you have a true conviction that causes you to be a vegetarian or is it for health purposes? Just curious.

We ended up adding almond butter sooner than recommended for calorie purposes too. E did fine, even though he still wasn't doing okay on many of the recommended fruits and veggies.
As he healed, he was able to eat more fruits and veggies. He was limited for a while though.

We had to nix dairy to get there though. Maybe you won't have to do that but just so you know, the yogurt was not to E's advantage.
E ate quite a bit of chicken, turkey, and pork at first.
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