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12-12-2012, 06:33 PM   #31
Jmrogers4
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I need a hug and not because of Jack. My younger son was supposed to go to a friends after school yesterday but didn't because the friend had too much homework to do, so of course the mother calls me to say he didn't come over, well he didn't come home either. He went to another friends who we are not familiar with and we could not find him for an hour and a half, left his cell phone in his back pack in the friends garage. I called every minute for the hour and a half and was sobbing out of control by the time he called and had the 91 dialed of 911. Still want to start crying just thinking about it and what could have happened to him.
He will be having a very quiet couple of weeks and Jack is pretty much chore free for the next 2 weeks since James will have lots of time on his hands to do extra chores.
Just glad he is safe and all I want to do is hug him after I finish strangling him
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
12-12-2012, 06:37 PM   #32
imaboveitall
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OMG jmrogers, not answering their phones is an "automatic whipping" as my countrified pal used to say.
V has done that and I tracked her down in person and needless to say...hasn't happened since.
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VIOLET AGED 16

Current tx:
Pediasure PEPTIDE 1000 cals nightly via NG tube
Imuran 150mg
Humira


Failed and/or past tx:
Remicade
methotrexate
prednisone
Flagyl
Pentasa
atenolol
Florinef
cyproheptadine
Humira
12-12-2012, 06:38 PM   #33
Crohn's Mom
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OH my goodness ~ how flipping scary is that !
And ya, I get the feeling of wanting to strangle him after you make sure he's fine and hug him! Damn kids ! LOL

I came home from work yesterday and JJ was no where to be found.
I go in the kitchen and the mixer is filled with the beginnings of cookie dough.
I'm screaming through the house ~ JJ where are you ?!?!?!?!
I called him phone and he answers and he's like, Oh hi mom !
I said where in god's name are you??
...Oh, sorry...we're at the store ~ I needed more eggs for the Christmas cookies !
I had no idea who to strangle first..my husband or JJ ! LOL
I didn't have a clue that my husband had been home from work so early, and I was freaking out and crying within 2 mins ~ I couldn't imagine a whole hour and a half! ugh!
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~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
12-12-2012, 06:56 PM   #34
upsetmom
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My kids always have their phones on them... but always on silent and of course they never see that MUM is calling but if their friends call its a different story.
12-12-2012, 09:18 PM   #35
kimmidwife
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Omg jaqui
I would have called 911 after five minutes! Thank goodness he is fine and I certainly agree with ou in the hugging/ wanting to strangle!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
12-12-2012, 09:20 PM   #36
kimmidwife
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Anyway all,
I have had a rough day! I am asking for everyone to keep my third daughter in their prayers! She has a genetic disorder and has been having some symptoms that could be serious. She had an MRI today and now we have to wait 48 hour to hear the results. We are praying for a negative MRI!
12-12-2012, 09:31 PM   #37
Farmwife
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Hugs to you.
We lost my twin for two hours.
I looked in our room than we spread out over our city block and beyond.
My mom was a mess. I still remember the fear of not knowing.
(BTW- She was sleeping in her bed under the covers the whole time. My bad)
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
12-13-2012, 06:05 AM   #38
DustyKat
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MEGA HUGS TO ALL!

BTW...I haven't cut the cord yet.
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Mum of 2 kids with Crohn's.
12-13-2012, 06:26 AM   #39
upsetmom
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OK Dusty we won't give you hugs till your ready...
12-13-2012, 09:22 AM   #40
Crohn's Mom
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How's the view from your corner Dusty ?

12-13-2012, 10:21 AM   #41
Mehita
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Quite honestly, I don't know what I'd do without all of you!
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
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- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
12-13-2012, 08:33 PM   #42
kimmidwife
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Urgently needing a hug today! Why is it that some people just breeze through life with no seeming bumps in the road? My bumps are to numerous! I need some smooth sailing. This has been such a rough week and now Sophia and I are sick.
Did not hear today about my other daughter's MRI. I know they told me 48 hrs but everyone was telling me if it was something bad they probably would have called today. So I am praying hard that no news today means good news tomorrow!
12-13-2012, 09:44 PM   #43
Crohn's Mom
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Cheers to NO news is good news !

