Finally someplace I can hopefully get my daughter and I some much needed support and not maybe it's this or this.
My daughter was diagnosed this year with Crohn's. After 2 years of weight loss, diarreha, vomiting we went to the Mayo Clinic and after lots of tests they figured out what it was. She started out on Azothyprine and Entocort. Did great until she got and eye infection. REduced the azo and went on another medication for eye infection which screwed things up royally. Things straightened out a little and in July went back on a higher dose of azo and entocort. Starting in Aug. she went to ER with fever, chills and dehydration. They said she had a UTI and antibiotics and rehydration and she was fine for a month. In Sept the same thing again. Mayo took her off the Azo. 8 days later the same thing and after the meds were done back we go to the ER again for the same thing. This time they took her to a different hospital and ran all kinds of tests. Only thing she showed was a low white cell count. They put her on a different antibotic and sent her home after 4 days. A week later same thing and I stopped the Entocort. A week later we went back to the Mayo and had blood work-up and guess what, she had the best bloodwork ever in 3 years. Everything was normal. Her Iron levels haven't been normal for 3 years and now great. No more meds for now. Well that was short lived. She now has the chills and fever again and the vomiting. I don't know what else to do. She's not on any meds at all. So we know it can't be the meds causing this. Any suggestions?
My daughter was diagnosed this year with Crohn's. After 2 years of weight loss, diarreha, vomiting we went to the Mayo Clinic and after lots of tests they figured out what it was. She started out on Azothyprine and Entocort. Did great until she got and eye infection. REduced the azo and went on another medication for eye infection which screwed things up royally. Things straightened out a little and in July went back on a higher dose of azo and entocort. Starting in Aug. she went to ER with fever, chills and dehydration. They said she had a UTI and antibiotics and rehydration and she was fine for a month. In Sept the same thing again. Mayo took her off the Azo. 8 days later the same thing and after the meds were done back we go to the ER again for the same thing. This time they took her to a different hospital and ran all kinds of tests. Only thing she showed was a low white cell count. They put her on a different antibotic and sent her home after 4 days. A week later same thing and I stopped the Entocort. A week later we went back to the Mayo and had blood work-up and guess what, she had the best bloodwork ever in 3 years. Everything was normal. Her Iron levels haven't been normal for 3 years and now great. No more meds for now. Well that was short lived. She now has the chills and fever again and the vomiting. I don't know what else to do. She's not on any meds at all. So we know it can't be the meds causing this. Any suggestions?