Hang in there momma ~ and I hope you all feel better quickly !
12-13-2012, 09:49 PM   #44
crohnsinct
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Absolutely Kim! No news = good news! I am hoping for some of the same over here to!
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
12-13-2012, 10:03 PM   #45
Jmrogers4
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O Kim, I hope you get your smooth sailing soon and you are both feeling better. Praying that no news is good news for you
12-14-2012, 12:14 AM   #46
Tesscorm
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Kim, keeping you and Sophia in my prayers! I hope you get good results very soon to put you at ease!!
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Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
12-14-2012, 12:36 AM   #47
Crohn's Mom
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There's a new dad that posted in the your story forum that could use some advice/support,and hugs...His daughter was just recently diagnosed and about to go off to college ...go get him parents !

http://www.crohnsforum.com/showthread.php?t=44528
12-14-2012, 03:21 AM   #48
izzi'smom
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Kim...I am so sorry to hear all that you are going through...(((HUGS))) and hoping for some positive MRI results and that you and dd are feeling better quickly!
Jacqui...you MUST have been TERRIFIED!!! I did this as a teen and had NO idea what I was doing to my parents when they couldn't find me...am hoping I don't get payback
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
12-14-2012, 02:14 PM   #49
kimmidwife
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Just wanted to keep everyone posted am still awaiting those MRI results. I called three times already and just found out the nurse practitioner who is supposed to give them to us is not in today. I asked if someone else could do it. The secretary said she would get someone on it. (I explained I am freaking out). Also put a call into the regular pediatrician to see if maybe she can get the results.
12-14-2012, 02:21 PM   #50
kimmidwife
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On phone with nurse practitioner MRI is completely normal!!!!
Thank G-d, thank you everyone for your prayers and hugs! I know they worked!
12-14-2012, 02:37 PM   #51
Clash
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Oh what great news!!!! I'm am so glad to hear it! I'm glad you were able to get in touch with someone before the weekend too!!!
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
12-14-2012, 02:53 PM   #52
Tesscorm
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^^^ ditto ^^^
12-14-2012, 03:31 PM   #53
izzi'smom
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SO GLAD to hear some good news!!!!! Fabulous that they were able to get your results to you before the weekend...maybe you'll be able to enjoy it a bit! <3
12-14-2012, 03:33 PM   #54
Jmrogers4
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Jacqui...you MUST have been TERRIFIED!!! I did this as a teen and had NO idea what I was doing to my parents when they couldn't find me...am hoping I don't get payback
I know I kept thinking did I ever do this, do I need to call my mother and apologize, on the side note the house has never been this clean during the week, love coming home to a spotless house and he has been a great mood for the last 2 days, either buttering us up or he knows he can't play any videos or do anything so there is none of him getting upset because he can't play.

Kim, So glad the MRI came back normal what great news.

And I want to give huge hugs to all the parents, children and everyone involved in the horrible school shooting in Connecticut. It just breaks my heart that anyone could do something so awful. Prayers for them all.
12-14-2012, 04:53 PM   #55
upsetmom
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Glad the MRE came back normal...
12-14-2012, 05:01 PM   #56
Farmwife
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Great Kim. So glad to hear.
12-14-2012, 05:11 PM   #57
Farmwife
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I think a hug for all those affected by the mass shooting at a school in the USA need prayers and thoughts sent there way.
27 dead and 18 of those were precious children.
12-14-2012, 06:06 PM   #58
kimmidwife
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Thank you all! This will be a much better weekend now. You guys are Absolutly right about sending a hug to those in Connecticut. How terrible that is to send your child to school like any other day and then such a thing happens!
Upsetmom,
It was an MRI of the brain not an MRE for my other daughter who has a genetic disorder.
Sending hugs and love to all wishing a peaceful weekend!
12-14-2012, 06:14 PM   #59
upsetmom
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Sorry Kim .......i automatically thought it was an MRE i didn't go back and read your previous post...i think i've been reading way too much..
12-14-2012, 06:33 PM   #60
upsetmom
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Kim now that i have reread everything i don't know how i got so confused...
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